
ALS Network
@youralsnetwork
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We connect need with support, questions with answers, thought leaders with new ideas, research to funding, and advocates to challenge the status quo.
California and Hawaii
Joined February 2011
@youralsnetwork actively advocates for legislation to expand research funding and clinical trial access and to enhance healthcare access and coverage. We lead efforts to advance policies that improve the lives of those living with #ALS, their family members, and caregivers too.
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Join us on Monday, July 28, at 1:00 PM PDT/10:00 AM HST for the first meeting of PLS: Connect, Support, Chat. This is a focused group for individuals living with Primary Lateral Sclerosis. Please contact ALS Network Regional Care Manager, Trung Ton at tton@alsnetwork.org for more
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We are SIX WEEKS away from the 3rd annual Big Island Walk & Roll to Cure ALS on Saturday, September 6, 2025, at Wailoa River State Recreation Pavilion in Hilo, HI! . Join @youralsnetwork and support our mission and #ourALScommunity. Enjoy a fun-filled day with
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Please join us on Monday, July 28, at 1:00 PM PDT/10:00 AM HST for Connect, Support, Chat: Veterans with ALS. Please contact ALS Network Care Managers Robin Eller, RCP at reller@alsnetwork.org or Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org for more information on
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Ready to groove or roll your way around the dance floor? The Bay Area's favorite party band, Pride & Joy, is ready to bring some pop and soul to the stage at this year's Napa Valley Ride, Walk & Roll to Cure ALS, in the legendary @NapaValleyExpo!. Join us on Saturday, September
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You’re invited to the Hawaii Walk & Roll to Cure ALS on Saturday, October 11, at Kapiolani Park in Honolulu, HI! . This one-day community event is designed to appeal to every level of walker, roller, and supporter of @youralsnetwork. Join us for entertainment, food, and many
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The National ALS Registry by @cdcgov collects data on those living with ALS. Your participation in risk factor surveys helps researchers understand ALS better. Join today at
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Do You Have a Donor-Advised Fund? Make a lasting impact on #ourALScommunity year-round by recommending a grant to @youralsnetwork. Explore how your donor-advised fund can help advance care, support, and research for those affected by #ALS. Thank you for being a vital part of our
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Join us on Monday, July 28, at 1:00 PM PDT/10:00 AM HST for the first meeting of PLS: Connect, Support, Chat. This is a focused group for individuals living with Primary Lateral Sclerosis. Please contact ALS Network Regional Care Manager, Trung Ton at tton@alsnetwork.org for more
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Save the date for the 26th annual Central Valley Walk & Roll to Cure ALS! Join us on Saturday, October 4, 2025, in Woodward Park in Fresno, CA!. Bring your loved ones to raise funds in support of #ourALScommunity and surpass our goal of $115,000!. For information about our entire
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We invite you to join us for Connect, Support, Chat: All-Hawaii on Friday, July 18 at 2:00 PM HST. For more information and to register in-person or via Zoom, please contact Josephine Poirier, PT, Regional Care Manager, at jpoirier@alsnetwork.org.
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Please join us on Monday, July 28, at 1:00 PM PDT/10:00 AM HST for Connect, Support, Chat: Veterans with ALS. Please contact ALS Network Care Managers Robin Eller, RCP at reller@alsnetwork.org or Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org for more information on
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We invite you to join us for Connect, Support, Chat: All-Hawaii on Friday, July 18 at 2:00 PM HST. For more information and to register in-person or via Zoom, please contact Josephine Poirier, PT, Regional Care Manager, at jpoirier@alsnetwork.org.
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Please join us for Connect, Support, Chat: Living with ALS Under 50 on Tuesday, July 15, at 4:00 PM PDT/1:00 PM HST. Please contact Care Managers Emma Karavardanyan, M.A. at ekaravardanyan@alsnetwork.org or Shannan Sonnicksen, LCSW, MPH, at ssonnicksen@alsnetwork.org for more
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