Joining Jack
@alljoinjack
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We are joining Jack in the fight to find a cure for duchenne muscular dystrophy. Will you?
Wigan
Joined April 2012
Massive thanks to @dolphinsnrl Herbie Farnworth for a terrific JJ salute ahead of this afternoon's 3rd Test @England_RL and @Kangaroos Loads of luck to Shaun Wane, our ambassador @samtomkins1 and the England team at Headingley today #rugbyfamily #JJSalute #makeadifference π·π·
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We wanted to share with you a lovely letter that Alex and Andy received from @AndyBurnhamGM @MayorofGM congratulating Joining Jack for the NICE recognition of the DMD Care UK Cardiac Care guideline described as a landmark moment for the Duchenne community #makeadifference π·π·
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BeatConnect (Patreon) November pack is live now! This is a game changer for rappers + singers, this month get 12 beats + bonuses for $9.99 - DM or check bio!
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Thank you to Dan from the @Motability field assessment team for coming out and talking to Jack about all the adaptations that are available to help him drive. They now have a plan of what he will need!
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Jack has managed to prove us wrong again! Heβs passed his driving theory test first time. Heβs now got a driving assessment booked with @Motability foundation to see what adaptations he will need to a vehicle!
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Massive thanks to these two @SuperLeague legends hanging up their rugby boots - @DragonsOfficiel @samtomkins1 & @WarringtonRLFC @ratch06 have been incredible ambassadors for Team JJ and the Duchenne community #thebestsupporters #rugbyfamilyβ€οΈπ #TeamJJ #makeadifference ππ
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Loads of luck and massive thanks to this hardy lot taking on the annual @DevelopUK Golf Day for Joining Jack at @ManchesterGolf βοΈ βοΈ umbrellas were optional π #thebestsupporters #TeamJJ #makeadifference ππ
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Massive congratulations to our awesome ambassador and lovely friend @LeighLeopardsRL @Joshuacharnley scoring his 250th try and STILL remembering to do a JJ salute for his mate! β€οΈ #rugbyfamily #thebestsupporters #TeamJJ #MakeADifference ππ
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Where can we find meaning in today's world? Now available on the Forever Young Substack: How To Ensure A Longer Life Is Also A Happier One- featuring renowned psychiatrist Dr. Thomas Lewis. Link in bio.
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A massive thank you to the terrific team at @MiRiDERuk supporting Joining Jack at their 5th birthday celebrations today A raffle to win a MiRiDER bike drawn by @WiganWarriorsRL boss Matt Peet raised an amazing Β£1110 for Team JJ β€ #thebestsupporters #TeamJJ #makeadifference ππ
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Can't wait for @DevelopUK Golf Day for Team JJ with a Ryder Cup theme and a host of legends from rugby league and union Taking place on September 11 at @GolfManchester teams of 3 will be allocated a rugby legend - email info@joiningjack.org #rydercuprugby #TeamJJ ππ
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Congratulations Jack on winning the Creative Arts Leadership Award @wiganleighcol What a great end to the academic year!
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We're thrilled to confirm this September's 13th @HWMoonToyota @Wigan10K is set to smash Β£1/2M fundraising milestone for Joining Jack! Huge thanks to everyone who has made this possible - can't wait to see you on the startline! β€ #thebeststupporters #TeamJJ #makeadifference ππ
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Huge congratulations to the legendary Sir Billy Boston being made a Knight Commander of the Order of the British Empire @WiganWarriorsRL greatest ever player becomes the first RL player to receive a knighthood at Buckingham Palace today #rugbyfamily #TeamJJ #makeadifference π·π·
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Tomorrow @DuchenneUK will be on BBC Breakfast at 8:20am talking about our #timeismuscle campaign. Please watch @wesstreeting @lisanandy You can help us end the horrific postcode lottery of access to this treatment!
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Huge thank you to our lovely friend and supporter James Hooton donating a terrific Β£2,000 in memory of his wife Sylvia, and son Stephen, a fellow Duchenne warrior. Stephen lost his battle with DMD 35 years ago aged just 19 #thebestsupporters #TeamJJ #makeadifference ππ
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Our piece on @GranadaReports Givinostat was made available through an Early Access Program in November. Itβs been licensed. 6 months on patients are still waiting for access to a drug proven to slow the progression of the disease @DuchenneUK @AlderHey #TimeIsMuscle
Children denied access to life-changing drug is 'unfair' and 'frustrating' say families https://t.co/GmO63WXcwm
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This morning our co founder Alex, main man Jack alongside Jill & Jack Binns took part in some filming . They spoke about the Time is Muscle campaign. You can see the footage this evening at 6pm on @GranadaReports. @DuchenneUK
#TimeisMuscle #MakeADifference #EndDuchenne
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Huge thanks to the ladies and men's teams at @oldworsleygolf who chose Joining Jack and @DuchenneUK as their Charity of the Year and raised an incredible Β£9,110! Our co-founder Alex caught up with former captains Carole Speakman and Sir John Jones #thebestsupporters #TeamJJ ππ
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Our co-founder Alex is presenting at the annual DMD Care conference today. Alex has dedicated the past four years to ensuring ALL Duchenne patients in the UK get access to the best care! @DuchenneUK
#TeamJJ #DMDCare #MakeADifference ππ
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Premium menβs jewelry that elevates every fit. Black Friday deals live now!
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This week we met @wesstreeting to discuss the challenges we are facing implementing the Givinostat EAP. Our Duchenne community needed access in November when the scheme opened! #TimeIsMuscle
@DuchenneUK
https://t.co/RctfaCoPv9
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Good luck @EllisPalmer94 π
Final preparation miles being cranked on @BobTheHandcycle ahead of the @alljoinjack Run Wigan Festival 5k on Sunday! Any donations are greatly appreciated and go to the @GBPowerHockey to support holding more taster sessions around the country!
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