POTS. Big success running recently. Muscle spasms, heavy legs, difficulty walking, and severe fatigue the last two days. Have my cane ready for the morning. Yes, this is what it’s like.

POTS affects more people than multiple sclerosis and Parkinson’s, yet it remains widely unknown. Research shows it can impact quality of life at levels similar to congestive heart failure and COPD. Despite that, it’s still routinely dismissed as anxiety. This isn’t mild.

I can’t believe how far I’ve come since not being able to walk and being diagnosed with POTS. What a journey #pots #livingchronic #dysautonomia

This is why we need better legislation & tax incentives for employers to hire disabled into remote roles. When standing, commuting or driving isn’t possible, access to work disappears not the desire to work. Remote work isn’t a perk. It’s economic survival. #DisabilityInclusion

Happy New Year! My 2026 resolution: choose myself as I am now. I’m honoring my capacity instead of fighting it, letting go of who I was before chronic illness, & building a life that fits the person I am today: limits, strength, resilience & all. Here’s to choosing you, too. 💛

Dysautonomia. It was the most difficult challenge I’ve ever encountered. Living with this hasn’t become any easier but I have at least found treatment that works and learned a lot from my guests. #livingchronic #dysautonomia #pots

2025 was a life-changing year. I finally got in to see a POTS specialist & we found a treatment that WORKS. I learned so much from guests on Living Chronic. And…I finished my book. Coming August 2026. Thanks for being on this journey with me. Onward to 2026.💛🦋 #2025Rewind

I did NOT cure POTS. I've improved my quality of life w/ PT, diet, & medications that include daily fludrocortisone & muscle relaxer. It's dangerous to keep perpetrating this myth that chronic illness is caused by a poor diet and lack of exercise. #chronicillness #POTS

✨ New episode of Living Chronic drops tomorrow! Chanda explains a 2009 Colorado law requiring Medicaid to fund acupuncture, massage, and chiropractic care for people with long-term support needs These services aren’t luxuries they’re essential #DisabilityAdvocacy #Healthcare

Preventative care isn’t a luxury for disabled people on Medicaid, it’s a cost saver. Tune in Friday to Living Chronic’s conversation w Chandra. Upfront care saves money and lives. Hear how Chandra made this happen in Colorado #medicaid #disabilitypolicy #preventativecare

💬 75% of people STILL want to talk to a human NOT AI. ♿️ And we have millions of disabled Americans who WANT to work and could do these jobs from home Let’s create real jobs for disabled workers here in US #KeepcallcentersinAmericaAct #hiredisabled #disabilityinclusion #AI

How are cuts to disability services affecting individuals with disabilities? Listen to my upcoming podcast with Chanda Hinton as she talks about disability and her wellness center #livingchronic #disabilityinclusion #disabilityservices

@RubenGallego -Let’s tie bringing back call centers to rural economic development and disability hiring

AI and offshoring may cut costs, but 75% of customers still want a human. Meanwhile, disability unemployment remains high. We could build U.S.-based customer service staffed by disabled workers and revitalize rural economies #FutureofWork New article ⬇️ https://t.co/ZlzGCqqSSy

Struggling with chronic illness? Do you feel all alone? You aren’t. This is difficult and our world becomes so small as our health worsens. Check out the latest episode of #livingchronic featuring Ayden Kosko and hear her courageous story #chronicillness

New Living Chronic episode is out 💜 I talk w/ Ayden Kosko living w/PCOS, POTS, corn allergy, women’s pain being dismissed, flares, & rebuilding life after chronic illness. If you’ve ever been told “you’re just stressed” or “it’s normal,” this one’s for you. 🎧 #WomensHealth

Behind every “I’m fine” is an IBD warrior balancing work, family, and bathroom WiFi. #CrohnsAndColitisAwarenessWeek 💜 #LivingChronic

Don’t miss my conversation with Ayden Kosko on Friday’s new Living Chronic episode. She talks about living with a corn allergy and multiple chronic illnesses #cornallergy #mcas #pots

If you’ve been touched by Crohn’s or colitis If you love someone who battles IBD every day Or if you simply want to support a community that needs you 💜 Please consider donating this #GivingTuesday2025 . Every single dollar makes a difference. ➡️ Link: https://t.co/eID27WEx74

💜 December 1–7 is #CrohnsandColitisAwarenessWeek. These illnesses may be invisible, but the people living with them are not. Here’s to the fighters, advocates, caregivers, & researchers making sure we keep moving toward better treatments, more compassion, & cures.