SYNGAP1 Global Network (SGN)
@SyngapNetwork
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Global #SYNGAP1 @cureSYNGAP1 🇺🇸🇬🇧🇪🇺 @Syngap1A 🇦🇷 @SyngapAus 🇦🇺 @OSyngap1 🇨🇦🇫🇷 @syngap1Germany 🇩🇪🇦🇹@syngap1italia 🇮🇹 & 🇪🇸🇮🇳🇯🇵🇸🇪🇨🇭
Planet Earth
Joined April 2020
#NDD #Epilepsy Clinicians & Researchers! . Help secure a 🌍 global #ICD11 for #SYNGAP1. Log into the WHO portal & support the proposal for #LD90point5. Full instructions here: cc: @ingridscheffer @DrDaniAndrade @hanspschlecht @Syngap1Germany @SyngapAus.
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RT @cureSYNGAP1: 6/21 is #SplashForSyngap - Listen to this important segment from the latest episode of 𝘚𝘠𝘕𝘎𝘈𝘗𝟣 Stories - then share with y….
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RT @cureSYNGAP1: Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this we….
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RT @cureSYNGAP1: 🇪🇺 Webinar for our friends in 𝙀𝙪𝙧𝙤𝙥𝙚:. 🎤💻 New SYNGAP1 #SRFWebinar with @camp4tx . 🧬 SRF EU | What you need to know about A….
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RT @cureSYNGAP1: 🎤💻 New SYNGAP1 #SRFWebinar with Virginie McNamar & Mike Graglia. 🧬 SRF | SRF’s 2024 Impact Report. 🗓 Thursday, March 27.🕘….
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RT @cureSYNGAP1: Listen to the latest #SYNGAP10 episode with special guest host Monica Meyer! What is #SynGAPResearchFund doing to help SYN….
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RT @cureSYNGAP1: Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this we….
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RT @cureSYNGAP1: Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this we….
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RT @HopeforULD: Hope for ULD is celebrating Rare Disease Day by raising awareness for our fight against the ultra rare EPM1, Unverricht-Lun….
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RT @cureSYNGAP1: Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this we….
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RT @cureSYNGAP1: Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this we….
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RT @cureSYNGAP1: Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this we….
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RT @cureSYNGAP1: Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this we….
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RT @cureSYNGAP1: Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this we….
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RT @cureSYNGAP1: How many people have SYNGAP1? .4Q24 #SYNGAPcensus = 🌏1,530 .Details: .🇺🇸432.🇬🇧128.🇩🇪126.🇨🇳113.🇫🇷99….
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RT @cureSYNGAP1: Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this we….
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RT @cureSYNGAP1: #SYNGAP1 @ AES 2024. @cureSYNGAP1 .@VirginieMcNamar @SyngapNetwork @SyngapAus . #SYNGAPConf
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RT @cureSYNGAP1: Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this we….
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RT @cureSYNGAP1: The SYNGAP1 community is at a loss as we share the passing of Annie. Please keep her family in your thoughts during this d….
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RT @cureSYNGAP1: Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this we….
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RT @cureSYNGAP1: 🎤💻 New SYNGAP1 #SRFWebinar with Drs. Michael Courtney & Pekka Postila @UniTurku. 🧬 SRF | Virtual and experimental approach….
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