affinityhub_uk Profile Banner
Affinityhub.uk Profile
Affinityhub.uk

@affinityhub_uk

Followers
2K
Following
8K
Media
541
Statuses
4K

Emotional support for #parentcarers https://t.co/byLG8yWU9T @Griffinpsych Parent Carer, Psychologist & Researcher BOOK ‘Day by Day’ ➡️ https://t.co/DkI6nTu5hI

Joined September 2016
Don't wanna be here? Send us removal request.
@affinityhub_uk
Affinityhub.uk
3 years
Hello 👋 - a bit about me and what I do at https://t.co/qk7WkaoabS which signposts to emotional support for #parentcarers Jo #specialneedsparents #parentcarerwellbeing #bookstagram
0
2
18
@elly_chapple
Elly Chapple Founder #FlipTheNarrative©💜
6 months
Sept 2025 🔥 Understanding Parent Blame by Dr Ana Aiello & Prof Luke Clements. Revealing how parents are wrongly blamed by the systems meant to help them. 👀 https://t.co/wo5bVwTkfR #ParentBlame #SocialJustice #DisabilityRights #Safeguarding #Inclusion #Neurodiversity
0
37
56
@affinityhub_uk
Affinityhub.uk
6 months
Delighted to present today at the EACD/IAACD on Co-production in research with family carers of people with a learning disability. More info: https://t.co/18lFbYi40O @EACD2025 #coproduction #parentcarers #familycarers #accessibleresearch #livedexperience
0
0
0
@affinityhub_uk
Affinityhub.uk
7 months
@CounsellorTutor
Counselling Tutor
7 months
🎙️ #CounsellingTutorPodcast 341 is live! 🎧 https://t.co/UZBtqaGcXI 1️⃣ Everyday Trauma: Small ‘t’ trauma and its impact. 2️⃣ Supporting Parents of Disabled Children. 3️⃣ Facing Rejection in Counselling Training. #TherapistLife #Counselling
0
0
0
@affinityhub_uk
Affinityhub.uk
7 months
Professionals with an interest in the psychological wellbeing of parents of disabled children - sign up to info & research quarterly newsletter here: https://t.co/srvEYpPwkV #parentcarers and #specialneedsparents can sign up too #parentcarerwellbeing  https://t.co/E1NLZk5mGI
0
2
1
@affinityhub_uk
Affinityhub.uk
7 months
My book Day by Day: Emotional Wellbeing in Parents of Disabled Children is available here:  https://t.co/xwcAsTHcc2 #CarersWeek #carersweek2025
0
0
0
@affinityhub_uk
Affinityhub.uk
7 months
Almost a third of families (31%) spend more than 10 hours per week on essential administrative tasks to ensure that their disabled child gets the support they need.   Failed and Forgotten report Disabled Children’s Partnership #carers #carersweek #carersweek2025 #unpaidcarers
0
1
3
@affinityhub_uk
Affinityhub.uk
7 months
My book Day by Day: Emotional Wellbeing in Parents of Disabled Children is available here:  https://t.co/xwcAsTHcc2
0
0
0
@affinityhub_uk
Affinityhub.uk
7 months
Carers week 2025 focuses on equality for carers highlighting the significant inequalities they face putting them at greater risk of poor mental and physical health, social isolation, financial hardship and poverty. #carers #carersweek #carersweek2025 #unpaidcarers #parentcarers
0
3
5
@NIHRinvolvement
NIHR Involvement
9 months
Do you care for a friend or family member? Are you interested in getting involved in research that could improve health and social care? In today's #TuesdayTips, learn more about why carers’ voices should be heard, and how you could shape research: https://t.co/68L7MdCWpx
0
15
12
@SpcialNdsJungle
Special Needs Jungle
9 months
The special needs trap: @johnharris1969 in @NewStatesman on his family's SEND struggles, w/ high praise for SNJ's "battle-hardened SEND veterans" "Don’t take away children’s rights, because if you do, you will have a hell of a fight on your hands.”
Tweet card summary image
newstatesman.com
What one parent’s experience reveals about a system on the brink of collapse.
2
23
40
@SpcialNdsJungle
Special Needs Jungle
9 months
NEW POST: The seven golden rules of co-production for researchers with guidance for working with family carers- a parent and researcher @Griffinpsych write about their experiences- and the 7 rules work for all kinds of co-production https://t.co/K0Vc1DApMm
0
3
3
@affinityhub_uk
Affinityhub.uk
9 months
0
0
1
@father_research
Fathers Active In Research (FAIR)
10 months
Are you a father of a child with a learning disability? This study is looking to include parents in their family carer steering group. Details below 👇
1
1
2
@DanSutherland99
Daniel Sutherland
10 months
Are you a family carer of a child with a learning disability aged 14-17 years? We need your help for a research project looking at annual health checks! More details below 👇 #familycarer #learningdisability
0
3
3
@NIHRinvolvement
NIHR Involvement
10 months
We’ve set out 5 Strategic Commitments for improving public partnerships, but today we’re going to take a closer look at one of these – embedding research inclusion. A thread 🧵 (1/6)
1
4
5
@affinityhub_uk
Affinityhub.uk
10 months
Professionals with an interest in the psychological wellbeing of parents of disabled children - sign up to info & research quarterly newsletter here: https://t.co/srvEYpPwkV #parentcarers and #specialneedsparents can sign up too #parentcarerwellbeing  https://t.co/E1NLZk5mGI
0
1
1
@NHSAbility
NHS Ability
11 months
If you care for someone with a learning disability, you could save lives by knowing the signs of constipation and what to do. Here is an easy read leaflet for more information - https://t.co/zz3wGeJD6a
0
12
19
@NIHRinvolvement
NIHR Involvement
11 months
How do we define the impact of public involvement in research? How can we monitor it, evaluate it and learn from it? Take a look at our new topic page on Learning for Involvement to learn more: https://t.co/lzIlcUumCj
0
8
23
@NIHRinvolvement
NIHR Involvement
11 months
🔎 Take a look at this infographic by NIHR @ARC_EM which illustrates some key #CoProduction activities that contribute to the long-term sustainability of health and social care innovations 👇 https://t.co/UZ9HZpZDRO #PPIE
Tweet card summary image
arc-em.nihr.ac.uk
This infographic illustrates key co-production activities that contribute to the long-term sustainability of health and social care innovations.
0
22
36
@NIHRinvolvement
NIHR Involvement
11 months
Take a look at a new resource on how to work with patient and public involvement partners in a way that is both psychologically and trauma-informed. Read it here: https://t.co/YLFBRsCAU1
0
13
23