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ALS ONE

@alsone_official

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United in ALS Research, Care + Community. #EndALS

Boston, MA
Joined December 2020
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@alsone_official
ALS ONE
27 days
$243K raised for #ALS #Research & #Equipment for #Pals. Still 4 weeks to go before race day! We L💚VE our FALMily - our 200-teammate-strong @FalmouthRR Team! Please help us reach $500K at #WeRunToMakeALSDone
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@alsone_official
ALS ONE
1 month
HAPPENING NOW: @Winch_Athletics Coaches @CoachFleming1, @JasonCacciapuot, Will O’Connor, & Wally Dembowski are taking a 70K STEP CHALLENGE TO STOP #ALS! A HUGE thank you to these phenomenal coaches & humans 4 all they do ea day 2 make the🌎a better place!
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@alsone_official
ALS ONE
1 month
Sending happy #4thOfJuly wishes to all and thinking of #LouGehrig who gave his 'Luckiest man on the face of the earth" farewell speech on this date 86 yrs ago, when his @Yankees #4 was retired (the 1st to have been), #4ever being linked to him & the fight against #ALS. #EndALS
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@alsone_official
ALS ONE
2 months
Join us this Thurs 6/26 5pm EDT, for our Healey #ALS #PlatformTrial #community #webinar. This wk, Catherine Small, Project Mgr of Patient Nav @MGHNeurology will be joined by Anne Marie Doyle, of the @LesTurnerALS who'll share trial updates. FreeReg #EndALS
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@alsone_official
ALS ONE
2 months
Next Sat (6/28), ioin us @ Players in Rockland MA to #ROCKOUTALS w/the live music of Beware of Dogs. This night of fun is pres by #RiseAgainstALS, led by #ALS warrior Michelle Strojny, whose been living w/ ALS: 8 yrs. The night is 100% supp ALS res & care
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@alsone_official
ALS ONE
2 months
Today, June 21st, is Global #ALS/#MND Awareness Day - a day when we proudly stand w/people all around the 🌎 to remember those we’ve lost to the disease, honor all who are living w/it & thank all who are making the 🌎 of it a better place.#ALS #ALSMND #GlobalALSMNDDay #EndALS
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@alsone_official
ALS ONE
2 months
☀️As we celebrate the 1st day of summer - the longest day of the year - we shine our light on the incredible strength of the #ALS community & deepen our ongoing commitment to the fight -through care, compassion, research & community -and we send our deepest wishes for joy to all.
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@alsone_official
ALS ONE
2 months
His life and legacy live on and he will certainly never be forgotten, as his impact is too profound. We are far overdue for a cure for that horrific disease –for Lou & for everyone who is or has ever been impacted by those 3 letters – #ALS.⚾️4️⃣🎂.#LouGehrig #HappyBirthday #EndALS.
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@alsone_official
ALS ONE
2 months
Celebrating the birthday, life & legacy of Lou Gehrig, who, on his 36th birthday, 6/19/39, was dx w/#ALS. That was 86 yrs ago. Lou gave his farewell speech at @Yankees @yankeestadium just two wks later, on 7/4/39 & lost his battle 2 yrs later, on June 2nd, 1941 (1/2)
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@alsone_official
ALS ONE
2 months
Honoring the significance of this day, Juneteenth, and the importance of freedom for all humanity, today and every day!.💚💛❤️.#Juneteenth #FreedomForAllHumanity #FreedomForAll #FreedomDay
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@alsone_official
ALS ONE
2 months
🕙💚💙🙏Happy #FathersDay to all dads – those here with us & those up above who are always in our ❤️'s. Sending special wishes of time – more time w/the dads we have & time to heal from the dads we’ve lost & thinking of those who may be having a difficult day. #ALS #EndALS
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@alsone_official
ALS ONE
2 months
*CALL FOR ALS-INDUSTRY ABSTRACTS* has begun! If you are an #ALS researcher interested in speaking at our Symp's Industry Day about an ALS treat that your pharma has in dev, we invite you email your abstract title & description to jen@alsone.org by Aug 31, 2025 for consideration.
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@alsone_official
ALS ONE
2 months
⚾️It’s been ONE wk since #LG4Day here in Boston when we celebrated @fenwaypark as the @RedSox faced the @Angels 4 the annual game & our guest photos are IN! We're so grateful to all of our guests who joined us & submitted photos 2 help create this montage that captured it all!⚾️
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@alsone_official
ALS ONE
2 months
We're #TeeingUpToEndALS on 7/14⛳️"EARLY PARROT PRICING" ends tomorrow on 4somes • Custom #HoleSponsor signs are a BEAUTIFUL way to promote your biz &/or honor your #ALSwarrior. The #GolfOuting will be so much fun! #ALSONE's #LuauOnTheLinks25 #EndALS
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@alsone_official
ALS ONE
2 months
We were humbled to host over 100 members of the #ALS community at the #LG4Day game @fenwaypark this past Monday. We, along w/9 other #ALSorgs were on-field for the pre-game ceremony & it was a night we'll always cherish! See 160+ photos at:#StrikeOutALS⚾️
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@alsone_official
ALS ONE
2 months
Today is #WorldRunningDay & we're celebrating our @FalmouthRR Team! Our cherished "FALMily" has now raised over $133K for #ALS research & care w/11 wks still to go before race day! Help us reach our goal of surpassing $500K at: #WeRunToMakeALSDone #EndALS
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@alsone_official
ALS ONE
2 months
& planning into her own #ALS med care, to her give & take w/ family & friends, to her public writings for her blog site, Jess remains fully engaged & committed to life, every day. L'Chaim.💚💙Your loving husband, Barry Lasky. #EveryMonthIsALSawarenessMonth.
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@alsone_official
ALS ONE
2 months
#ALSawarenessMonth #FacesOfALS: Jessie Towbin, of Seattle WA. 55 & living w/ #ALS for 8 yrs. Jessie spent just under 25 years teaching in WA's public schools.They say the best teachers are lifelong learners themselves. This is undoubtedly true for Jess. From her research (1/2)
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@alsone_official
ALS ONE
2 months
It's #WorldBicycleDay! Cheering on our #OxfordToBoxford #ALSRideForHope2 Team as they are currently cycling 150-Mi from Maine to Massachusetts! So much gratitude to all for helping them raise now over $30K to help #EndALS
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@alsone_official
ALS ONE
2 months
This Thurs, find out about the Healey #ALSMyMatch, an innovative early phase biomarker-driven clin trial launched in '25. The initiative 🎯's therapies to the right population, ensuring participants are selected based on their likelihood to respond to tx.
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