Laura Beretsky
@beretsky
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AUTHOR/ACTIVIST/EPILEPSY AWARENESS ADVOCATE Writing about/fighting for disability rights, patient self-advocacy, and the challenges of living with epilepsy.
Somerville, MA
Joined August 2014
Increase @epilepsyawareness Law Enforcement Officials’ Ignorance About Epilepsy Is Fatal: Inappropriate response to 26-year-old Rhyker Earl’s tonic clonic seizure leads to his death two days later: Law Enforcement Officials’ Ignorance About Epilepsy Is Fatal - Laura Beretsky
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Technological advances are increasing surgical options for children with refractory epilepsy in some parts of the world, but access is still ten years behind in developing countries like India. More on my blog: https://t.co/XO9Oqt5D4p
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Viktorija Senkute, won the 1st ever Bronze medal for Lithuania, making her a local hero. Along with Beth Dobbin and Imogene Clark, she’s an #Epilepsy Ambassador, using her status to elevate #epilepsy awareness. Link: https://t.co/z2l9QGQ9Ng
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Whether or not to drive if you have epilepsy is a personal decision to be made with input from one’s neurologist. Remember: disregarding the neuro’s advice can be tragic and fatal. More on my blog: https://t.co/98KegYj5fU
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This week, Dr. Rasian’s neurosurgery team received FDA approval for a clinical trial to test new pre-surgery brain-mapping technology that could increase brain surgeries’ success and safety. More on my blog: https://t.co/4RotzSK0Px
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A study by Epilepsy Climate Change’s co-founder, Dr. Sisodiya evaluating climate change’s impact on neurological disorders found clear evidence of climate change’s impact on brain conditions, including #epilepsy. https://t.co/qRRknuVULn
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Harvard-based neuroscience team research efforts led to the first ever digital brain map, which will advance cures for neurological conditions like #epilepsy. These kaleidoscopic brain images are from the team's gallery. Gallery link is in my latest blog: https://t.co/UDNAwn7hwW
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Happy Mother's Day. Paul Karrer’s poignant commentary ( https://t.co/khaxAZaPUn) inspired this blog about the challenges facing parents with #epilepsy, and the children they care for. https://t.co/rW2ImZtLqz
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While new funding is being allocated for critical epilepsy research and advances, in Uganda people with epilepsy can’t even access medication. More info here: https://t.co/4mnYxYtwd3
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I am delighted to share that Citizens United to Research Epilepsy featured an interview with me on their monthly podcast, Seizing Life. CURE's mission is finding a cure for Epilepsy, a condition that’s been around for millennia but still has no cure:
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Florida IS purple: In time for #PurpleDay Gov. DeSantis updated the state’s budget stabilizing epilepsy services, a boon for #epilepsyawareness, as it enables org's like #epilepsyallianceflorida to support the 360,000 Floridians with epilepsy. More here: https://t.co/acj2Ha0LZa
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Honor #IntEpilepsyDay and #Epilepsy awareness by advocating for more Epilepsy Centers and celebrating the National Association of Epilepsy Centers’ updated guidelines, a boon for #EpilepsyQualityCare.
lauraberetsky.com
Monday, February 12th is International Epilepsy Day, an annual awareness-raising initiative. The global event is jointly organized by the International Bureau for Epilepsy and the International...
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Honor @IntEpilepsyDay by advocating for more Epilepsy Centers and celebrating the National Association of Epilepsy Centers’ updated guidelines, a boon for #EpilepsyQualityCare. https://t.co/GzEFaGGRW2
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These stories about UK anti-seizure medication shortages UK are scary! As a parent who raised my kids while managing uncontrollable #seizures, I was struck by challenges the UK economy is presenting to those with #epilepsy. https://t.co/6ShsRAYyUQ
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Thanks to all who came to my book event @PorterSqBooks last night! Great to be in conversation with Harvard Med School neurology professor Dr. Steven Schachter about #EpilepsyAwareness and the importance of patient-doctor collaboration. Stay tuned for some clips.
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Considering brain surgery to control refractory #seizures? Be sure to access the state-of-the-art #7Tesla MRI pretest, even if it’s far away. The sharper images can have transformative impacts on the surgery, making the trip worthwhile. More on my blog: https://t.co/qDZZwYjnAO
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Managing refractory seizures? A new study shows that genetic testing can help patients with epilepsy due to unknown causes obtain more precise effective treatment plans. #EpilepsyAwareness More on my blog:
lauraberetsky.com
A new Stanford University Medical School study addresses the powerful impact genetic testing can have on treating people with epilepsy of unknown causes.
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#bookannouncement Close out #EpilepsyAwarenessMonth with a new book recommendation, my memoir, Seizing Control: https://t.co/fTeAaCrp9G Check out below book #unboxing video.
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Happy #EpilepsyAwarenessMonth Read more about epilepsy warriors, including #coverreveal for my memoir Seizing Control on this month's blog:
lauraberetsky.com
In 2003, Congress formally recognized November as Epilepsy Awareness Month. Every year, I dedicate my blog to honoring current Epilepsy Warriors.
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Tomorrow is #SUDEPActionDay. This month’s University of Iowa study really gives us something to celebrate this year!😄 More here: https://t.co/zT4dREx7wy
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