
World Bladder Cancer Patient Coalition
@WorldBladderCan
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A global umbrella organisation for bladder cancer advocacy groups. Contact us at [email protected]
Brussels, Belgium
Joined January 2018
⏰ Last chance to register! Join us online tomorrow for the #BladderCancerForum25 💬 A unique opportunity to connect with patients, advocates, and experts from around the world all from wherever you are. 📅 14 October 2025 Don’t miss out & register now! 👉
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We are at #ESMO25 in Berlin 🇩🇪 We are here to represent people affected by bladder cancer and to connect with doctors, researchers and partners working to improve care. If you are also at ESMO, feel free to come and say hello 💬 #BladderCancer #PatientAdvocacy
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We kicked off #ESMO25 with a #SharedDecisionMaking Roundtable with Ipsen. Joined scientific expertise + patient perspectives to co-create a framework that can guide practical implementation in oncology care. Lend your voice by taking this survey: https://t.co/x09HBIOLBn
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This morning’s session on the importance of Shared Decision Making in cancer care organised by @GlobalCCN_org & Ipsen @AlisonBirtle & Alex @filicevas put bladder cancer perspective on the table as we explored the challenges of SDM, patient experience with SDM & concrete ways to
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Hugely important meeting on shared decision making showing how patients are not involved as much as they want to be. Thats down to us needing to do more as oncology community. #esmo25 @WorldBladderCan @BladderCancerUK @myESMO
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📰 Stay informed, stay connected. Subscribe to our monthly newsletter for updates, patient stories, events, and more. 👉 https://t.co/MacfX0rWMh
#BladderCancer #PatientSupport #CancerAwareness
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Every year, over 610,000 people are diagnosed with #bladdercancer worldwide 🌍 It is crucial that symptoms such as 🩸 in the urine are taken seriously as this is often the first sign. Let's spread the word about symptoms!👉 https://t.co/5SqZcWVOrP
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Today, we had the chance to attend the event of the MEP Interest Group on Brain Health and Neurological Conditions – “Health Literacy in Action: Enhancing Patient Outcomes and Policy Impact”, hosted by @TomislavSokol (Croatia, EPP). Key highlights: 🧠 56% of people with
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💊 Making sense of medicine access At the #BladderCancerForum25 Public Day in Brussels, advocates, payers & industry experts discussed how promising science becomes real treatment for real people. 🔹 Moderated by Lauren Pretorius (@campaign4cancer ) 🔹 Speakers: Mihai Rotaru
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🌍 Public Day at #BladderCancerForum25 The session “Patient voice in Health Technology Assessments (HTA)” explored how meaningful patient involvement can shape fairer, more transparent, and person-centred healthcare decisions. 💬 Moderated by Dr Anke-Peggy Holtorf (HTAi), the
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🤝 Driving policy progress in bladder cancer through collaboration At #BladderCancerForum25, experts from research, policy & industry discussed how partnerships can accelerate change for people affected by #bladdercancer. 💬 Speakers: • Prof. Hendrik Van Poppel – EAU •
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🌍 Public Day at the #BladderCancerForum25 We started the day with Driving progress through collaboration and patient voices, led by Lori Funk-Cirefice, Michelle Colero & Alex Filicevas. 💡 They presented Strategy 2030 a plan to strengthen patient organisations, build advocacy
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🎥 We’re live from Brussels! The #BladderCancerForum25 – Public Day has just started. Today, patients, carers, advocates, healthcare professionals & policymakers from around the world are joining us to exchange knowledge, share experiences, and shape the future of bladder
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The afternoon at #BladderCancerForum25 is all about action 🎯 We’re continuing from Brussels with: 🧠 A practical workshop on advancing patient voices in Health Technology Assessment (HTA) with Dr Anke-Peggy Holtorf (HTAi). 🤝 Interactive group work on building capacity,
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🎗️ Ya estamos en el World Bladder Cancer Patient Forum 2025 – Advocates Day 🌍 Orgullosos de representar a 🇪🇸 desde CANVES junto a la @WorldBladderCan
#bladdercancerforum25
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Kick off of Advocates Day at #BladderCancerForum25 🎉 We’re live in Brussels for a day dedicated to empowering the global #bladdercancer community. This morning, we’re diving into: 👋 A warm welcome from Lori Funk-Cirefice & Alex Filicevas - setting the tone for two days of
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📣 More than 7,000 different chemicals are in tobacco & tobacco smoke- more than 70 of them are known to cause cancer. 🚬 is the biggest risk factor of #bladdercancer. Learn more & stay #BladderCancerAware! 👉 https://t.co/QmwKJME6bk
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What do you see in this icon? If you identified: ➡the bladder shape, ➡the colour of urine, ➡a stopwatch or a drop of blood, you’ve identified some of the symptoms and considerations of #bladdercancer. If you spot blood in your urine, don't feel unsure & #GetChecked!
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