Explore tweets tagged as #rFSGSConference
Thank you for joining us for the wonderful #rFSGSConference last week in Washington, DC! We look forward to being in touch with you all soon! #rFSGS
0
0
2
SCG supported the inaugural Recurrent Focal Segmental Glomerulosclerosis Conference in D.C. this past week. Scientists, researchers, advocates, patients & families gathered to discuss the pursuit of treatments and a cure for #rFSGS. #rFSGSConference #KidneyDisease #RareDiseases
0
0
0
At today's #rFSGSConference, we're connecting patients, families, doctors, researchers, funders, & political leaders to raise awareness of #rFSGS. The engaging stories told by patients & caregivers have inspired hope for many attendees. 💙💚
0
1
4
We've kicked off the first-ever #rFSGSConference! We look forward to an impactful day by and for #rFSGS patients. #RareDisease #KidneyTransplant
0
1
7
It’s #WorldKidneyDay! We want to spread hope & encouragement to those impacted by #rFSGS. The rFSGS Initiative is connected to doctors all over the world who are uniting with the community to find a cure. #KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant
0
1
2
Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. Transplant patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS. #KidneyMonth #rFSGS #rFSGSConference
1
0
0
Help us understand why! If you or someone you know has recurrent FSGS (#rFSGS) and you are interested in learning how you can help and provide a biosample, email us at mb5150@cumc.columbia.edu. #KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant
0
0
0
Flashback to our #rFSGSConference in December! We brought together a diverse group of patients, researchers, physicians, & representatives who share a common interest in fighting against #rFSGS. Stay tuned for more! #KidneyMonth #KidneyMonth2025 #KidneyTransplant @SannaCherchiLab
0
1
5
Happy National #KidneyMonth! We're shining a light on Recurrent Focal Segmental Glomerulosclerosis (rFSGS)—a #RareDisease that impacts the kidneys. If you or someone you know has #rFSGS, follow us for news & updates. #rFSGSConference #KidneyTransplant #KidneyMonth2025
0
1
3
Building a biobank is key to finding new treatments for Recurrent Focal Segmental Glomerulosclerosis. If you or someone you know has #rFSGS & you want to learn how to help by providing a biosample, email mb5150@cumc.columbia.edu. #KidneyMonth #rFSGSConference #KidneyTransplant
0
0
2
As #KidneyMonth ends, we want to hear from you all on what continues to inspire you and provide hope for a future where a cure for #rFSGS exists! Let us know your thoughts and experiences in the comments below. ⬇️ #KidneyMonth2025 #rFSGSConference #KidneyTransplant
0
0
1
Do you, a family member, or someone you know have recurrent FSGS (rFSGS)? The @rFSGSInitiative is hosting a conference on #rFSGS with leading doctors, patients, and families. Please view the website and register by Nov. 9: https://t.co/xckfsyL3kb
#rFSGSConference
0
6
15
The @rFSGSInitiative’s Recurrent Focal Segmental Glomerulosclerosis Conference is on Monday, Dec. 9. The #rFSGSConference will gather patients, doctors, researchers, politicians, & funders to raise awareness of #rFSGS, share info, & facilitate funding. https://t.co/xckfsyL3kb
0
2
10
So great to be back at the Pediatric Nephrology Research Consortium Meeting!! @thePNRC Old friends and new friends, old collaborators and new collaborators, everything coalescing around rare diseases research! #RareDisease #FSGS #rFSGS #CAKUT #rFSGSconference #rFSGSInitiative
0
1
14
📣REGISTRATION DEADLINE EXTENDED📣 There's still time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: https://t.co/4hrin7f3Du
1
0
1
We look forward to seeing you tomorrow for the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference! 🔹7:30 a.m.–5:30 p.m. 🔹Hyatt Regency Washington on Capitol Hill 🔹Washington, DC View our program to see what's in store: https://t.co/n1DdOnSDxv
#rFSGSConference
1
0
2
We have 1⃣ WEEK until the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference! Check out the latest #rFSGSConference program to see a day full of inspiring talks & groundbreaking research: https://t.co/n1DdOnSDxv ➡️Don't forget to register: https://t.co/4hrin7f3Du
1
1
6
Great news for our #rFSGSConference ! @Moinsaleem will be our Keynote speaker opening the afternoon session on December 9th in DC. The agenda is filling up an more stellar speakers and special participants will join! Stay tuned for updates, tell about this event to all your
Exciting news! We are proud to announce that Professor Moin Saleem, M.D., Ph.D., will be our Keynote Speaker with the lecture titled “Novel mechanisms and therapies for rFSGS.” Welcome to the #rFSGSConference Dr. Saleem! https://t.co/Xidaf5tX5d
#rFSGS
0
4
14
We are proud to have such an incredible researcher, clinician, and patient advocate as our leader — check out her talk at the #rFSGSConference this December!
Are you interested in learning more about #ClinicalTrials for #rFSGS? Hear from Priya Verghese, M.D., M.P.H., at the #rFSGSConference. She’s a pediatric nephrologist serving as the Division Head of Nephrology at @LurieChildrens & a Professor of Pediatrics at @NUFeinbergMed.
0
0
10
Exciting! The preliminary program for our first #rFSGSConference is out! Go check out our dense schedule, share the word with all your patients and families affected by #rFSGS and don’t forget to register! More news and information will keep coming #RareDisease #FSGS
📣The preliminary program for the first #rFSGSConference is now available! ➡️patient sessions ➡️Q&A segments ➡️opportunities to hear from researchers ➡️time dedicated to connecting with one another: https://t.co/n1DdOnSDxv Don’t forget to register! https://t.co/4hrin7f3Du
#rFSGS
2
4
16