Cure TBM Foundation (Tracheobronchomalacia)
@TbmCure
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Cure TBM. Tracheobronchomalacia (airway Malacia ) is a 501 c (3) non-profit that helps raise awareness and funding for research for both Peds and Adults
global
Joined June 2019
Imagine feeling like you’re suffocating — but no one can see it. That’s what it’s like to live with Tracheobronchomalacia (TBM). It’s misunderstood. And it’s real. At Cure TBM, we fight 🦋 Learn more or share your story at https://t.co/wuidkqcFKN
#CureTBM #EveryBreathMatter
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Well done! Thank you for your incredible efforts!
Strong Temple residents showing at the Eastern Cardiothoracic society meeting 2024. Couldn’t be prouder 😊 @ECTSS_CTsurg @TempleHealth @TempleLung @TbmCure @STS_CTsurgery @TempleSurgery
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We are shouting a HUGE congratulations to Dr. Richard Lazzaro. Thank you for your tireless commitment to our #TBM community. Congratulations! https://t.co/DLGPeEznQv
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#ACSCC2023 @ShawnIzadi @BCHPedSurg @TbmCure great talk on our new tapering tracheoplasty for tracheomalacia with wide posterior membrane
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Incredibly grateful @eugene_shostak and @oliverchowMD @WeillCornell for their knowledge and skill they poured out to our#TBM pts tonight at a virtual education night. Our patients are so desperate to be understood. Thank you for being a wonderful center of excellence in TBM!
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With a grateful heart, we sincerely Thank our Volunteers who serve endlessly in our support groups. They are the reason out patients feel so welcome. So nice to celebrate tonight and honor them.
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We are so proud of CURE TBMs very own Isabella Valentini. Isabella graduated from The University of Georgia with a bachelors of science in Nutritional Sciences. She is taking a gap year while applying to medical school and working in a Pediatrician’s office.
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This is Mike in these current pictures. He was living on ECMO for months due to #TBM Everyone lost hope but @SidhuGang He stayed the course. Mike’s now all over the country w/ other TBM patients who his wife bonded w/ during those months of hell. Cheers to you Dr.Gangadharan !
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We are beyond thrilled to support this very important research. Thank you for working so hard to improve the lives of those suffering from#TBM
So joyful and grateful to represent @BIDMCSurgery, @harvardmed, and our #Thoracic Surgery Team at @GenThorSurgClub Meeting! Blessed with our amazing mentors, in particular Dr. Gangadharan. @raninsingh2, @Jascanioc, @mihirsparikh, @AlexCheeMD, @SidhuGang
@TbmCure , @BIDMChealth
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Such excitement to see progress for such a debilitating disease.
Benign Airway Disease Symposium Presenting today Clinical Trial in COPD - Dr Adnan Majid Airway Stenting, Past present and Future- Dr Thomas Gildea https://t.co/yCirmLE6pX
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Meeting of the greatest minds in the #TBM world. So thankful.
We are nearing the end of our First Benign Airway Disease symposium. Surgical Treatment of TBM-Dr Oliver Chow Anesthetic Considerations during Bronch and Airway Surgery-Dr Daniel Cook Surgical Approach to Trach-Dr Babak Sadoughi
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Next month I have a speaking engagement with a new TBM center on what my why is behind CureTBM. This story came out on this day 7 years ago. Much has changed with my health since then but this remains my why. To prevent others from enduring this. https://t.co/XJrKXfZ6jR
wcvb.com
Doctors didn't understand why a woman had such a difficult time breathing, and after spending years in and out of hospitals she finally found hope at a Boston hospital
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Congratulations Britney. We are so proud of you and appreciate you so much. #TBM #TBMCollaboration #CureTBM
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After a good 8 month sabbatical, I am happy to be back doing what I love the best. Supporting patients, connecting providers, and raising funds for research. I’m very excited about the collaboration going on between patients and providers in US &UK as well as nurse navigators.🙏🏽
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So grateful to the researchers that are pushing forward toward a deeper understanding of #TBM
We have a lot more to learn about this diverse patient population whose tracheal disease comes in many shapes and sizes. This is a start. #tracheobronchomalacia #EDAC #TBM
@TbmCure, 🙏🏾 for your ongoing support
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Founders of nonprofits don’t start a “business“ for any reason except the utter Burning passion in their heart to change a situation. It isn’t a business to them but Rather an extension of their soul, Unable to be separated. Be gracious to them. Support and respect them.
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