📢 Hosting your own event?. We’ll create a custom flyer just for you! Email us at info@csnk2a1foundation.org with your event details, and we’ll send you a personalized flyer to help you spread the word. ✅ Don’t forget to register: #ocnds #csnk2a1

📣 Don't forget! Register for our #BoundlessPossibilities Run, Walk & Roll by September 22 to snag your exclusive event T-shirt 🎽. ✅ Sign up now: #OCNDS #CSNK2A1 #HopeIntoAction #TimeIsNow

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🌟 Upcoming Webinar: “Internal Struggles: Navigating Anger, Shame, and Guilt”. 📅 Monday, August 25th.⏰ 12 PM ET.✅ Register for this Zoom webinar now: Or scan the QR code on the flyer!. #Caregivers #ProjectWellCAST #CaregiverSupport #OCNDS #CSNK2A1

💚💬 Join NORD® for Navigating School & Beyond: Advocacy Tips for Rare Youth and Young Adults, a free virtual community conversation. 🗓 Thursday, August 21, 2025.🕕 6–7 p.m. ET. 📲 Register now: #RareDisease #RareYouth #Advocacy #NORD

"Investing in the OCNDS community is not just an act of compassion; it's an investment in human potential." 💚💙.That powerful insight comes from teen writer Carley Faith Callahan. Her words will stick with you. Don’t miss it. 📖 Read now:

🌍 Boundless Possibilities: Run, Walk & Roll for OCNDS 🌍 . 📅 October 11–12, 2025 .💻 Register here: *Need a custom flyer to promote your event? Contact us & we will make one for you!* 💙💚 . #BoundlessPossibilities #OCNDS #RunWalkRoll

🎉 Exciting news! Dr. Danielle Caefer joins our Scientific Advisory Board! A leader in phosphoproteomics & CK2 biology, her work is advancing our understanding of OCNDS. 💡 Welcome, Dr. Caefer! 💙.#OCNDS #RareDiseaseResearch #WomenInScience #CK2 #Neurodevelopment

🎒✏️ Back-to-school shopping? Save 20% at using code FUNDRAISECSNK2A1 — and Minted will donate 10% back to the CSNK2A1 Foundation!. 💚 Shop now and give back! #BackToSchool #MintedFundraiser #CSNK2A1Foundation #OCNDS

📊 Simons Searchlight has just released updated registry data! . ✅ Top Reported Symptoms:.• 96% — Language Delay.• 90% — Intellectual Disability / Developmental Delay.• 68% — Low Muscle Tone.• 57% — Constipation.• 27% — Autism. Learn more:

Join the Danny Did Foundation for Tech Tuesdays: Exploring Seizure Detection Technology. 📅 Tuesday, August 12th at 12:30 PM CT. Learn about the EpiMonitor, an app solution for detecting seizures. 🔗 Register here: . 🌐 Learn more:

🎉 Today, July 25, is the first-ever Genetic Testing Action Day! . 🧬 Visit to download the free Parent Toolkit. #GeneticTesting #GeneticAwareness #OCNDS #CSNK2A1Foundation #BoundlessPossibilities

Join us for the 6th Project WellCAST Webinar for Caregivers! 💬.Topic: Tips for accepting emotions & empowerment.🗓 July 28 | 🕛 12PM ET | 📍 Zoom.Free & open to all!.🔗 Register: #WellCAST #CaregiverSupport

📺 Have you watched it yet?. Our webinar with Citizen Health is on YouTube! Watch to learn more and feel empowered to take the next step. 🎥 Watch here: 🔗 Sign up here: Let’s keep the momentum going! 💙💚 #OCNDS #Ciitizen

🌟 Your Voice Matters! 🌟. Have you been impacted by the CSNK2A1 Foundation? We’d love to hear from you!. 📝 Leave a review or read what others are saying:.👉 #csnk2a1 #ocnds

🚨 REMINDER! 🚨. Join us on Sunday, July 13th, 08:00 AM PT (US and Canada) for our OCNDS Family Zoom Call hosted by our PAB. We will discuss the 2025 Family Conference and address any questions you may have. This call will be 1 hour. Register here:

🕐 The 2025 conference is almost here!. 🎥 Watch our FAQ video here: 🔊 Closed captions are available in all OCNDS languages—watch this video to learn how to turn them on!.📘 Still have questions? You can find more answers here:

🚨 New publication in Frontiers in Human Neuroscience! Led by Dr. Gabrielle Rushing with interns Elena Bagetelas & Maahin Manzoor Khan:. 🧠 Core #OCNDS features are conserved across variants—loop mutations = greater symptom burden. 🔗 #RareDisease #CSNK2A1

🚀 Headed to Denver for the conference? While registration is now closed, you might have some last-minute questions:. 🎥 Watch our FAQ video: 🔊 Watch this video to learn how to turn on closed captions. 🔗 Find answers here:

📅 Save the Date: October 11-12! . Get ready for the CSNK2A1 Foundation Virtual Run, Walk, and Roll! 🏃‍♂️ Stay tuned for details on how to register!. Mark your calendar and join us! Together, the possibilities are boundless. #CSNK2A1 #BoundlessPossibilities #OCNDS

Join us on Sunday, July 13th, 08:00 AM PT (US and Canada) for our OCNDS Family Zoom call. We will discuss the upcoming 2025 Family Conference and address any questions you may have. Please note the call will be limited to 1 hour. Register here: