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Adam Clatworthy Profile
Adam Clatworthy

@adamclat

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Comms @equinix / Vice Chair for rare conditions @GenomicsEngland Participant Panel / rare disease dad 🧬 All opinions are my own

London
Joined January 2009
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@adamclat
Adam Clatworthy
6 months
🙏🏻 #CRELD1
@itvmeridian
ITV News Meridian
6 months
Parents of boys, 4, living with one of rarest conditions in the world hope for gene therapy cure. https://t.co/PpgfH7xX81
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@itvmeridian
ITV News Meridian
6 months
All you need to know about CRELD1, the rare condition affecting only three children in the UK https://t.co/dxqDWGxIqQ
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itv.com
CRELD1 is one of the rarest genetic conditions in the world, but there is currently no known cure. | ITV News Meridian
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@adamclat
Adam Clatworthy
7 months
A great day of collaboration, advocacy and networking at the Aspire Biosciences event alongside our #CRELD1 research partner @Dr_FelixChan 🧬
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@adamclat
Adam Clatworthy
9 months
The Sphere in Las Vegas will debut a digitally enhanced version of “The Wizard of Oz” on Aug. 28 that uses Google AI technology @googlecloud https://t.co/uDcOL6mi15 via @WSJ
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wsj.com
Google invented new techniques to enhance resolution and generated new character performances to bring the 1939 film to the giant screen.
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@GenomicsEngland
Genomics England
10 months
Registration is open for the Genomics England Research Summit! Held on 17 June in London, this year’s agenda will explore groundbreaking research, technologies, and collaborations driving advances in genomics. Spaces are limited, register here: https://t.co/cH34sCGgOz #GERS2025
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@adamclat
Adam Clatworthy
11 months
My two worlds have combined with this vital collaboration to transform drug repurposing with AI 🧬 ☁️ https://t.co/tpUIIQWt7P @googlecloud @EveryCure
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@GoogleWorkspace
Google Workspace
1 year
We believe AI can transform how every business works. That’s why, starting today, we're including Gemini as part of #GoogleWorkspace without the need to purchase an add-on—across Gmail, Docs & more—it's rolling out to Business & Enterprise plans soon → https://t.co/zBNmTvB0OX
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@UoBhealthsci
UoB School of Health Sciences
1 year
@Dr_FelixChan from our @UoB_Pharmacy Dept has been granted £20k to research CRELD1-related disorders and their link to epilepsy. He will be investigating the gene, which was only discovered 2 years ago, with participants in the UK and abroad. Read more: https://t.co/gVYs289Zzo
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dailymail.co.uk
Angus Powell, three, carries a rare mutation in the CRELD1 gene. The disorder it causes has now been named: Jeffries-Lakhani Neurodevelopmental Syndrome, or JELANS.
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@adamclat
Adam Clatworthy
1 year
It was a great chat! @Rich_Genomics
@GenomicsEngland
Genomics England
1 year
In our end of year episode, Adam Clatworthy from the Participant Panel sits down with our CEO, Dr Rich Scott, to look back on the highlights of 2024. Tune in as they revisit key podcast moments, and reflect on research discoveries 🎙️ Listen here: https://t.co/R5crzH4AGs
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@GenomicsEngland
Genomics England
1 year
With the new Chair now appointed, Adam Clatworthy and Helen White, Vice-Chairs for the Participant Panel at Genomics England, share insights on the challenges and rewards of guiding the Panel in a time of change. Read the blog here: https://t.co/nK4YYCpaQj
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@adamclat
Adam Clatworthy
1 year
Google’s NotebookLM enhances AI note-taking with YouTube, audio file sources, sharable audio discussions https://t.co/R1eHHLvlai via @techcrunch
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techcrunch.com
Google's NotebookLM has been updated with YouTube and audio files as new source types and sharable links for Audio Overviews.
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@Rich_Genomics
Richard Scott
1 year
So richly deserved @demishassabis, John Jumper and David Baker - an extraordinary leap, leveraging the (some itself Nobel prize winning) work of many over decades... to fastforward our understanding of biology and ability to innovate across so many applications to improve health
@NobelPrize
The Nobel Prize
1 year
BREAKING NEWS The Royal Swedish Academy of Sciences has decided to award the 2024 #NobelPrize in Chemistry with one half to David Baker “for computational protein design” and the other half jointly to Demis Hassabis and John M. Jumper “for protein structure prediction.”
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