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The Myositis Association Profile
The Myositis Association

@TheMyositisAssc

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The mission of The Myositis Association is to improve the lives of persons affected by myositis, fund innovative research, and increase awareness and advocacy.

Columbia, MD
Joined September 2010
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@TheMyositisAssc
The Myositis Association
1 month
One diagnosis. Many symptoms. Countless stories of strength. This Myositis Awareness Month TMA stands with everyone affected by Polymyositis, raising awareness and funding research for a cure.
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@TheMyositisAssc
The Myositis Association
1 month
As Myositis Awareness Month wraps up, your support can still make a difference. Help TMA fund critical research, advocate for faster diagnoses, and empower lives affected by myositis. Donate today and be part of the change:
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@TheMyositisAssc
The Myositis Association
1 month
Overlap Myositis means navigating more than one autoimmune condition at once. This Myositis Awareness Month, let’s lift up these resilient warriors. Learn more:
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@TheMyositisAssc
The Myositis Association
1 month
Tonight’s the night! ⚾ Join TMA at Segra Park in Columbia, SC for our Myositis Awareness Night and Fundraiser with the Columbia Fireflies!
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@TheMyositisAssc
The Myositis Association
1 month
Join us TOMORROW for a special Ask the Expert session in honor of Polymyositis (PM) & Overlap Myositis (OM) Diagnosis Day during Myositis Awareness Month! 📅 May 30 | 🕔 5 PM ET | 2 PM PT
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@TheMyositisAssc
The Myositis Association
2 months
Join us for Bridging Experience & Expertise: Myositis Patients as Healthcare Providers Thursday May 29 6:30 pm ET.
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@TheMyositisAssc
The Myositis Association
2 months
The Myositis Association is calling on every individual impacted by myositis to take action now. Ask your Representative to co-sponsor H.Res. 277 and help bring national attention to the realities of living with myositis.
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@TheMyositisAssc
The Myositis Association
2 months
Join us tomorrow for Meditation Tuesday: Gentle Strength: Embracing My Body Today at 12 PM ET. RSVP today!
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@TheMyositisAssc
The Myositis Association
2 months
First Pitch and Game Night - Thursday, May 29, 2025 6:10 PM ET St. Lucie Mets vs. Palm Beach Cardinals Clover Park, 31 Piazza Dr., Port St. Lucie, FL 34986.
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@TheMyositisAssc
The Myositis Association
2 months
Today, we honor the heroes who gave their all. Their bravery echoes through every generation.
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@TheMyositisAssc
The Myositis Association
2 months
Chrysta, a myositis patient, shares six practical tips for living well with myositis. Watch now and hear what helps her thrive each day!
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@TheMyositisAssc
The Myositis Association
2 months
Join us for the Myositis Awareness Car Show on Saturday, May 24 at 12:30 PM ET at Space Coast Harley Davidson in Palm Bay, FL. Enjoy classic cars, motorcycles, raffles, food trucks, and more while supporting myositis awareness. Proceeds benefit The Myositis Association.
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@TheMyositisAssc
The Myositis Association
2 months
Myositis doesn’t come with a roadmap, especially for those with Necrotizing Myopathy. This Myositis Awareness Month, let’s be a source of direction and support. Learn more at
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@TheMyositisAssc
The Myositis Association
2 months
Join us on Thursday, May 21 at 5 PM ET for a relaxed and supportive social hour for those living with Necrotizing Myopathy. Connect with others who understand your journey in a casual, no-pressure setting, guided by TMA Group Leader Colleen Layton.
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@TheMyositisAssc
The Myositis Association
2 months
Join us for a special Ask the Expert session in honor of Necrotizing Myopathy Diagnosis Day on Wednesday, May 21 at 11 AM ET. Dr.
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@TheMyositisAssc
The Myositis Association
2 months
Join us TOMORROW for a special Ask the Expert session, streaming live on our TMA Facebook page. The broadcast runs from 1 to 2 PM ET, 10 to 11 AM PT. No registration is required, just visit our Facebook page to tune in. Learn more:
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@TheMyositisAssc
The Myositis Association
2 months
TMA knows the emotional toll myositis takes on patients and families. Studies show people with rare diseases, like myositis, are more likely to suffer from anxiety and depression than people with more common diseases. Share your tips:
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@TheMyositisAssc
The Myositis Association
2 months
IBM progresses slowly, but its impact is life-changing. This Myositis Awareness Month, help us raise awareness and support those living with IBM. Find tools, stories, and ways to take action at
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@TheMyositisAssc
The Myositis Association
2 months
The Myositis Association is calling on every individual impacted by myositis to take action now. Ask your Representative to co-sponsor H.Res. 277 and help bring national attention to the realities of living with myositis.
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@TheMyositisAssc
The Myositis Association
2 months
Are you a physical or occupational therapist caring for people with myositis? Join TMA’s Colorado Support Group and APTA Colorado for an in-person symposium designed for PTs, OTs, assistants, and students
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