Sofia's Helping Hand
@hand_sofia
Followers
28
Following
91
Media
35
Statuses
73
This is a charity organization that was started by Sofia a 13 year old girl. When hearing her diagnoses of an incurable disorder called #EDS #POTS #MCAS
Joined October 2020
My Marfan Foundation Speech at the Marfan Walk for Victory. Joining forces for connective tissue disorders. #SofiasHelpingHand #childcharity #ehlersdanlossyndrome #EDS #determination #scoliosis #syringomyelia #POTS #MCAS #Marfan #MarfanWalkforVictory2022
0
0
1
I am Sofia from Sofia's Helping Hand, and I am honored to be The Marfan Foundation 2022 South Florida Teen Ambassador Chair. Please help me support The Marfan Foundation by making a donation through my page. https://t.co/GFLWXom9i3
#EDS #POTS #MCAS #Marfan #MarfanWalkforVictory
0
0
1
Happy One Year Anniversary!!!!! Please see the video to see all the amazing things that we have been able to accomplish this year! We do not own the rights to the music. #SofiasHelpingHand #ehlersdanlossyndrome #marfanfoundation
https://t.co/xtindQuqHE via @FacebookWatch
facebook.com
Happy One Year Anniversary!!!!! We have had a wonderful year and hope to have many more. Thank you all for your continued support and for being a part of this community and journey. Please see the...
0
0
0
We all came together to celebrate Aortic Disease Awareness Week dressed in our orangey best! Check out this video of some of the faces of Aortic Disease Awareness! Didn't make the video? Share your pictures with us in the comments. https://t.co/caroxWU1sH via @FacebookWatch
0
0
1
We are delighted to announce The Ehlers-Danlos Society Center of Excellence program, a first step toward the goal of developing a network of Centers that will assist thousands of people worldwide with multi-disciplinary team care. Read more: https://t.co/NmSqL5gsaX
#EDS #HSD
6
20
65
My ferret and I are ready for the @MarfanFdn walk on Sunday. We can not wait to participate in person next year. THERE IS STILL TIME LEFT TO DONATE! Help us get answers through research and support. https://t.co/I96IcbDhgw
#SofiasHelpingHand #mafan #ehlersdanlossyndrome
0
0
2
We are approaching $1000 raises for the @MarfanFdn ONLY 3 MORE DAYS TO RAISE MONEY OR JOIN OUR TEAM! Help us raise funds for the Marfan Foundation. https://t.co/CyftSzj1Nn
https://t.co/I96IcbDhgw
#SofiasHelpingHand #ehlersdanlossyndrome #zebrastrong #determination #marfan
0
0
1
Check out Sofia's Helping Hand's team fundraising page -
0
0
0
Zebra White Writing Ehlers Danlos Syndrome on @Bonfire
bonfire.com
All proceeds go to Sofia's Helping Hand to build awareness and support for kids with EDS.. This is a charity organization that was started by Sofia a 13 year old girl...
0
0
0
Join the Sofia's Helping Hand team in the Marfan Virtual Walk!!!!
0
0
0
Zebra pile up!!!! A bunch more zebras going out today for kids with Ehlers Danlos Syndrome:) #pleaseaskmeaboutmyinvisibleillness
#SofiasHelpingHand #childcharity #ehlersdanlossyndrome #EDS #zebras #zebrastrong #determination #scoliosis #MCAS #POTS #syringomyelia
0
1
1
Check out Sofia's Helping Hand's team fundraising page -
0
0
2
When your big toe keeps dislocating and your ankle hurts during hot weather you tape up, put on your ankle brace and rock cute sandals anyway. That is how I roll. #pleaseaskmeaboutmyinvisibleillness
#SofiasHelpingHand #ehlersdanlossyndrome #scoliosis #MCAS #POTS #syringomyelia
0
0
0
When you wake up in pain and dislocating and your little brother and sister just want you to feel better. So my sister gives me a massage and my little brother brushes my hair. They are so cute how much they care about me. #SofiasHelpingHand #ehlersdanlossyndrome #MCAS #POTS
0
0
1