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GLOW: Global nLPHL One Working Group Profile
GLOW: Global nLPHL One Working Group

@glow_nlphl

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GLOW is the Global nLPHL One Working Group, committed to improving outcomes for patients with nodular lymphocyte-predominant Hodgkin lymphoma. #NLPHLsm #lymsm

Joined April 2021
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@glow_nlphl
GLOW: Global nLPHL One Working Group
2 years
Announcing the International Prognostic Score for NLPHL (LP-IPS) in @JCO_ASCO, the largest study of NLPHL to date. Congratulations to our founders Drs. @michaelsbinkley & @JamieFlerlage and the GLOW team on this high-impact publication. #NLPHLsm #lymsm
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ascopubs.org
PURPOSENodular lymphocyte–predominant Hodgkin lymphoma (NLPHL) is a rare cancer, and large international cooperative efforts are needed to evaluate the significance of clinical risk factors and...
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@glow_nlphl
GLOW: Global nLPHL One Working Group
4 days
We were also happy to present Dr. Yasodha Natkunam with the Suzi Birz Commitment to Collaboration Award this year for her ongoing work with GLOW and for making our WHO and ICC panel at this summit come to fruition. #lymsm #NLPHLsm cc @suzibirz
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@glow_nlphl
GLOW: Global nLPHL One Working Group
4 days
Thank you to all who attended our third @glow_nlphl Summit yesterday to discuss NLPHL classification. We thank Drs. Elias Campo, Daphne de Jong, Sylvia Hartmann, Richard Hoppe, & Leticia Quintanilla-Fend, and our AYA patient advocate William Martins, for sharing their expertise.
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@michaelsbinkley
Michael Sargent Binkley
24 days
Thrilled our study exploring cell state ecosystems for NLPHL has been published. This represents a multi-year effort and the best collaborators in the world. Thread to follow. https://t.co/tp5jLUKC8l @glow_nlphl @JamieFlerlage @AshAlizadeh @everettmoding @vit_prochazka
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@glow_nlphl
GLOW: Global nLPHL One Working Group
4 months
Congratulations to Dr. Juliana Costa on presenting @glow_nlphl at Congreso @ACHOP_COL in Colombia and how to establish NLPHL registries in Latin America. Additional thanks to Drs. Ana Rosa Braz Costa and Adriana Morais for their leadership on this work. #lymsm #NLPHLsm
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@majorajay
Ajay Major, MD, MBA
4 months
Proud to work with this incredible group of investigators and patients @glow_nlphl on studying patient-reported outcomes and the patient experience in this rare disease. #18ICML #lymsm
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@majorajay
Ajay Major, MD, MBA
4 months
Outcomes Stage IA NLPHL @glow_nlphl: superior PFS (not OS) for RT after complete resection (vs observation). For unresected patients, best PFS with RT & RT+ABVD, no diff OS. No diff in transformation events. More numerical SPMs after RT. #lymsm #18ICML
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@drsairahahmed
drsairahahmed
4 months
Resection + RT improves PFS vs observation alone (90% vs 65%) for NLPHL presented by @JamieFlerlage #ICML18 @glow_nlphl
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@glow_nlphl
GLOW: Global nLPHL One Working Group
4 months
Congratulations to Dr. @JamieFlerlage on her oral presentation at #18ICML on our @glow_nlphl analysis of radiotherapy in Stage IA NLPHL. #lymsm
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@majorajay
Ajay Major, MD, MBA
4 months
You can observe advanced-stage NLPHL just like other indolent lymphomas. No compromised PFS2 for patients who are initially observed. And only 1/3 of patients needed treatment. #18ICML #lymsm @glow_nlphl
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@majorajay
Ajay Major, MD, MBA
4 months
Transformation not uncommon in NLPHL, more common with Pattern E (I always ask hematopathology to identify pattern) and splenic involvement. #18ICML #lymsm #NLPHLsm
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@majorajay
Ajay Major, MD, MBA
4 months
NLPHL session at #18ICML. Fascinating work about association of NLPHL with bacterial infections in patients with certain HLA types. #lymsm #NLPHLsm cc @glow_nlphl
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@glow_nlphl
GLOW: Global nLPHL One Working Group
4 months
Congratulations to all our @glow_nlphl contributing centers on establishing the first prognostic index specifically for NLPHL. #lymsm #18ICML
@majorajay
Ajay Major, MD, MBA
4 months
Wonderful to see the LP-IPS score mentioned in the #18ICML NLPHL session! Congratulations to @michaelsbinkley @JamieFlerlage and everyone at @glow_nlphl. Paper from @JCO_ASCO is here: https://t.co/OAh6OhTVXg #lymsm
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@majorajay
Ajay Major, MD, MBA
6 months
We are seeking patients with relapsed or refractory FL or DLBCL for a compensated study about experiences with bispecific antibody therapies. To my #lymsm & #onctwitter colleagues: please share the attached flyer with your networks. Thank you! #tcellrx
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@majorajay
Ajay Major, MD, MBA
6 months
To my lymphoma colleagues: we are performing a study of patient experiences with bispecific antibodies for relapsed/refractory DLBCL or FL. Please share this flyer with your patient groups and networks. Thank you! #lymsm
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@glow_nlphl
GLOW: Global nLPHL One Working Group
7 months
Read the editorial written about our @glow_nlphl research roadmap manuscript in Pediatric Blood & Cancer: https://t.co/Qj3dtbCWuH #lymsm #nlphlsm
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@glow_nlphl
GLOW: Global nLPHL One Working Group
7 months
Our @glow_nlphl research roadmap for NLPHL is now published. In this manuscript, we review the historical research challenges in NLPHL research and progress to date of our international GLOW Consortium ( https://t.co/AEHGTnZZaF). #lymsm #nlphlsm https://t.co/A4McCUfZZP
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@majorajay
Ajay Major, MD, MBA
7 months
"A diagnosis of NLPHL is often a long, confusing, and isolating journey." Our @glow_nlphl study of patient & care partner perspectives on NLPHL, and how we can better counsel on management options. Many thanks to our collaborating patient advocates. #lymsm https://t.co/vPNX1L6JPu
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@glow_nlphl
GLOW: Global nLPHL One Working Group
7 months
Announcing our latest @glow_nlphl study, a qualitative analysis of patient & care partner perspectives on treatment decision-making in NLPHL. This study enables investigators to better align NLPHL research with patient priorities. #lymsm #nlphlsm https://t.co/iuNf9noxE6
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@glow_nlphl
GLOW: Global nLPHL One Working Group
10 months
The LP-IPS prognostic score for NLPHL, developed through the @glow_nlphl consortium, was just cited in a new review published by Drs. Eichenauer & Borchmann. #lymsm #NLPHLsm https://t.co/MtsnX0pCdg
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