Anna Clareborn
@clareborn
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Project manager extraordinaire. Ethics, infrastructure, (bio)banking, all the data, AI. And vast amounts of tea! Views/profanities entirely my own.
Joined March 2016
Thank you for attending the GA4GH 13th Plenary meeting, co-hosted by @SciLifeLab. Whether you joined in Uppsala, Sweden or tuned in virtually, your participation is crucial in advancing responsible genomic and health data sharing. Learn more: https://t.co/Ed5SJQ6l7j
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If you’re still wondering what we’ve been doing here all week, why we’re in Uppsala, and why this work matters so much (and to a wide range of stakeholders), here’s a short video to round off this week’s @GA4GH event in Uppsala. https://t.co/YaxtFgGqR6
@SciLifeLab_DC @scilifelab
linkedin.com
The 13th Plenary Meeting of the Global Alliance for Genomics and Health in Uppsala is soon coming to an end. During the past week, over 500 participants, onsite and online, representing 48 countries...
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Unfathomable: it is time for the final Uppsala 2025 @GA4GH Connect session, which is ”Path to normative: implementing a GA4GH maturity model,” where the focus is on implementer-driven collaboration to shape the next steps for GKS standards. #ga4ghconnect @SciLifeLab_DC
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Now @GA4GH Connect, ”In the (GIF) Spotlight: highlighting GA4GH implementations,” a session on a proposed new initiative (GIF Spotlights) showcasing successful GA4GH implementation stories by gathering and publishing content from the community. #ga4ghconnect @SciLifeLab_DC
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Next up @GA4GH Connect: ”Generating guidelines for community-driven portals for infectious disease research,” where the focus is on developing a set of guidelines content to be included in a community-driven, infectious disease-focused web portal. #ga4ghconnect @SciLifeLab_DC
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The first post-lunch session @GA4GH Connect is ”Shaping the future of the GA4GH Cancer Community of Interest,” is a participatory workshop that will reimagine the Cancer Community of Interest’s value, purpose, and outputs. #ga4ghconnect @SciLifeLab_DC
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Finally, we also have the second part of the session ”The next step toward clinical application of GA4GH products: a sequel!” @GA4GH Connect. #ga4ghconnect @SciLifeLab_DC
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The second parallel session @GA4GH Connect is ”Solving Beacon queries” where some commonly requested queries from (for instance) the Cancer and Rare Disease Communities will be discussed. #ga4ghconnect @SciLifeLab_DC
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The first of three post-fika @GA4GH Connect parallel sessions is, ”The Cloud Work Stream road map 2026 and beyond,” participants will explore how to evolve current initiatives (data and federated compute) in 2026 and beyond. #ga4ghconnect @SciLifeLab_DC
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The parallel @GA4GH Connect session, ”Securing Beacon Networks with Passports and trust federation,” focuses on exploring how to secure Beacon Networks with Passports and trust federation. #ga4ghconnect @SciLifeLab_DC
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3rd & final day of @GA4GH Connect! In the two-part session, ”The next step toward clinical application of GA4GH products: a sequel,” participants will prioritize and choose the first set of items that will help bring GA4GH products into clinical use. #ga4ghconnect @SciLifeLab_DC
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Now @GA4GH Connect, the ”Next steps on the use of Verifiable Credentials (models and protocols) for improving Passports” session, intended to shape new specific standards that take benefit of relevant technologies, & improve the use of Passport visas. #ga4ghconnect @SciLifeLab_DC
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”Scaling the Federated Variant-Level Matching Network” is the next parallel session @GA4GH Connect. Here, the federated Variant-Level Matching (VLM) network explores approaches to scaling the network and adding new functionalities. #ga4ghconnect @SciLifeLab_DC
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Next up @GA4GH Connect, ”An analytics dashboard for everything GA4GH,” a session focusing on the new dashboard under development by the GA4GH Tech Team. It will show the impact GA4GH has had so far, using a user-friendly graphical interface. #ga4ghconnect @SciLifeLab_DC
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Now @GA4GH Connect, ”Leveraging GA4GH’s Tools & Standards to Balance Pathogen Data Sovereignty with Open Access” focuses on recs/tools using technical & policy standards to balance data sovereignty rights with data access, & equitable benefit-sharing. #ga4ghconnect @SciLifeLab_DC
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Also @GA4GH Connect, ”Where is global? Geolocation in genomics,” focused on finalizing a proposal for a geographic location object, while addressing questions such as provenance assignment, and how to best limit exposure to re-identification risks. #ga4ghconnect @SciLifeLab_DC
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Post-lunch parallel session 1 @GA4GH Connect is ”Passports that scale: lightweight tokens and federated trust,” addresses challenges to implementing seamless federated authentication across genomics platforms. #ga4ghconnect @SciLifeLab_DC
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Go team!
NEW: We’re honoured to be ranked number one in the @timeshighered World University Rankings for the tenth consecutive year. 👏
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And of course work is still ongoing in the second part of the @GA4GH session ”Influencing EPR and LIMS suppliers to adopt FHIR standards and native interoperability” (with a panoramic view of Uppsala, no less). #ga4ghconnect @SciLifeLab_DC
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