Guillermo Pons Estel
@gponsestel
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Joined May 2012
✅ Very happy to report that we have completed the entiere STEP1 of #ENDORSED, the international #consensus definition of #SEVERE #LUPUS by the #DORIS group gathering 50+ potential facets of severity thanks to the international panel of HCPs (step 1a) and patients (step 1b) 👍
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Nice review @Lupusreference
✅ Check my visual update on the latest EULAR #recommendations for #Lupus #nephritis, as presented by Boumpas at #EULAR2025 ⬇️
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✅ Check my visual update on the latest EULAR #recommendations for #Lupus #nephritis, as presented by Boumpas at #EULAR2025 ⬇️
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✅ @LupusEurope asked a very interesting question to participants with #lupus: what is LACKING THE MOST in terms of patient/clinician relationship? TOP 3 is: ➡️ Time ➡️ Consideration for non-measurable symptoms ➡️ Acknowledgement of symptoms FREE LINK: https://t.co/F34GB4WmQ8
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The first day of the 6th @SLEuroSociety Advance Workshop on #lupus comes to an end with a high academic level & excellent talks @IoannisParodis @SavinoSciascia Anna Iagnocco, Chiara Tani A. Bortoluzzi Thanks Prof Mariele Gatto for the invitation, it has been a pleasure
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Level up 🆙 #hydroxychloroquine #levels in #SLE When to determine adherence - too low To see if levels are supratherapeutic Who SLE Pts who have risks for #HCQ toxicity#CKD, liver dx, age, overdosing Why Safety Adherence @RheumNow #LUPUS2025
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🎙️ We caught up with Lupus Steering Committee member Dr. Guillermo Pons-Estel at #LUPUS2025, shortly after his insightful fishbowl session: "What to Do When HCQ Needs to Be Stopped Due to Toxicity." Watch the video for his key takeaways from the discussion!
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Looking forward to #LUPUS2025 in Toronto - you can register & save by 15 April! #SLE #Lupus #LupusResearch #Rheumatology
invt.io
One of the Biggest Lupus Meetings Worldwide!
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Consensus to implementing T2T in #SLE clinical practice 🏥👩⚕️👨⚕️ Focus on the applicability of the various concepts, definitions, and tools available for #T2T in #lupus beyond the specific research setting 🧪🧑🔬 A huge thank you🫶 to the lupus PRPs from @LupusEurope
✅ Practical consensus for Treat(ing)-to-target in systemic #Lupus ⬇️ To get all the details for the practical implementation of #T2T in #SLE 🎯 check our full paper at: https://t.co/7QcBZLumyR
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✅ Finding the role of #Anifrolumab in the new paradigm of Systemic #Lupus Erythematosus Treatment ⬇️ Check our latest Editorial with Romina Nieto, Graciela Alarcón & @gponsestel incorporating the LATAM perspective on access to #biologics 👍 https://t.co/hQNRkjFKko
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🆕Predictors of first hospitalization due to disease activity & infections in SLE patients A collaborative work from @gladel_latam
@PanlarLeague Led by @gponsestel R Quintana @mugartegil
#lupus Open access⬇️ https://t.co/JiYeOdRE7B
journals.sagepub.com
Objectives To identify the predictive factors of first hospitalization and associated variables to the main causes of hospitalizations in lupus patients from a ...
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✅ The results of the #OMERACT domain survey for systemic #Lupus are now published! A panel of 145 #SLE experts and 100 patients priorized the most important lupus domains for updating the core outcome set 👍 A great work led by Zahi Touma! Link: https://t.co/VSi4XmBVrm
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✅ #PANLAR2024 ➡️ Are you confronted to the management of REFRACTORY 🔥 #LUPUS? Do you wish to know more about it...SORRY GUYS, you will have to WAKE UP EARLY 😂 This 'meet the Professor' is scheduled tomorrow MORNING ⏰ (12th April) at 07:00 en la sala roble morado 👍 ☕
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✅ #PANLAR2024 Advances in #Lupus guidelines, from @eular_org to @gladel_latam (and vice versa). Today 10:30 in the PLENARY SESSION room. If you haven't checked the #EULAR guidelines for #SLE, here is a summary of the main overarching principles ⬇️ +LINK: https://t.co/yptOg2TliM
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✅ #LUPUS2024, Bernardo Pons-Estel talking about the challenges in access to care and complexity for the assessment of #lupus #nephritis in #Latam
@SLEuroSociety @gladel_latam @PanlarLeague
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✅ Today is the start of a VERY IMPORTANT WEEK for all lupologists & those with a specific interest for #Lupus as we will all meet at the 14th European #Lupus Meeting of the @SLEuroSociety 👍 Please come and say hi if you see me 🙏
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✅ Today let's check another statement about #lupus #nephritis from the latest #EULAR guidelines 👍 which is about MAINTENANCE treatment of #LN: 🔹 At least 3 years (cf. WIN-lupus) 🔹MMF (+/- BEL or Voclo) ➡️ SAME 🔹CYC (+/- BEL) ➡️ MMF or AZA (+/- BEL)
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Plus, the authors of the @RheumatologyUK #pregnancy guidelines have also responded to the EMA's #hydroxychloroquine recommendation, & discuss impact on the guidelines. Read that here 👇 https://t.co/v9nMoVKZXh
academic.oup.com
Dear Editor, We are concerned by the European Medicines Agency (EMA) recommendation to update the patient information leaflet for the use of HCQ in pregnan
NEW—International experts express their united concerns about the European Medicines Agency's recommendation to update the summary of product characteristics and the patient information leaflet for the use of #hydroxychloroquine in #pregnancy
https://t.co/QQfJMpU4vX…
@EMA_News
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NEW—International experts express their united concerns about the European Medicines Agency's recommendation to update the summary of product characteristics and the patient information leaflet for the use of #hydroxychloroquine in #pregnancy
https://t.co/QQfJMpU4vX…
@EMA_News
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