The smarter you get the more you realize how little you know

I'm looking for a full-time #caregiver so Shannon can go back to work. I spoke to an advisor from @GoldenCareUSA who told me because I need care #LongTermCare #insurance companies will refuse coverage Long Term Care insurance rejects people that need care. That seems cruel to me

the @NBA tries to spin @Money23Green being a dirty player into him being passionate but we know triple single needs to give cheap shots when he shoots 20% from beyond 6ft lol

I work a full time job using only my eyes. Nobody tell @realDonaldTrump though! #ALS #TobiiDynavox #EyeGaze

I still pray for a chance to live having #ALS. Whether it's a cure or change in regulation. Nothing has changed yet but I won't lose faith ever

I’m the opposite. I love hugging my friends. I was always told I give the best hugs. But being touched is not the same as a mutual embrace. It’s very different now. I need a firm handshake in my life lol.

Today is 4 years since I was diagnosed with #ALS. I still have decent function in my right arm. I still work full time. I don’t know what makes me a slow progresser. I just thank God for that.

The sun doesn’t ask for permission to shine. Neither should you

It is critical to the #ALS community that #NurOwn is included in thus listening tour because we don’t know what the next administration will do to @SecKennedy and @DrMakaryFDA and the necessary changes made to @FDACBER We must save #NurOwn now

Do any #pALS use a portable shower or know any trustworthy brands/suppliers i should use? I’m not able to safely get into my shower. #ALS #showering #HandicappedShowers

Me and my nephew over the years. I always wanted to be a father and have this type of bond with my kids. ALS robbed me of that.

"ALS forces a confrontation with mortality. While others shy away, we face it daily. Yet, amidst this reality, I cherish the 35 years of life I've had.” - Brandon Conley, Living with ALS since 2020

If Pete Hegseth can keep his job then we can find a cure for #ALS

I had a visit from the @GoNumotion 🐐 Jeff Cupps today to fix my wheelchair. I broke the joystick and backrest and he even added a few more gizmos to make my life easier! I’ve had this for a year and never realized all I can do in it! Let’s see how I break it this time🧑‍🦼‍➡️

I’m getting an Obi robot feeding device!! https://t.co/Cb9xYZnV1y

I just saw @limpbroozkit post about #ALS and acid tears. That’s crazy because I also started having burning tears. It only happens in one eye at a time and it usually hits me laying down. Maybe this is payback for all the girls i made cry. 🤫 to anyone who knows that # is 0️⃣

“Don’t bite the hand that feeds you" Is much easier said than done #ALS #BeingFed #SorryIBitYou

I’m doing a lot of reminiscing in my head of past relationships and failures. I was a pretty big jerk in my early twenties. I wonder if karma played a role in why I got #ALS.

My wife gave birth right after I was diagnosed with #ALS. I think the reason I’m still here is because of my #ALS dad strength. 🧑 💪

My feed today is filled with Pittsburg Steelers fans complaining about every little thing 🤦‍♂️ Don’t fall apart now 🤣🤣

True love will pick your nose when you don’t have enough lung power to clear it