🎉 TANGO2 Families—Join Our Birthday Club! 🎉.Visit to sign up in minutes! It’s quick, easy, and a wonderful way for our community to come together and spread love. 💌🎈. 📲 Sign up today and let’s start celebrating!. #TANGO2ResearchFoundation

Here, you're part of a powerful global network of families, researchers, doctors, and volunteers—all united in the fight to understand, treat, and one day cure TANGO2 disease. #TANGO2ResearchFoundation

This dedicated hotline connects healthcare providers with expert, real-time support during hospitalizations, medical crises, or when a patient is at risk of one. 📞 TANGO2 Hotline: 1 (860) 598-0955. #TANGO2ResearchFoundation

🎉🎂 Happy 11th Birthday, Thea! 🎂🎉. Today we’re cheering for someone truly unforgettable—Thea, a fierce and fabulous TANGO2 warrior who’s officially turning 11! 💙🌟. #TANGO2ResearchFoundation.#TANGO2Warrior.#TANGO2BirthdayClub.#TANGO2Community

Learn more about TANGO2 and its role in the body by visiting our website. #TANGO2Awareness.#TANGO2ResearchFoundation.#TANGO2Gene.#RareDiseases

Here's a look back at all of the projects we funded during Grant Cycle 1! .View our full research funding portfolio at: . #TANGO2ResearchFoundation. #CureTANGO2. #HopeThroughResearch. #RareDiseaseCommunity

Join us in congratulating Dr. Andreas Roos and Dr. Bert Klebl, both from University Medicine Essen at Duisburg-Essen University, on being awarded a $18,500 research grant!. Learn more about all the funded Cycle 5 projects:

💙 TANGO2 parents, we want to hear from you!. What’s one thing your child has taught you that you never expected to learn?. #TANGO2ResearchFoundation. #TANGO2Community. #TANGO2Warrior. #RareDiseaseParenting. #LessonsFromMyChild

The TANGO2 Research Foundation has awarded over $1.1 million (USD) in funding since its inception. View current and past research projects at . #TANGO2ResearchFoundation.#TANGO2Disease.#RareDiseaseCommunity.#TANGO2

🎥 Just received a rare disease diagnosis for your child? You're not alone—and we’re here to help. Watch, share, and remember—you are part of a powerful community. 💙✨. #TANGO2ResearchFoundation. #RareDiseaseSupport. #TANGO2Community. #CaregiverLife

🔗 Review and learn all about all of the Grant Cycle 5 projects: . #TANGO2ResearchFoundation

Want to share your TANGO2 story with other families in our community?. Head over to our website and submit your written or video story under the "For Families" tab at Your story matters, and we can't wait to hear it! . #TANGO2ResearchFoundation

🔗Here's a look back at all of the projects we funded during Grant Cycle 1! .View our full research funding portfolio at: . #TANGO2ResearchFoundation. #CureTANGO2. #HopeThroughResearch. #RareDiseaseCommunity

Congratulations and Thank to Ann Geffen on her 5-Year Anniversary with the TANGO2 Research Foundation!!. 🔗 Read the new blog post here: #TANGO2ResearchFoundation

Thanks to Dr. Sam Mackenzie and a team of movement disorder experts, new analysis of family-submitted videos has identified dystonia and ataxia as key features in what many families call “TANGO2 spells.”

Your fundraising dollars are hard at work! With your incredible support, we’re funding $193,500 in research this cycle! 🎉. 🔗 Review and learn all about all of the Grant Cycle 5 projects: . #TANGO2ResearchFoundation

In case you missed it, we’re thrilled to share a truly remarkable discovery—the oldest known person ever diagnosed with TANGO2 Deficiency Disorder has just been identified… at 61 years old! . Read the full story:.👉

Jamie’s message is a heartfelt reminder that, while the road may be tough, we don’t have to walk it alone. Through hope and community, we can face the future with courage, knowing that together, we are stronger, more resilient, and ready to make a difference.

📘 Exciting news for the TANGO2 community!. Request your copy here: . #TANGO2ResearchFoundation.#TANGO2Community.#TANGO2Caregivers.#RareDiseaseSupport

We're always looking for passionate and committed people to volunteer their talents and time to help further our mission! ⠀.⠀.Visit our website to learn more about our current volunteer opportunities! ⠀.⠀.#TANGO2ResearchFoundation.#TANGO2Disease.#RareDiseaseCommunity