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ALS Network Profile
ALS Network

@youralsnetwork

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We connect need with support, questions with answers, thought leaders with new ideas, research to funding, and advocates to challenge the status quo.

California and Hawaii
Joined February 2011
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@youralsnetwork
ALS Network
42 seconds
Check out our website for the activities and events that you can participate in this month! Our online calendar is the best way to stay connected with @youralsnetwork- our connection groups, Walk & Roll to Cure ALS and Endure to Cure ALS events, and other important activities in
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@youralsnetwork
ALS Network
20 hours
The 2026 Running Bitcoin Challenge, presented by the Human Rights Foundation and Block, starts today on Running Bitcoin Day, in honor of @HalFinn's love for running and #Bitcoin! Join us for 21 days of moving with purpose—running, walking, hiking, or rolling a total of 13.1
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@youralsnetwork
ALS Network
1 day
We invite you to join us for Connect, Support, Chat: For Caregivers of ALS Clients Affected by FTD on Wednesday, January 14, at 3:00 PM HST. For more information and to register via Zoom, please contact Josephine Poirier, PT, Regional Care Manager, at jpoirier@alsnetwork.org.
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@youralsnetwork
ALS Network
2 days
Please join us for Connect, Support, Chat: Living with ALS Under 50 on Tuesday, January 20, at 12:00 PM PST/10:00 AM HST. For more information or questions, please contact Care Managers Emma Karavardanyan, M.A. at ekaravardanyan@alsnetwork.org or Shannan Sonnicksen, LCSW, MPH,
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@RunningBTC21k
Running Bitcoin Challenge
2 days
The 2026 #RunningBitcoinChallenge, presented by @HRF and @blocks, starts TOMORROW! Honor @halfin by running 21 km, earn exclusive incentives, and raise funds for @yourALSNetwork! Check out the rewards & join at https://t.co/7jdDcBwaaP. Every sat + every step moves us forward!🏃‍♂️
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@youralsnetwork
ALS Network
2 days
Our January eNewsletter is in your inbox, or you can view it online! We invite you to join us at one or more of our upcoming community outreach events this month! Please check our calendar for upcoming events and online connection groups this month. Be sure to visit the News
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@youralsnetwork
ALS Network
3 days
We are a few days away from the 2026 Running Bitcoin Challenge, presented by the @HRF and @Blocks! Join us and Honorary Chair @FranFinney, virtually, for a global challenge connecting the Bitcoin and ALS communities. However you participate, every mile contributed brings us
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@youralsnetwork
ALS Network
3 days
Join the ALS Network at our Champions for Cures and Care Gala in Pasadena on Saturday, January 24! Enjoy a festive evening featuring cocktails; silent and live auctions; a three-course dinner; special guests; musical entertainment; and the presentation of ALS Network's highest
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@youralsnetwork
ALS Network
5 days
Join the @Synchroninc Webinar to learn the fundamentals of brain-computer interface (BCI) technology—what it is, how it works, and how it’s being developed to support people with severe paralysis. We’ll also share an overview of the Synchron system, insights from clinical trial
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@youralsnetwork
ALS Network
6 days
Join us for Connect, Support, Chat: Trach and Vent on Thursday, January 8, at 1:00 PM PST/11:00 AM HST. Contact ALS Network Care Managers Robin Eller, RCP at reller@alsnetwork.org or Lauren Leonard, RCP at lleonard@alsnetwork.org for more information on how to participate.
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@youralsnetwork
ALS Network
7 days
Thank you for your support throughout 2025. We look forward to a 2026 filled with continued progress.
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@youralsnetwork
ALS Network
8 days
Join us for Adaptive Yoga/Assisted Movement and Guided Meditation on Wednesday, January 7, at 11:30 AM PST/9:30 AM HST. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work.
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@youralsnetwork
ALS Network
9 days
As we enter the New Year, we reflect on the powerful stories shared across the ALS community throughout 2025 and celebrate the meaningful progress we’ve made together as a family of support. Because of your generosity, the ALS Network is reaching more people living with #ALS
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@youralsnetwork
ALS Network
9 days
We invite you to join us for Connect, Support, Chat: For Caregivers of ALS Clients Affected by FTD on Wednesday, January 14, at 3:00 PM HST. For more information and to register via Zoom, please contact Josephine Poirier, PT, Regional Care Manager, at jpoirier@alsnetwork.org.
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@youralsnetwork
ALS Network
10 days
We invite you to join us for one or more of our January Connect, Support, Chat Groups (ALS Network's version of support groups designed for YOU!). These meetings provide opportunities for individuals to share their personal experiences and to learn more about strategies for
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@youralsnetwork
ALS Network
10 days
Wishing you a 2026 filled with hope and progress.
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@youralsnetwork
ALS Network
11 days
Your support powers progress. From your family of support, thank you for your generosity this holiday season.
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@youralsnetwork
ALS Network
11 days
Maximizing research impact through a centralized program facilitated by the ALS Network, @ALSNorthwest is helping accelerate new approaches in ALS treatment, prevention, and understanding. These efforts pool dollars with 11 other ALS United member organizations to fund a robust
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alsnorthwest.org
Everything we do advances the search for effective treatments and cures for ALS.
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@youralsnetwork
ALS Network
11 days
Because of you, the ALS Network is a family of support—connecting people living with ALS and their loved ones to care, research, and advocacy. 2025 Impact at a glance: • More than 2,500 people with ALS and their families supported through wraparound care that promotes health,
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@youralsnetwork
ALS Network
12 days
As the year comes to a close, we are deeply grateful for your dedication to the ALS Network’s mission. Today, we invite you to give the gift of family to #ourALScommunity. The need is urgent, and your support helps provide vital care, critical services, and essential resources
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