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ALS Network Profile
ALS Network

@youralsnetwork

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We connect need with support, questions with answers, thought leaders with new ideas, research to funding, and advocates to challenge the status quo.

California and Hawaii
Joined February 2011
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@youralsnetwork
ALS Network
2 hours
@youralsnetwork actively advocates for legislation to expand research funding and clinical trial access and to enhance healthcare access and coverage. We lead efforts to advance policies that improve the lives of those living with #ALS, their family members, and caregivers too.
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@youralsnetwork
ALS Network
22 hours
Registration for our 2025 Walk & Roll to Cure ALS events is NOW OPEN! These family-friendly gatherings are hosted in locations throughout California and Hawaii. Each Walk & Roll includes wheelchair-accessible routes, an ALS resource fair with vendors that serve
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@youralsnetwork
ALS Network
1 day
Join us on Monday, July 28, at 1:00 PM PDT/10:00 AM HST for the first meeting of PLS: Connect, Support, Chat. This is a focused group for individuals living with Primary Lateral Sclerosis. Please contact ALS Network Regional Care Manager, Trung Ton at tton@alsnetwork.org for more
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@youralsnetwork
ALS Network
2 days
We are SIX WEEKS away from the 3rd annual Big Island Walk & Roll to Cure ALS on Saturday, September 6, 2025, at Wailoa River State Recreation Pavilion in Hilo, HI! . Join @youralsnetwork and support our mission and #ourALScommunity. Enjoy a fun-filled day with
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@youralsnetwork
ALS Network
2 days
Please join us on Monday, July 28, at 1:00 PM PDT/10:00 AM HST for Connect, Support, Chat: Veterans with ALS. Please contact ALS Network Care Managers Robin Eller, RCP at reller@alsnetwork.org or Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org for more information on
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@youralsnetwork
ALS Network
3 days
Ready to groove or roll your way around the dance floor? The Bay Area's favorite party band, Pride & Joy, is ready to bring some pop and soul to the stage at this year's Napa Valley Ride, Walk & Roll to Cure ALS, in the legendary @NapaValleyExpo!. Join us on Saturday, September
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@youralsnetwork
ALS Network
3 days
Join us for the 26th annual Central Valley Walk & Roll to Cure ALS on October 4, 2025, in Woodward Park in Fresno, CA!. Bring your loved ones and enjoy wheelchair-accessible routes, entertainment, food, prizes, giveaways, and activities for all ages. Help us surpass our $115,000
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@youralsnetwork
ALS Network
4 days
Our hearts break at the passing of Phil Green. Diagnosed with ALS in August 2018, he was a relentless advocate for the ALS community, creating partnerships, raising significant awareness, and generating funds through his leadership and dedication. We warmly embrace Phil’s loved
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@youralsnetwork
ALS Network
4 days
You’re invited to the Hawaii Walk & Roll to Cure ALS on Saturday, October 11, at Kapiolani Park in Honolulu, HI! . This one-day community event is designed to appeal to every level of walker, roller, and supporter of @youralsnetwork. Join us for entertainment, food, and many
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@youralsnetwork
ALS Network
4 days
The National ALS Registry by @cdcgov collects data on those living with ALS. Your participation in risk factor surveys helps researchers understand ALS better. Join today at
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@youralsnetwork
ALS Network
5 days
Come be a part of something special at the 4th annual Central Coast Ride, Walk & Roll to Cure ALS! Mark your calendars for Saturday, September 20, 2025, at Dinosaur Caves Park in beautiful Pismo Beach, CA! . Our family-oriented fundraising event provides wheelchair-accessible
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@youralsnetwork
ALS Network
7 days
Mark your calendars! Be part of the 4th annual Central Coast Ride, Walk & Roll to Cure ALS on Saturday, September 20, 2025, at Dinosaur Caves Park, Pismo Beach, CA! . This inclusive fundraising event is perfect for families, featuring wheelchair-accessible paths, entertainment,
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@youralsnetwork
ALS Network
7 days
Do You Have a Donor-Advised Fund? Make a lasting impact on #ourALScommunity year-round by recommending a grant to @youralsnetwork. Explore how your donor-advised fund can help advance care, support, and research for those affected by #ALS. Thank you for being a vital part of our
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@youralsnetwork
ALS Network
8 days
Join us on Monday, July 28, at 1:00 PM PDT/10:00 AM HST for the first meeting of PLS: Connect, Support, Chat. This is a focused group for individuals living with Primary Lateral Sclerosis. Please contact ALS Network Regional Care Manager, Trung Ton at tton@alsnetwork.org for more
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@youralsnetwork
ALS Network
9 days
Save the date for the 26th annual Central Valley Walk & Roll to Cure ALS! Join us on Saturday, October 4, 2025, in Woodward Park in Fresno, CA!. Bring your loved ones to raise funds in support of #ourALScommunity and surpass our goal of $115,000!. For information about our entire
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@youralsnetwork
ALS Network
9 days
The ALS Network, along with 8 other ALS organizations, co-signed a letter asking the National Institute on Aging to renew funding for ALLFTD, an NIH-funded study investigating the genetic link between ALS and Frontotemporal Degeneration. Read the letter and learn more about our
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@youralsnetwork
ALS Network
9 days
We invite you to join us for Connect, Support, Chat: All-Hawaii on Friday, July 18 at 2:00 PM HST. For more information and to register in-person or via Zoom, please contact Josephine Poirier, PT, Regional Care Manager, at jpoirier@alsnetwork.org.
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@youralsnetwork
ALS Network
10 days
Please join us on Monday, July 28, at 1:00 PM PDT/10:00 AM HST for Connect, Support, Chat: Veterans with ALS. Please contact ALS Network Care Managers Robin Eller, RCP at reller@alsnetwork.org or Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org for more information on
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@youralsnetwork
ALS Network
11 days
We invite you to join us for Connect, Support, Chat: All-Hawaii on Friday, July 18 at 2:00 PM HST. For more information and to register in-person or via Zoom, please contact Josephine Poirier, PT, Regional Care Manager, at jpoirier@alsnetwork.org.
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@youralsnetwork
ALS Network
12 days
Please join us for Connect, Support, Chat: Living with ALS Under 50 on Tuesday, July 15, at 4:00 PM PDT/1:00 PM HST. Please contact Care Managers Emma Karavardanyan, M.A. at ekaravardanyan@alsnetwork.org or Shannan Sonnicksen, LCSW, MPH, at ssonnicksen@alsnetwork.org for more
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