UK Parkinson’s Disease Clinical Studies Group
@UK_PD_CSG
Followers
486
Following
266
Media
89
Statuses
168
Developing & supporting #Parkinsons clinical research across the UK & increasing research opportunities for people with Parkinson's. Funded by @CureParkinsonsT.
United Kingdom
Joined November 2021
Involved in costing Parkinson's #ClinicalTrials?💸 We've produced a #Parkinsons specific guidance document to assist industry & sites to determine accurate timings & costings of study activity in commercial trials. Find the document on our website: https://t.co/qI0h6O2L2d
0
3
9
The @UK_PD_CSG was launched on #WorldParkinsonsDay 2022 Over the last 3 years we have worked hard to grow our network and support #Parkinsons research across the UK On #WorldParkinsonsDay2025 we are so happy to share our current progress as we look forward to the future
0
0
1
📣 Calling all members of the @UK_PD_CSG 🗓️ Our next meeting is 25 April 2025 ⭐ We will highlight two key #Parkinsons studies, provide an update on EJS ACT-PD, and discuss how we collaborate with international partners 🔗 Want to join us? Sign up here: https://t.co/5x0ZPzWR7L
0
1
3
Check out this new online course from @ParkinsonsUK for all healthcare professionals who interact with People with #Parkinsons Gain insights and skills to effectively communicate with patients about taking part in #research Sign up here ⬇️⬇️ https://t.co/fk8EY8TzuY
0
5
7
Did you know that women are drastically underrepresented in #Parkinsons research? @CureParkinsonsT and @ParkinsonsUK are hosting a free webinar on March 6th to discuss the importance of considering this in your research #InternationalWomensDay Sign up ⬇️ https://t.co/v0vJadaCB9
eventbrite.co.uk
Held in collaboration with Parkinson's UK.
0
3
9
📢 Calling all members of the @UK_PD_CSG! 📅 Our next bi-monthly meeting is scheduled for the 24th February 2025 🌟 We will be discussing two key #Parkinsons studies and providing an update on the EJS ACT-PD initiative 🔗 Want to join us? Sign up here: https://t.co/5x0ZPzWR7L
0
0
0
Are you a registered healthcare professional interested in formal #ClinicalResearch training? A great opportunity for those new to #Parkinsons research to kick start their clinical research career! 🔗Find out more & attend an online info session: https://t.co/eZ1kMFredG
0
1
1
📢Are you interested in undertaking a #PhD in #Parkinsons? @sheffielduni have two projects available focussed on the application of digital mobility outcomes (#DMOs) 📅Closing date: 29 January 2025 🔗Find out more & apply here: https://t.co/SYNrU28ihJ & https://t.co/hKKKLIhzxK
0
4
6
0
0
1
💡 Day 12 #12DaysOfParkinsonsResearch The #TOPHAT study has restarted! After a brief pause for data analysis, the team are back on track to test #ondansetron, a safe drug that could help people with #Parkinsons who have #hallucinations 🌐 https://t.co/7GarbdMP4J
1
0
1
🖐️ Day 11 #12DaysOfParkinsonsResearch Drooling is a common symptom of #Parkinsons. The Cue Band study explores whether a smartwatch could help by reminding participants to swallow more frequently. This study is now complete so the results will hopefully be shared soon!
0
0
1
💊 Day 10: #12DaysOfParkinsonsResearch The @TheravanceBio CYPRESS study is investigating a new treatment, #ampreloxetine, for neurogenic orthostatic hypotension symptoms in Multiple System Atrophy. If successful, this treatment could improve quality of life for people with #MSA!
0
1
2
🧠 Day 9 #12DaysOfParkinsonsResearch Impulse control issues, like gambling or binge eating, are common in #Parkinsons. The Impulse Control study seeks to understand the brain mechanisms behind these challenges, paving the way for better treatments. https://t.co/Jnl8d2fnTA
0
0
1
💊 Day 8 #12DaysOfParkinsonsResearch The @NorapsTrial is testing whether #atomoxetine, a medication currently used to reduce ADHD symptoms, could be useful in treating Progressive Supranuclear Palsy (#PSP) symptoms by increasing #noradrenaline in the brain. Find out more ⬇️
0
0
2
👟 Day 7 #12DaysOfParkinsonsResearch The @getgaitQ study is looking at a wearable device designed to help people with movement disorders walk more effectively. It uses smart technology to monitor and improve gait, aiming to provide people with #Parkinsons a better quality of life
0
0
1
🧠 Day 6 #12DaysOfParkinsonsResearch The @CANPDP_trial is researching whether #cannabidiol (#CBD) can provide relief for #Parkinsons Psychosis symptoms in a safe and well-tolerated way. Read more below ⬇️ For more info: 📧 canpdp.trialoffice@kcl.ac.uk
0
2
3
0
0
1
🧬 Day 5 #12DaysOfParkinsonsResearch The @PDfrontline study is actively recruiting participants to look at genes associated with #Parkinsons This study can be completed in your own home and you can self-refer by visiting: https://t.co/UO31IZwOUg
#GetTrialReady
0
0
1
Day 4 #12DaysOfParkinsonsResearch Today we share the innovative @EJS_ACT_PD trial, opening to recruitment in 2025! Expertly designed by over 90 members, including people with Parkinson's, this initiative will revolutionise how #ParkinsonsResearch is conducted within the UK.
1
2
4
🙌 Day 3: Public and Patient Involvement (PPI) The #PPI group of the @UK_PD_CSG has been invaluable to our progress. Their involvement is essential to ensure research meets the real needs of the #Parkinsons community #12DaysOfParkinsonsResearch
@CureParkinsonsT
0
0
3