Cancer Update
5-1-2024
✨ Every repost helps just a little bit more ✨
Hospice:
I’ve made good progress in selecting a hospice provider, and doing a bit more due diligence today on a shortlist of 3. Seems straightforward enough (famous last words).
Long Term Care:
My Financial…
CANCER UPDATE
4-24-24
Gosh - I spent much of my online time yesterday reading your messages and doing my utmost to respond to everyone. I know I've missed a few, and tbh, Twitter doesn't make it easy to keep on top of things 🤷🏽♂️
If you're a cancer warrior or survivor, you'll…
🫂 Farewell Friends 🫂
The time has come for me to say my goodbyes. This is my final post.
These last 4 years have been the toughest of my life, yet the most fulfilling in some respects.
Finding purpose was a game changer for me, albeit late in life. It helped me navigate…
@billmaher
@EllaTravelsLove
Nobody owns the land in Native American culture. It’s supposed to be shared and cared for. There are traditional territories, which is not quite the same. Removing folks from traditional lands and caging them in a reservation hundreds if not thousands of miles away is a far cry…
☮️ I’m still here! 😃
I can’t believe the outpouring of love this morning.
The last things on my todo list were to wipe my laptop clean, and drop my dog Rupert off to friends. I was just getting ready for what would have been an awful experience, when
@AnjeVela
called me to say…
🫂 Farewell Friends 🫂
The time has come for me to say my goodbyes. This is my final post.
These last 4 years have been the toughest of my life, yet the most fulfilling in some respects.
Finding purpose was a game changer for me, albeit late in life. It helped me navigate…
🌟PANIC STATIONS🌟
Something very bad happened last week and I’m in danger. The video is a bit longer than usual as I’m trying to save my life 😰
I need to raise $6k very quickly to get out of this mess, and a roof over my head for 2-3 weeks. I must finish my legacy project…
CANCER UPDATE
4-22-24
It’s been six weeks since I last made a post.
- I stopped chemotherapy treatment 4/10/24
- I was referred to hospice 4/12/24
Since my last post, both the kappa/lambda ratio and M-spike have become elevated, and the myeloma symptoms have crept back in;…
My video interview is out on Sean Tucker’s youtube channel, where I discuss my skin condition and photography’s role in helping me face not only my physical difficulties, but also my chronic struggle with mental health. Thank you so much
@seantuck
.
Goodnight Everyone 🙏🏽
A brighter outlook and some words of thanks, especially to
@AnjeVela
, who's pulling out all the stops to network my message and help me find accommodation while I work on the medical side of things.
Pretty worn out this evening and looking forward to a…
⭐️THANK YOU⭐️
I can't believe that barely 12 hours ago I was tossing and turning in a cold sweat in my car, wondering what to do next.
I drove to my storage unit to sift through my last possessions, starting with the trinkets I'd collected or been given over the course of my…
🥳 EUREKA 🥳
Yesterday things were looking very grim (🧵)
For those following my IRL saga, I have some brilliant news: I secured housing assistance today!
Had a chat with NACOG (National Arizona Council of Governments), who've put me on an initial program effective…
1-8
NFTs are the Holy Grail for Indigenous Peoples.
My Purpose of bringing awareness to indigenous wisdom, educating others on the benefits of connecting with nature & leaving a legacy for Hopi Nation through NFTs has been a priority.
#NFTs
#landscape
#photographers
#buymetime
NEW DROP ✨
My Purpose includes influencing folks to become at one with nature on a regular basis. I am living proof of how healing Mother Earth has been for my cancer treatment and mental health.
Later research corroborated my experiences, and I soon realized landscape…
GM Everyone 😊
The last 24 hours has been whirlwindy as anything. It'll take me days to respond to all of your DM's and replies to my posts. I will definitely get to them.
Very difficult to find any reasonably priced accommodation at this time of year in one of the biggest…
⭐️INDIGENOUS PEOPLES DAY⭐️
We're all indigenous to somewhere, and many of our creation stories and tribal protocols have similarities. Respect for our elders, each other and Mother Earth are just three of them. One bowl, many spoons is another. The human species has largely lost…
MY JOURNEY IS OVER😊
(by the numbers at end of thread)
Whatever our roots or economic circumstances, life’s journey can be challenging. I’ve been blessed w a successful corporate career & lived on three continents quite comfortably, but I’ve been largely miserable
#nfts
#Legacy
DEAD MAN WALKING
Introduction to this evening's X Space
After a tough battle with cancer, I hit rock bottom last week. Homeless, penniless and in need of urgent surgery, I’d finally been defeated. Ready to say goodbye, something incredible happened.
Messages and calls poured in…
1/9
SOS - life & death scenario
I’m in big trouble & could do with some urgent help.
Pls watch the clip & follow the thread for ways you may be able to help. My website (link in Bio) has lots of info
Thread too 🧵
#multiplemyeloma
#NFTCommunity
#Web3community
#NFTCollectors
CANCER STUFF ☹️
There’s no moral to this story. It’s just another layer to my journey that 5% of the population will resonate with & 95% may learn from.
Some mornings, fortunately not too many of them, I wake up feeling dreadful. Today is one of those mornings:
Tooth infection…
GM Everyone 😊
Recent changes to my treatment plan have worn me out a bit.
So I'm taking a few days to deal with medical catch up & have some rest.
Thank you for yr amazing support & for the friendships that keep me uplifted 😊
Love n hugs ☮️💚
#multiplemyeloma
#nftcommunity
CLOSER TO HEAVEN
"If you rise above the clouds & have a good look around, things become much clearer, the journey less daunting & the future more certain" - David Lennard
-Wide Format Vistas
-Vignettes
-Time-lapse
-Promo/links 🧵
-Minting thru 3/31/23
#NFTs
#Montana
#photo
This Indigenous Peoples Day I released AMERICAN GENESIS. The scenes & vignettes from the birthplace of community are a timely reminder of what many have lost sight of: our connection with the land & each other.
Reserves from 0.5 ETH
All Royalties to Hopi Nation
#NFTs
#ETH
GA Everyone 😊
Massive thanks to all of you who attended last night's space (🧵).
@CoinSeer
did an absolutely fabulous job networking the space at short notice, and then keeping the flow going for 2 ½ hours. What a pro!
It was the most awesome display of kinship and humanity.…
⭐️PANIC STATIONS⭐️
Update 10/31/23
4 min read
(For those coming across me for the first time & wondering what’s going on, a recent interview on my life story, cancer journey & Purpose is next in the thread)
On September 24th I sent out my first Panic Stations post (below).…
@AstroKatie
or someone has a comorbidity & understands the science because they care to read.
i’ve been isolated for 3 yrs & will have to wear a mask for the balance of my already disrupted life.
very disappointed in humanity
What led me to choose NFTs as a legacy vehicle?
Thank you so much
@BobbiBicker
for giving me the opportunity to tell a condensed version of my story and for supplying me with the audio so I could add some visuals.
For those interested in watching, the link to my vimeo account…
A Free Mint in Gratitude to the
#NFTCommunity
1-8
The story:
As I drove through the wilderness and looked across this landscape, I reflected on the importance of being grateful for what one has as well as what one doesn’t.
Sound up 🎶
#holidays
#gratitude
#FreeMint
#NFTs
GN Everyone 🤔
I've been isolated for four and a half years now. While the loneliness and lack of human touch has been disabling, your friendship is a constant blessing for which I'm forever grateful 🙏🏽
Thank you 💚
#Tuesday
#CancerAwareness
#COVIDisNotOver
😊SOLD😊
What an immense honor to be the recipient of (the first 😲) Cancer Warrior support award from
@tfw_nft
. This came totally out of left field just a few days ago, and I’m still dizzy.
Over the last 24 hours. I’ve got to know enough about
#shibainu
blockchain, the…
CANCER STUFF
- and related items
4 minute read
Updates in this post:
1. Myeloma
2. Surgery
3. Housing
4. Managing the workload
5. Web 3 Cancer Support Group
6. Other People
1.
After a treacherous 3 weeks in January when treatment began to fail, the velcade/revlimid/dex…
ALWAYS MY VALENTINE ❤️
This fine lady with the cheeky grin was my valentine for many years. The only reason we cut romantic ties, was because we were competing for the alpha role and driving each other bananas. It became unhealthy.
Neither of us had felt so loved and safe…
🌟NEW DROP on SOL🌟
🌧️DARKER DAYS🌧️
- Editions of 5
- Lossless PNG format
- From 0.3 sol
- Credit cards welcome
- ETH accepted
@exchgART
#stormhour
#rain
#monsoon
💎UPDATE💎
10/21/23
Totally despondent after a wretched week and an uncomfortable, sleepless night in my car, I received a message from one of my followers within the hour, offering to cover the cost of the two weeks accommodation I sought when I sent out my Panic Stations…
GM Everyone 😊
If you've got 40 seconds to spare, why not bring this up full screen and watch as the sun sets behind me and a full moon rises in the distance above Yellowstone? The clouds put on quite a show 😃
Have a beautiful day ☮️
"Full Moon in Pisces"
From: SIGHTS OF…
@tbailey1976
Tonya, I feel your pain completely. I’m holding a twitter space on Sunday for folks like us. Please come along and join the conversation or just listen. You’re definitely not alone.
There aren’t any magic wands, but there’s strength in numbers, and we have an opportunity to use…
GA Everyone 😊
Boring but somewhat productive day dealing with medical insurance & housing stuff👌🏽
I never thought I'd be excited about going to chemo on Thursday, but after a few weeks without it things started to get a bit scary 😵💫
On balance - a win!
#cancerwarrior
…
ACCEPTANCE IS A POWERFUL TOOL
Business may be crap, but it's hard to get the timing perfectly right
It's important to keep sight of what the technology offers humanity 😊
We're pioneers in new territory🌄
And that's pretty cool if you ask me 😎
#NFTCommunity
#tezoscommunity
GN Everyone 😊
Big thanks to those who caught my news this morning & either dm’d me or commented on my tweet (🧵). It was really comforting 💜
Took Rupert to the rodeo, picked up a rental car, dropped him to friends for a week or so & went to a friend’s farm for a rest 🐮🐐
It’s my 63rd birthday today
With one thing and another, it’s a miracle I’ve made it this far.
I’m not going to bog you down with how miserable this last year has been. My pinned tweet will give you a flavor of that. What I am going to do is thank you all for helping keep me…
Genesis Drop Monday Oct 11 - Indigenous Peoples' Day
"Fire and Rain" - A Carbon Neutral NFT Collection.
All royalties bequeathed to Hopi Nation in perpetuity.
4 Wide Format Vistas up to 40,000 px
10 Full Frame and Mini Panoramas
#NFTdrop
⭐️CANCER STUFF - MAGIC HAPPENS⭐️
This is extraordinary....
For those who just happened to have stumbled across this post, I suffer from Multiple Myeloma (bone cancer). I contracted the disease 4 years ago and was given 2-3 days to live. A lapse in medical insurance became the…
😱WOWOWOWOW 😱
I'm still having trouble coming to terms with the final moments of yesterday's space on panoramic photography....
Some background:
To keep myself afloat and get treatment, over the last 16 months I've sold $45k's worth of camera equipment for 40c in the $,…
UPDATE
9/29/23
Thank you all for pitching in so far:
Some progress today after a night of cold sweats, a fever, and tossing and turning. (more of a hotel breakfast reaction than anything else, I think).
- Had my blood drawn for chemo next week. I’ve missed 5 weekly treatments…
New Mint 😊
NEOWISE FLYBY
From: REPOSE - "Evening Mantras"
- Editions of 2,000
- 1 tez
- Trailer - see pinned
- NFT link in 🧵
#neowise
#comet
#arizona
#tezosArts
GM Everyone 😊🎄🎅🏽
Make it a beautiful day, and if you've got 35 seconds to spare, bring this up full screen and take a few deep breaths💜
"Age of Enlightenment"
From: SIGHTS OF SILENCE
- Edition of 10
- 50 Tezos
- Credit cards welcome
#montana
#sunrise
#sundayvibes
CURRENTLY 👌
Settled into a hotel for the night & ordered dinner (rack of lamb) & a glass of wine. The first evening meal at a restaurant in over 3 yrs 🤗
Feast for dinz, crisp white sheets, air-conditioning set to 71 so that Rupert stops panting, broadband internet, shower,…
Gm!
Some thoughts on mental health as a founder in crypto.
I’d like to preface this by saying I only wish well on Kevin Rose, and that I don’t condone any vitriol on the timeline especially when it comes to mental health.
The space is ruthless, but so is life, if you wanna…
CANCER UPDATE
4-24-24
Gosh - I spent much of my online time yesterday reading your messages and doing my utmost to respond to everyone. I know I've missed a few, and tbh, Twitter doesn't make it easy to keep on top of things 🤷🏽♂️
If you're a cancer warrior or survivor, you'll…
CANCER UPDATE
4-22-24
It’s been six weeks since I last made a post.
- I stopped chemotherapy treatment 4/10/24
- I was referred to hospice 4/12/24
Since my last post, both the kappa/lambda ratio and M-spike have become elevated, and the myeloma symptoms have crept back in;…
"Sights of Silence - VIBRANCE"
A Cancer Journey
The sky is half the story. It gives our minds an opportunity to wander, regardless of what beauty or ugliness lies in the foreground or in our minds.
During those magical Golden Hours, just before sunset, the sky came alive here.…
GN Everyone 😊
You never know what lies around the corner, unless you go look 💯
I hiked to the canyon wall to find out, and decided to stay a few nights 😍
More in 🧵
#exploremore
#nature
#utah
Major thanks to
@LeslieASpurlock
for not only collecting an edition of this special "crisis" mint, Fire and Brimstone, but for also generously donating to my GoFundMe campaign 🙏🏽
(see pinned for details)
- Edition of 50
- 10 tez
#NFTSales
#cancerwarrior
#crisis
⭐️PANIC STATIONS - FINAL PUSH⭐️
Update 11/26/23
So many of you have shown extraordinary humanity and generosity these last few weeks in response to my plea for help. However, my limited reach, and the condition of the market, has meant that I haven’t been able to meet my…
Late GM Everyone 😊
Massive day yesterday. Lots of folks to thank here this afternoon.
Much love from the boys 🐶
⭐️A re-post of my pinned would be awesome ⭐️
#portrait
#cancerwarrior
#dogsarefamily
@roxknox0608
@nytimes
I suffer from
#multiplemyeloma
as well. Getting vaccinated gives me SOME hope of survival if I contract Covid-19. No guarantee. Anti-vaxxers are a real threat to me and others w comp immune systems.
🌀ANNOUNCEMENT🌀
1/15
It’s hard to feel celebratory as the Ukraine crisis unfolds, but something significant happened last week worth sharing for those seeking Purpose, & the inner strength that comes from having one.
My first NFT sale was a milestone in securing my legacy.
#NFT
GM Everyone 😊
Make it a beautiful Friday!
Tsétsoh (large mass of stone)
- Single Edition Photograph
- From Valley of The Gods
- Link in 🧵
#NFTs
#photography
🌟 NEW DROP 🌟
For those new to this story:
On 12-27-2023, I was 2 hours from ending up in the desert, no longer able to sustain myself.
The ravages of terminal bone cancer (multiple myeloma), some insurance complications and the arrival of Covid-19, crippled me physically and…