#EhlersDanlosAwarenessMonth #EhlersDanlosSyndrome #EDS #zebra #BrainAVM #Gastroparesis #trigeminalneuralgia #HemifacialSpasms #OccipitalNeuralgia #dysphagia

When surgeon strikes the AVM, It gets cured! @ApolloInter #AVM #microsurgery #neurovascular #NeuroTwitterNetwork #Neurosurgery #neuroscience #brainavm #MedicalTwitter

High Flow Intracranial Pial Fistula, embolised completely by NBCA. #neuroradiology #interventionalneuroradiology #Neurosurgery #NeuroRad #endovascularneurosurgery #brainavm

#brainavm #craniotomy

I think this means we need to live our #chronicillness out loud. Remind others they are not alone! #chronicpain #TNWarrior #EhlersDanlosSyndrome #Gastroparesis #NEISvoid #TrigeminalNeuralgia #BrainAvm #MVDSurgery #hemifacialSpasms #MCAS #MedTwitter #OccipitalNeuralgia

A case of medullary AVM fed by Rt PICA & Rt ascending pharyngeal artery, presented with medullar mass effect. Single session coil/NBCA embo. Complete obliteration. The patient back to normal. #brainAVM #AVM #embolization

Happy 50th to me At 40 I had a #brainAVM and needed surgery. At 50 I have a #brainneuroma and am waiting on a #Neurosurgery consult. This is what #EDS #MCAS #TrigeminalNeuralgia #Gastroparesis #Hypothyroid #Diabetes #OccipitalNeuralgia looks like. #NEIS #MedTwitter #neurotwitter

53M ruptured AVM(20yrs ago), untreated at that time, on Dilantin ever since. Breakthrough #seizure as of recently. Venous stenosis. We added Keppra and embolized after WADA. 6-mo f/u, no residual. Would you’ve cont’d conservative Rx? Would you resect this now? #ARUBA #BrainAVM

Are #BrainAVM congenital? Certainly not always. Here is an example in which we have old imaging.

One thing healthy people in general do not understand is that there is not a cure for everything. #chronicillness #trigeminalneuralgia #EhlersDanlosSyndrome #gastroparesis #NEISvoid #BrainAVM #MVD #ChronicPain #MCAS #diabetic

Terrible flare up from #TrigeminalNeuralgia. I have Neuro damage from my #MVD brain surgery gone wrong 9 years ago for a #brainavm . I try to be positive but days like this suck the life out of me. #NEISvoid #ChronicPain #occipitalneuralgia #NEIS #chronicillness #NeuroTwitter

Today on 9/24/2012 I woke up with ALL the symptoms of Trigeminal Neuralgia. Which was from a brain AVM. It took 116 days to have brain surgery. My health and body has been destroyed since. I was 40. Cont. @DiaryofaSickGrl #EDS #VascularEDS #BrainAVM #TrigeminalNeuralgia

#RareDiseaseDay #RareDiseaseDay2024 #mcas #EhlersDanlosSyndrome #gastroparesis #TrigeminalNeuralgia #brainavm #SupraOrbitalNeuralgia #Dystonia #chronicillness #ChronicPain #NEISVoid #medtwitter #TN #EDS #GP #RareWarrior #TNWarrior

Ruptured A-comm, incidental L frontotemp AVM. Day 1 LICA angio w/ no antegrad flow thru L A1 (top). Vasospasm of R A1(treated) on day6 angio w/open L A1 <= new ischemic demand partly reversing the steal/shunting by the AVM - cool stuff. #brainaneurysm #vasospasm. #BrainAVM

#BrainAVM with large ectatic vein and good example of arterialized cortical draining veins! @InovaHealth #Neurosurgery

Complete treatment of left parieto-occipital highflow AVM with intrnidal aneurysm by Onyx embolization and only one microcatheter (Apollo) in a young boy with headache and sizure. #AVM #BrainAVM

BANANA time 🍌🍌🍌!!! Is the #brainAVM too distracting or can you spot the anatomical variant? Next #BANANAz this upcoming Tuesday 8 am 🇺🇸NY time with Prof Timo Krings. @youngnir @AmeerEHassan @AdamDmytriw @esmintsociety @AdamArthurMD @LINNConline @PascalJabbourMD @WBrinjikji

It has been 9 years 162 days since I woke up with #TrigeminalNeuralgia . #NEISvoid #ChronicPain #chronicillness I never stop counting the bonus days since a #BrainAVM caused my TN. According to my geneticist I likely had the AVM because of #EDS and was born with it.

Successful Curative embolization of right insular AVM in an young symptomatic individual by our team at St John's Hospital, Bangalore interventional radiology department. #avm #onyx #embolization #Neurosurgery #neurology #endovascular #neurotwitter #brainavm #radiology #inr

Complete treatment of left fronto-parietal highflow AVM by Onyx embolization and only one microcatheter (Apollo) in a young boy with headache and sizure. #AVM #brainAVM #aneurysm #endovascularneurosurgery #Apollo