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European MS Platform Profile
European MS Platform

@eumsplatform

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Following
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Advocacy and expertise for over 1 million people living with #MultipleSclerosis, NMOSD and MOGAD in Europe.

Brussels
Joined June 2012
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@eumsplatform
European MS Platform
1 hour
Still figuring summer plans?.Make it matter! 🏃‍♀️.Join inspiring MS warriors like Eline-Sofie at EMSP's MS Awareness Run - November 2nd. Push your limits while fundraising for MS.Register: #MSRun #RunForACause #MSAwareness #EMSP #FitnessGoals
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@eumsplatform
European MS Platform
8 days
NMO and MOGAD are rare conditions, often misdiagnosed as MS, leading to wrong treatments and delayed care. Our latest #LetsTalkMS episode dives into:.What NMOSD & MOGAD really are.Why is it misdiagnosised.How patient communities drive change. Tune in now:
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@eumsplatform
European MS Platform
15 days
Invisible ≠ insignificant.MS fatigue isn't "just tired" — it's crushing exhaustion that steals independence & quality of life. Brain fog, pain, depression. all real, all unseen.We must recognise #InvisibleSymptoms & support ALL aspects of #MS
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@eumsplatform
European MS Platform
16 days
At 17, Luigi Azzarone faced mysterious symptoms & an MS diagnosis. Through it all, one person made all the difference: his nurse . Nurses play a key role in a patient's disease journey. Read his story 👇.
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@eumsplatform
European MS Platform
21 days
Our JUNE newsletter is HERE!.✨ EMSP 2025 Conference highlights .🎙️New podcast episodes on mental health & stigma.🏃‍♀️MS Awareness Run registration open . 🌍 World MS Day celebrations worldwide. Plus new courses, research updates.Read:
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@eumsplatform
European MS Platform
22 days
Newsletter: Innovative MS initiatives from across Europe, RWD training launch, EU Pharma Package hot take & more -
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@eumsplatform
European MS Platform
25 days
Family Planning & Pregnancy webinar for MS healthcare professionals! . Join us:.🗓️July 4th 🕑 15:00 CEST .Learn:.Evidence-based strategies.Care coordination tips.Person-centered approaches. Speaker: @Laetitia della Faille, NMSC Melbroek.Register: .#MSCare
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@eumsplatform
European MS Platform
28 days
MS Awareness Run is BACK.Research shows movement significantly impacts brain health. Put on your running your shoes and join us to raise MS awareness. 🏃‍♂️🏃‍♀️. Not a runner? You can make a difference. Register: RT to spread the word! 💙.#MSRun2025
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@eumsplatform
European MS Platform
29 days
65% of people with #MS experience bladder control issues—ranking among the top 5 most debilitating symptoms. For 23%, these invisible symptoms cause severe daily limitations. Time to break the silence. Invisible ≠ insignificant. #WorldContinenceWeek #MultipleSclerosis .@Lili_Bxl
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@eumsplatform
European MS Platform
1 month
Mark your Calendar: .📍@ECTRIMS 2025, Barcelona 📷 24 Sep. Join the session on cutting-edge research on EBV & #MS development + therapeutic interventions . Register: . Visit EMSP booth #11 at #ECTRIMS2025 to learn more about our projects. @UiB @Lili_Bxl
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@eumsplatform
European MS Platform
1 month
The 11th Congress of the @EANeurology is coming to Helsinki.📅 June 21-24, 2025 📍 Helsinki, Finland + Online . Theme: "Neurology within Society".Latest advances in neurological care & research—including key developments for the #MS community. Register:
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@eumsplatform
European MS Platform
1 month
Time for change: .✅ Recognise invisible symptoms . ✅ Improve care strategies.2.8 million people worldwide live with MS. Their experiences matter. #ChronicIllness #MSAwareness #Healthcare .Learn More:
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@eumsplatform
European MS Platform
1 month
🧵1/3.The invisible reality of #MS:. 😩Crushing fatigue.😕Brain fog.🚶‍♀️Mobility challenges.😪Sleep issues.🚺Bladder problems. These symptoms are REAL and life-changing.
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@eumsplatform
European MS Platform
1 month
🚨 Only 52% of people with #MultipleSclerosis are satisfied with their symptom management.Our #IMSS study across 22 countries reveals:. 99% experience symptoms (avg. 14 at once!).Using 6+ different treatments.Still nearly half aren't getting the care they need. We can do better.
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@eumsplatform
European MS Platform
2 months
🦠 Could a common virus hold the key to understanding Multiple Sclerosis or even prevent it altogether? This is the question the EBV-MS project which EMSP partners on is trying to answer. Watch the video ➡️#MultipleSclerosis #MSResearch #EBV.
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@eumsplatform
European MS Platform
2 months
As per our #IMSS survery the average wait time for #MultipleSclerosis diagnosis is 3 years!.Timely diagnosis= Improved outcomes. Join @MSIntFederation @WorldMSDay webinar on "Improving MS Diagnosis". Starting: 14:00 CEST .Join:
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@eumsplatform
European MS Platform
2 months
3 years. That's how long people wait on average for a #MultipleSclerosis diagnosis. 3 years of uncertainty without the right treatment. On #WorldMSDay, we're focusing on Navigating Diagnosis. Early diagnosis = better outcomes. @Lili_Bxl #IMSS
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@eumsplatform
European MS Platform
2 months
"Let's Talk MS" new episode out now.@Lili_Bxl & @annarevillab tackle MS diagnosis impact on young people with expert guests Yolanda Higueras (PhD neuropsychologist) & Janneke Knol @eumsyouth.Raw stories ➡️ actionable hope .@MentalHealthEur.
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@eumsplatform
European MS Platform
2 months
RT @EU_Brain: 📢1 month to go until #EAN2025!. Join us in Helsinki for the 11th Annual EAN Congress! Submit your membership applications bef….
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@eumsplatform
European MS Platform
2 months
Keys questions to ask your neurologist: .💊Pros and cons of each treatment.👩What does it mean for my situation?. @eumsyouth Janneke's tips on patient empowerment.
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