Blog #11 - The Cancer Diet One of the biggest topics of discussion early on in cancer is nutrition, holistic healing, and integrative medicine. Here's a first look at how a cancer patient processes the overwhelming amount of info on the topic. https://t.co/pd7V5HwhTu

Blog #3 is up The Magic of Christmas Week - see how the Sharpe family became Disney Annual Passholders a week after leaving the hospital

For those who haven't seen I am republishing my Patient #1 blogs on Stage IV #Melanoma on Substack for free. Subscribe and (re-)follow along, along with updates and separate #patientengagement & #patientadvocacy posts Patient #1 Blog #2 Medically Speaking

Started a Substack to repost all my original Patient #1 Blogs. check it out and subscribe - I'll add new content in there as I can. Blog #1:

According to https://t.co/YNofgZ6hAZ, you come from 28 countries 1. USA (86%) 🇺🇸 2. UK. (4%) 🇬🇧 3. Canada (2%) 🇨🇦 Can you see your country?

Wanna see how the neighborhood handles days off for hurricanes? We play pickleball... and have cancer scans. Sometimes both. Check out the LinkedIn post #AI #ChatGPT #AIinHealthcare #PatientEngagement #PatientExperience #SharpePatientInsights

More from #REPatientUSA: @SGMAlliance CEO Garo Kiledjian: “Start SOMEWHERE in diversifying your clinical trials” be inclusive of all, incorporate SOGI data as part of clinical ops best practices.

“1 in 3 cancer deaths can be prevented by removing health equities” @familyreachCEO Carla Tardif on health inequities w/ advocate Michael Longo: “every recurrence we would cash credit card checks; wife was home w/a 2 year old and newborn twins and I couldn’t work” #REPatientUSA

Slid into #REPatientUSA in time to hear @EliLillyandCo EVP Anne White and @VoicesofAlz President Jim Taylor talk how industry and advocacy/PAG’s can collaborate to change policy, medicinal access; have “patient champions” work w/sponsors, regulatory to push access, reduce stigma

Conflicted between attending conferences and any negative professional impact, and putting yourself and your priorities first? You're not alone. Here's how I missed hashtag#SCRS2024 ... and why I'd gladly make the same "mistake" again. https://t.co/Wxv8QE6et3

Hey @TMobile I’ve been on the phone for 30 minutes and you still can’t figure out how to waive a $60 fee for a 22 year customer who set up a new auto pay (and you still suspended service); what gives? About to lose a customer to @ATT for $60!

Tony Pearson of @EliLillyandCo at #scrs2024 “sponsors need to provide the resources for sites to do community outreach. Full stop” great start to convo on supporting #clinicaltrial sites engage diverse populations in clinical research @MySCRS

Hear @stales present @Medidata and @GGIgreatergift helping feed those in need in the Atlanta area and promoting #clinicalresearch #scrs2024

Medidata's Patient Insights Board: @chemobrainfog | @swaggsheila1 | @marlajan | @bjork5 | @Justus_MedSculp | @mindycam | @ellabalasa1 | @not_defeated | @ch1ench1

The @Medidata Patient Insights Board reacts to recent #FDA-hosted webinar on #patient experience in #GeneTherapy #clinicalresearch. Get perspective of & amplify impacted patients' voices when designing, developing trials/new treatments. #genetherapytrials

4:30p ET today! join two amazing advocates, one disruptive CEO, and me kicking off #clinicaltrialsday with a LinkedIn Live session addressing #patientburden, #diversity, #decentralizedclinicaltrials in #clinicalresearch #diversity #CTD2023

Celebrate #ClinicalTrialsDay with our 1st-ever #LinkedInLive! Join our Patient Cloud CEO @findajc, Patient Engagement Program Manager @TeamTJSharpe, + Patient Insights Board members @marlajan & @mindycam to explore the hottest topics in #ClinicalResearch. See you there! #CTD2023

“It’s meeting people where they’re at” @moderna_tx Nader Daoud. tech can help increase #diversity in #clinicaltrials by each trial individually addressing diverse needs of #patients & designing trials, solutions to meet them. @karrivenn Steve Satek @MySCRS #scrs23 #DEI

“We have to meet in the middle - black patients with mistrust of the medical system, physicians not offering people of color clinics trials” @Medidata PIB member @swaggsheila1 with @bjork5 @stales @JackieKent19 finishing up Day 1 of @MySCRS diversity summit #scrs23 @kellyjmckee

Homemade pasta night!! 🇮🇹 #homemades #itscalledgravy #shortribgravy #paisan #lasagna @ Harbour Inlet