Oksana Hlyva
@goDSresearch
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Parent researcher w/ interest in health-related quality of life, inclusion, & accessibility; not neutral for blue & yellow: Ukraine and Down syndrome
Dundas, Ontario
Joined September 2014
RT @UKUN_NewYork: Not only is Putin destroying Ukrainian homes, schools, hospitals and energy infrastructure. He's also stealing Ukraine's….
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RT @ObserveConflict: Under the direction of President Vladimir Putin, groups of children were taken from Ukraine and brought to Russia for….
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Great to see international collaboration @t21rs #Downsyndrome and #research should have no borders. First memory as a parent, I was told to ignore different ranges for TSH because we are not in the US.
A State Recognition of T21RS Indian Chaper for research and societal outreach activities for the people with Down syndrome .#State award 2024.#Down syndrome .# T21RS Indian Chapter
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So important. there is always risk of bias. .
🚨Meta-analysts, don't miss our next #ResearchMethods webinar! 😍. Dr. Carole Lunny @carolelunny shares a new #RiskofBias tool for network meta-analysis. Register now: #systematicreviews #metaanalysis
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RT @Kasparov63: This is Putin's response to Scholz's phone call. Words show weakness and invite escalation, as always.
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RT @P_Kallioniemi: I'm so happy that Scholz decided to de-escalate the war!. Today, Russia sent "only" 120 missiles and 90 drones towards U….
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RT @Kasparov63: Trump, a would-be autocrat, using Orban, an actual autocrat, as a character reference is too perfect. As with his praise fo….
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RT @picardonhealth: Welcoming people with disabilities into the workforce is a win for everyone, by Chris Ryan vi….
calgaryherald.com
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How about investing in designing for accessibility, inclusion and belonging, rather than locking them up? 🤔.
Family members of students w/ disabilities are frustrated by Edmonton school board's plan to build 25 more seclusion rooms in the face of a promise to phase them out. These rooms are being used to involuntarily and unjustly seclude students. @InclusionAB .
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Importance of #Inclusiveresearch @WorldDSCongress, the last frontier in the inclusion of individuals w/ #DownSyndrome? Removing barriers can change lives of many AND benefit those w/out #Downsyndrome as health challenges overlap.
Today's Congress sessions have been fantastic! . We're wrapping up today with outstanding panel sessions on medical research, inclusive research practices and the power of reading 📚. Looking forward to more great sessions tomorrow!. #WDSC2024.#WorldDownSyndromeCongress
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Exciting research on which country best supports their citizens w/ #DownSyndrome @WorldDSCongress. And as always, commendable example of democratizing healthcare for this underserviced population @brianskotko!.
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Just reading & including this paper on #Participation of Youth w/ #DownSyndrome in a CanChild's manuscript, as a great example of engaging this population in research @suerobinsyvr
pmc.ncbi.nlm.nih.gov
The purpose of this paper was to investigate the participation patterns of children with Down syndrome (DS) using the construct of participation as defined by the International Classification of...
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Yes to accessibility and inclusion of ppl w/ #Downsyndrome on research teams! . Great to hear it's on the agenda at the World Down Syndrome Congress in Australia! @suerobinsyvr.
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RT @TO_dpr: Periodic reminder of how much #PatientPartners reveal/bare/share about themselves and their conditions/experiences for the sake….
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RT @kajakallas: Shocking images as Russian missiles hit Okhmatdyt Hospital, #Ukraine’s largest children’s hospital. It's a reminder of why….
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RT @CdnDownSyndrome: “This is how advocacy can begin for any one of us: small steps, seeking out information, asking for representation, sh….
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Thank you for reposting @KidsBrainHealth. Many parents of children w/ #Downsyndrome can tell you how limiting is sound-sensitivity to their #participation at school and community-> inclusion, well-being, quality of life.
Interesting study @KidsBrainHealth also relevant to kids w/ #DownSyndrome .Field-Testing an Intelligent Sound-Sensitivity Device
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#StopRussianTerror #Okhmadyt is the largest hospital treating most vulnerable, fragile kids. Imagine if the US bombed a Canadian Children's hospital because the US are bigger, stronger or don't like Canadian foreign relationships w/ other countries?.
Because Russia bombed the kids with cancer.
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RT @GO_DS21: Parents of #DownSyndrome kids: Try out this new educational app to teach them about healthy and nutritious food in a playful w….
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