
GLOW: Global nLPHL One Working Group
@glow_nlphl
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GLOW is the Global nLPHL One Working Group, committed to improving outcomes for patients with nodular lymphocyte-predominant Hodgkin lymphoma. #NLPHLsm #lymsm
Joined April 2021
Announcing the International Prognostic Score for NLPHL (LP-IPS) in @JCO_ASCO, the largest study of NLPHL to date. Congratulations to our founders Drs. @michaelsbinkley & @JamieFlerlage and the GLOW team on this high-impact publication. #NLPHLsm #lymsm
ascopubs.org
PURPOSENodular lymphocyte–predominant Hodgkin lymphoma (NLPHL) is a rare cancer, and large international cooperative efforts are needed to evaluate the significance of clinical risk factors and...
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Thank you to all who attended our third @glow_nlphl Summit yesterday to discuss NLPHL classification. We thank Drs. Elias Campo, Daphne de Jong, Sylvia Hartmann, Richard Hoppe, & Leticia Quintanilla-Fend, and our AYA patient advocate William Martins, for sharing their expertise.
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Thrilled our study exploring cell state ecosystems for NLPHL has been published. This represents a multi-year effort and the best collaborators in the world. Thread to follow. https://t.co/tp5jLUKC8l
@glow_nlphl @JamieFlerlage @AshAlizadeh @everettmoding @vit_prochazka
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Our @glow_nlphl lead Dr. @JamieFlerlage spoke about the GLOW multicenter study of radiation therapy outcomes for Stage IA NLPHL which she presented at #18ICML for @VJHemOnc. #lymsm #NLPHLsm
https://t.co/XKjBaPeXgs
vjhemonc.com
Jamie Flerlage, MD, MS, University of Rochester, Rochester, NY, comments on the impact of radiation therapy on progression-free survival (PFS) in patients with stage IA nodular lymphocyte-predominant...
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Congratulations to Dr. Juliana Costa on presenting @glow_nlphl at Congreso @ACHOP_COL in Colombia and how to establish NLPHL registries in Latin America. Additional thanks to Drs. Ana Rosa Braz Costa and Adriana Morais for their leadership on this work. #lymsm #NLPHLsm
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Proud to work with this incredible group of investigators and patients @glow_nlphl on studying patient-reported outcomes and the patient experience in this rare disease. #18ICML #lymsm
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Outcomes Stage IA NLPHL @glow_nlphl: superior PFS (not OS) for RT after complete resection (vs observation). For unresected patients, best PFS with RT & RT+ABVD, no diff OS. No diff in transformation events. More numerical SPMs after RT. #lymsm #18ICML
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Resection + RT improves PFS vs observation alone (90% vs 65%) for NLPHL presented by @JamieFlerlage #ICML18 @glow_nlphl
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Congratulations to Dr. @JamieFlerlage on her oral presentation at #18ICML on our @glow_nlphl analysis of radiotherapy in Stage IA NLPHL. #lymsm
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You can observe advanced-stage NLPHL just like other indolent lymphomas. No compromised PFS2 for patients who are initially observed. And only 1/3 of patients needed treatment. #18ICML #lymsm @glow_nlphl
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NLPHL session at #18ICML. Fascinating work about association of NLPHL with bacterial infections in patients with certain HLA types. #lymsm #NLPHLsm cc @glow_nlphl
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Congratulations to all our @glow_nlphl contributing centers on establishing the first prognostic index specifically for NLPHL. #lymsm #18ICML
Wonderful to see the LP-IPS score mentioned in the #18ICML NLPHL session! Congratulations to @michaelsbinkley @JamieFlerlage and everyone at @glow_nlphl. Paper from @JCO_ASCO is here: https://t.co/OAh6OhTVXg
#lymsm
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We are seeking patients with relapsed or refractory FL or DLBCL for a compensated study about experiences with bispecific antibody therapies. To my #lymsm & #onctwitter colleagues: please share the attached flyer with your networks. Thank you! #tcellrx
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To my lymphoma colleagues: we are performing a study of patient experiences with bispecific antibodies for relapsed/refractory DLBCL or FL. Please share this flyer with your patient groups and networks. Thank you! #lymsm
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Read the editorial written about our @glow_nlphl research roadmap manuscript in Pediatric Blood & Cancer: https://t.co/Qj3dtbCWuH
#lymsm #nlphlsm
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Our @glow_nlphl research roadmap for NLPHL is now published. In this manuscript, we review the historical research challenges in NLPHL research and progress to date of our international GLOW Consortium ( https://t.co/AEHGTnZZaF).
#lymsm #nlphlsm
https://t.co/A4McCUfZZP
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"A diagnosis of NLPHL is often a long, confusing, and isolating journey." Our @glow_nlphl study of patient & care partner perspectives on NLPHL, and how we can better counsel on management options. Many thanks to our collaborating patient advocates. #lymsm
https://t.co/vPNX1L6JPu
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Announcing our latest @glow_nlphl study, a qualitative analysis of patient & care partner perspectives on treatment decision-making in NLPHL. This study enables investigators to better align NLPHL research with patient priorities. #lymsm #nlphlsm
https://t.co/iuNf9noxE6
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The LP-IPS prognostic score for NLPHL, developed through the @glow_nlphl consortium, was just cited in a new review published by Drs. Eichenauer & Borchmann. #lymsm #NLPHLsm
https://t.co/MtsnX0pCdg
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