Caroline Fricker
@frickercaro
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Mother/Carer of Very Severe M.E sufferer of 9yrs. Daughter is @FrickerAlice
Joined January 2023
Clip from yesterday’s BBC Radio Wales: Robert’s son has lived with #MECFS since age 11. Today is #SevereME Day and his 33rd birthday. At his worst, he was too ill to speak, turn his body or his head — and had to be tube-fed. Most doctors have no idea it can be this severe.
Edited BBC Radio Wales segment from The Phone In show about the DecodeME results with Oliver Hides. Features Prof Chris Ponting and a number of patients sharing their experiences of #MECFS (31 mins) https://t.co/1yDx8Gknax
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William speaks about his daughter Alice, who has been bedridden in a dark room with Severe ME for 10 years. He questions the lack of curiosity around #MECFS and said: If people realised what these patients are actually going through maybe we would get some help #SevereMEDay
Edited version of BBC 5 Live’s Nicky Campbell phone-in (53 mins) on the DecodeME results. Professor Chris Ponting explains the findings, and callers share how stigma, misdiagnosis, and severe illness have shaped their lives with #MECFS. https://t.co/ktykwzTV7J
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June 30 + 10… and with still no sign of the ME Delivery Plan, last Thursday I again asked the Leader of the House, @LucyMPowell, if she could help bring an end to the delay which is so disrespectful for #pwME. I’m grateful for her acknowledgement and commitment to follow up. 👍🏾
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" “Margaret Williams” writes a historical record for the ME community: "A record of the influence of Prof Sir Simon Wessely on #ME patients" Please share widely #pwME
https://t.co/N0IhhWcNDU
forums.phoenixrising.me
Over the past few weeks, “Margaret Williams” (a pseudonym) has been working on a detailed exposé concerning Professor Sir Simon Wessely. Many of you will be familiar with her previous work, often...
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A new study published in the Journal of Virology has revealed that the Spike proteins from SARS-CoV -2 and other human coronaviruses directly activate mast cells, initiating a rapid inflammatory response through a well-defined intracellular signaling cascade. Significant
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This is not just for Alice but all #pwME 💙 (2) #biomedicalresearch #pwME #severeME #ThereForME
#MyalgicEncephalomyelitis #GoFundMe
https://t.co/KW9ml769DK
justgiving.com
Help Kira Gardner raise money to support ME Research UK
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Brilliant to see coverage today of our #FundThePlan campaign by @BBCSpotlight. Brilliant interview with Rosie, who is a carer to her sister Alice. “How can you deliver a plan with no money assigned to it?” Link in next post 👇
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@wesstreeting and @AshleyDalton_MP, my younger sister & best friend has very severe #MyalgicEncephalomyelitis. She was fit, healthy and loved life. Now she is bedridden, tube fed, needs 24 hr care and is suffering so much. Please #FundThePlan and be #ThereForME
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We’ve been so moved seeing the #FundThePlan videos over the past few weeks. Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign. We’d love your help making some noise with it 🙏
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Dear @wesstreeting and @AshleyDalton_MP Please #FundThePlan I’ve lost my teenage years to ME and I don’t want to lose my twenties too. #ThereForME
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💙 LCA wholeheartedly supports @ThereForME #FundThePlan campaign. It is crucial that strong foundations are formed for #pwME and that means investment. One of our members explains below in our video contribution. Please see below for our statement & 🧵on the plan 1/8
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Thank you @tessamunt Please will other MPs be #ThereForME and ask the government to #FundThePlan? My 17 yo daughter is tubefed and bedridden. Desperate for a breakthrough. #myalgicencephalomyelitis
@UKParliament
@UKLabour
@LibDems
@TheGreenParty
#advocacy #allyship #solidarity
I popped out of Parliament because I really wanted to say #FundThePlan. £20 million pa for the government’s Delivery Plan would be such a good investment to bring life to the 1.3 million people with #ME. Too many have waited so long, just clinging to hope. Who’s also #ThereForME?
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i'm a carer for my partner with very severe ME. we desperately and urgently need treatments and better care for people with ME, and the only way that's going to happen is with investment, so @wesstreeting @AshleyDalton_MP #FundThePlan
#ThereForME @ThereForME_UK
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We’re sharing this from Clare Norton - who has this message for @wesstreeting @AshleyDalton_MP & her MP @paulwaugh 👇 #FundThePlan
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Dear @wesstreeting & @AshleyDalton_MP My 20yr old daughter @FrickerAlice has been bedridden for 9yrs with Very Severe ME. She hasn’t lived a life since she was 12yrs old. Please #FundThePlan
@ThereForME_UK
@JayneKirkham4
#SevereME #pwME
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@wesstreeting @AshleyDalton_MP My teenage daughter has Very Severe #MyalgicEncephalomyelitis. She used to be fit and well, have a good education, hobbies, and a promising future. Now she is bedridden, tubefed and has lost 3 1/2 years so far...
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Dear @wesstreeting & @AshleyDalton_MP I’m a carer to my husband James who has very severe ME. He used to be a civil servant. Now he can’t get out of bed or have a conversation. The Delivery Plan for ME is an opportunity to invest in our future. #FundThePlan
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Because some patients with #longcovid are now 1) finding out they have had hypermobility symptoms pre-Covid which have gravely worsened after the virus 2) being diagnosed with Craniocervical Instability 3) display many of the seemingly unrelated symptoms listed by Dr. Klinge,
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