Dravet Syndrome Foundation
@curedravet
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The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.
Cherry Hill, NJ
Joined September 2009
Ensuring you have access to resources for our Dravet syndrome community is our top priority. Here's where to best access our information and follow us for facility updates, news, and more. Website: FB: IG:
facebook.com
Dravet Syndrome Foundation. 15,719 likes · 232 talking about this. Since 2009, the mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related...
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Landon turned lemons into something powerful! 🍋 On June 22 in Selinsgrove, PA, his lemonade stand raised $3,016 for DSF. Thank you to Landon and everyone who came out to support families affected by Dravet syndrome!
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Twelve years strong and still going above and beyond! 💜 A huge thank you to Heather Johnson for hosting A Cake 4 a Cure again this year—and for doubling what she raised last year! Your dedication means the world to the Dravet community.
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💜 It’s Dravet Syndrome Awareness Day and DSF staff is proud to show up for our community. Share your photo, raise your voice, and help turn awareness into action. #CureDravet
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New DSF-funded study finds impaired cellular energy metabolism in kids with #DravetSyndrome — adding key insights to how we understand this disease. 🧬 Thank you to our donors who make research like this possible! 💜 #EpilepsyResearch #DSFImpact. 📖 Read:
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Thank you for showing up for the Dravet syndrome community during our Give Up Your Cup fundraiser! Together, we’ve raised an incredible $13,925, and we’re so close to hitting our goal of $15,000. Let’s finish strong! Donate here: 💜 . #CureDravet
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Happy Valentine’s Day!. Show your love by sharing your “I 💜 someone with Dravet syndrome” template! Haven’t customized yours yet? It’s not too late! Click the link below to add your photo and help us fill the feed with love and awareness. Template link:
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💜 It’s Warrior Wednesday 💜. Whether you’re a parent, grandparent, sibling, or friend, your love and strength are the heart of this community. 🌟 What’s one thing your warrior has taught you about love, strength, or resilience? 💪💜👇 . #WarriorWednesday #CureDravet
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💜 Share the Love This Valentine’s Day! 💜. 📸 Add your photo to our “I 💜 someone with Dravet syndrome” design, then share it on Valentine’s Day to inspire hope and spread awareness!. Template: Together, we can fill social media with hearts and hope!
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The Dravet syndrome community shows us what it truly means to be a Warrior—meeting each challenge with courage and hope. This Warrior Wednesday, let’s recognize the strength that drives our shared mission for better outcomes and a brighter tomorrow. #WarriorWednesday
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Neurologists, RNs, genetic counselors, PCPs, ER doctors and other HCPs: Register for FREE Rare Epilepsies Focused ECHO in 2025 led by National Experts. The program offers six 60-minute sessions, launching January 22. Learn more and register at:
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Still checking off your holiday gift list? DSF merch is the perfect way to give back while gifting something special. Order by 12/15 to guarantee delivery by Christmas! Don’t wait—shop here 💜 . #DSF #CureDravet
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"Unity is strength… when there is teamwork and collaboration, wonderful things can be achieved." – Mattie Stepanek. Each Dravet warrior’s journey is unique, and your experiences hold so much wisdom and inspiration for others in our community. 🦋 #DravetCommunity #DSF
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THANK YOU to all of our Dash for Dravet participants. Together, you raised over $40,000! Our top fundraising team, Taylor’s Trotters, raised $4,472.97 👏 . A big congratulations to the other top fundraisers: Team Lydia, Team G Train, Team Aarius and Eden’s Crew 💜
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On this #WarriorWednesday, we’re reflecting on the incredible strength within the Dravet community. From the warriors who are bravely facing challenges to the families and caregivers standing by their sides, we're in this together. 💜
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If you’re thinking of donating for #GivingTuesday, we hope you think of us! Your generosity is fueling life-changing research and supporting Dravet families. 💜 . Every donation you make before 12/31 will be matched up to $30K. Make 2x the impact today:
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Toss Dravet Away raised $1,429.35! 💜👏. This new fundraiser, organized by Melissa Bowler in honor of her daughter Ryleigh, shows the incredible impact one idea can have. Thank you, Melissa!. Have an idea for a community fundraiser? We’d love to hear from you!
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For this #WarriorWednesday, let’s take a moment to celebrate the special activities that make our warriors smile 💫 From art to adventure, every hobby is a reminder of their strength and joy. Share with us: What’s one thing your warrior loves to do? 💜 #DSF #DravetCommunity
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This episode is co-moderated by our very own Executive Director, Mary Anne Meskis, and features an insightful discussion with DSF's Patient Advocacy Director, Shannon Cloud, as one of the guest speakers. 🌟. Spread the word to help us raise awareness for the Dravet community!.
In the latest episode of UCB’s Raring to Listen #podcast, caregiver and Executive Director of @curedravet, Mary Anne Meskis, shares her advice to parents caring for a child with a rare epilepsy and how our C.A.R.E Binder can help your family plan for #adultcare.
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Huge congratulations to the incredible Bets for Bentley team! Together, they raised an amazing $41,897.28 (and counting!) 💜. Thank you to the planning committee—Blake Fish and Josh Stone—for your dedication and hard work in making this event such a success. #CureDravet
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We're overflowing with gratitude for everyone who came out to Steps Toward a Cure: Floral City, Florida. Your dedicated first-time host, Allen Golec, together with participating families, raised $4,229.97 (and counting!). Thank you for being part of our journey! 💜 #DSF
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