In my opinion, Cohen Center provider manual contains quite a few controversial points. No wonder MDs call us "Lyme sect" when researchers refer to viral parts as "reservoirs". The document reads more like an advertisement for the clinic and its personal approach than a manual.

As a bedbound patient with severe Long COVID, I am not eligible to listen to the Keystone Symposia because I have no money to pay for either the livestream or the recordings.

“Gates Foundation commits $2.5 billion to 'ignored' women's health”. In fact, The Gates Foundation ignores Long COVID, ME/CFS, and POTS, which disproportionately affect millions of women and derail their lives.

LDN, stellate ganglion block, and GLP-1 receptor agonists will be discussed in September during the RECOVER-TLC workshop. How many more people must die until Long COVID and ME/CFS are taken seriously? When will this idiocracy end?.

Long COVID/myalgic encephalomyelitis has destroyed my leg muscles. Even if I am still alive by the time a treatment is discovered, I believe I will need an exoskeleton to walk again. But right now, they are still imperfect and expensive.

Øystein Fluge's talk about a pilot trial of daratumumab for ME/CFS has been uploaded.

RT @Lisathefirst20: Heute war mein Wahlkreisabgeordneter der CDU kurz zu Besuch. Termin lief gut, er wird auf Nina Warken (die er lange und….

"And therefore never send to know for whom the bell tolls; It tolls for thee.". God damn human society.

A bit greedy, isn't it?. "Ruhoy’s lowest monthly tier costs $2,500, for which patients are guaranteed six one-hour appointments annually. Her middle tier, $5,000 monthly, guarantees one appointment each month".

Rob C. I. Wüst et al.

University of Pavia, Italy.

Ulm University, Germany.

Dr. Systrom's preliminary results (reduced biomass and altered mitochondrial function).

Since 2023 four independent research teams have demonstrated mitochondrial myopathy in people with Long COVID and ME/CFS using muscle biopsies. The underlying mechanism remains unknown. The NIH is apathetic. Few scientists are engaged in this field. We are dying in our beds. 🧵.

"deconditioning plays a major role in the development of this syndrome" . It is false and misleading, @American_Heart . Muscles of people with Long COVID differ from those of healthy individuals after prolonged bed rest.

In this study, 27 out of 52 patients with ANCA vasculitis met the diagnostic criteria for ME/CFS, based on the Canadian Consensus Criteria.

I'm curious to know what happend with $500 million RECOVER-TLC program.

It’s not deconditioning. It’s:. Mitochondrial dysfunction.Capillary rarefaction.Endothelial dysfunction. How can I fix this to be able to walk again? 😭. Great science by Rob Wüst’s team. Thanks to David for the interview.

It's surreal to read about genetic therapies curing people, while millions with ME/CFS and long COVID can't even get basic tests like the NASA lean test — let alone proper symptomatic treatment.

One more study showing chronic microvascular damage in LC and ME/CFS.