
Tom Fitz π¨π»βπ»π‘π
@_wobblewobble
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Iβm just a guy fighting ALS the best I can, tweeting about all things programming π¨βπ»and my toddler πΌ
All thoughts are my ownπ
Joined April 2020
Today is 4 years since I was diagnosed with #ALS. I still have decent function in my right arm. I still work full time. I donβt know what makes me a slow progresser. I just thank God for that.
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It is critical to the #ALS community that #NurOwn is included in thus listening tour because we donβt know what the next administration will do to @SecKennedy and @DrMakaryFDA and the necessary changes made to @FDACBER . We must save #NurOwn now.
The #ALS community urgently implores @BrainstormCell & CEO @Cylebo to leverage the @DrMakaryFDA & @FDACBER listening tour. This is a critical opportunity to champion #NurOwn's Accelerated Approval. Present the compelling totality of evidence: the robust Patient-Reported Outcomes,.
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Do any #pALS use a portable shower or know any trustworthy brands/suppliers i should use? Iβm not able to safely get into my shower. #ALS #showering #HandicappedShowers.
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RT @ALSTDI: "ALS forces a confrontation with mortality. While others shy away, we face it daily. Yet, amidst this reality, I cherish the 35β¦.
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I had a visit from the @GoNumotion π Jeff Cupps today to fix my wheelchair. I broke the joystick and backrest and he even added a few more gizmos to make my life easier!. Iβve had this for a year and never realized all I can do in it! Letβs see how I break it this timeπ§βπ¦Όββ‘οΈ.
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I just saw @limpbroozkit post about #ALS and acid tears. Thatβs crazy because I also started having burning tears. It only happens in one eye at a time and it usually hits me laying down. Maybe this is payback for all the girls i made cry. π€« to anyone who knows that # is 0οΈβ£.
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βDonβt bite the hand that feeds you" Is much easier said than done. #ALS #BeingFed #SorryIBitYou.
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Iβm doing a lot of reminiscing in my head of past relationships and failures. I was a pretty big jerk in my early twenties. I wonder if karma played a role in why I got #ALS.
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I just stood up from the toilet by myself. My wife opens the bathroom door to see me standing there holding onto a grab bar. My son then runs up, sees me, and shouts βDaddy! You so strong!β. Kids are the best! β€οΈβ€οΈπ. #ALS #KidsOfALS #WhatIFightFor.
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RT @aVoice4ALS: As the President-elect is choosing his Cabinet Secetary for HHS, what cannot get lost in the mix is why people with terminaβ¦.
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