Seth’s Story and Educational Resources
@SethsStory99
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Seth’s Story can be used as a film and educational resource about love, relationships, empathy & compassion through pancreatic cancer & end of life #sethslegacy
West Midlands, England
Joined July 2016
I need your help if you have seen Homeward Bound @hwb999 the film or the play or used the educational package please complete the survey just click the link and give us your feedback if you have more In depth feedback please contact us #sethslegacy
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New formulation of chemotherapy drug opens doors to advanced cancer treatment options
news-medical.net
University of Arizona researchers devised a new method to deliver cancer chemotherapy drugs to pancreatic and breast cancer tumors more effectively and with less damage to healthy tissues than...
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‘World’s nicest judge’ Frank Caprio dies at 88 after pancreatic cancer battle
independent.co.uk
‘His warmth, humor, and kindness left an indelible mark on all who knew him,' a statement announcing Caprio's death read
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Have you or a loved one experienced time in an Intensive Care Unit? Join our upcoming free webinar to learn more about the BACCN Patient and Carer Group and how you can get involved. Wed 18 June 2025 19:00 – 19:45 (via Zoom) To register please click https://t.co/ULnhx0wY2w
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Play a role in shaping the national cancer plan. What are the most important priorities that the national cancer plan should address? https://t.co/C6u2WOjx12 This call for evidence closes at 11:59pm on 29 April 2025.
gov.uk
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@SethsStory99 @hospiceuk @wilfwardfamtst @Sophieslegacy10 @SaraTurle @ShabihaAzam Finally was Claire and Bradley’s story of incurable pancreatic cancer and how hope changes over time esp when getting hospice care and unexpectedly surviving imminent death #sethslegacy
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@SethsStory99 @hospiceuk @wilfwardfamtst @Sophieslegacy10 I was also joined in the lecture by @SaraTurle sharing her experiences of patient partnership and cancer and also @ShabihaAzam with Mohammed Azam a legacy for today thank you both for your generosity in sharing
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@SethsStory99 @hospiceuk The lecture today also featured the @wilfwardfamtst story Who cares we do as well as @Sophieslegacy10 thank you both for freely sharing your experiences the students learned from the stories
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If you want to watch @SethsStory99 yiu can find the link here on the @hospiceuk website https://t.co/Ji0ujJPVer
#sethslegacy
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Hugest thanks to Sue @bournemouthuni and @lgoodbu for the opportunity to speak to students and share 2 of my stories this morning. A privilege to share this space with Shabiha and all the other voices heard through Lesley today. Emotional scaffolding conveying authenticity.
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New paper: Caregiving burden, receipt of palliative care, and the use of bereavement support: secondary analysis of population-based data https://t.co/OxqiYZCI0x Congratulations to Maja!
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So great to give a lecture to 300 final year nursing students today at @bournemouthuni at the invitation of @sbaron_sue sharing @SethsStory99 and how personal experience shapes my approach to digital storytelling #sethslegacy loving my spring colours too
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Late last year I recorded a podcast as a member of the service user group at @UniofStaffs to share @sethsstory99 and my work across healthcare mentions of the fab @SaraTurle @Sophieslegacy10 and Claire and Bradley listen here as part of #sethslegacy
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8 years ago @SethsStory99 was launched supported by @hospiceuk @PancreaticCanUK @StGilesHospice @LeedsHospitals its still influencing end of life care psycho social support and raising awareness of pancreatic cancer thank you @clairehenry_ @anitachayes @sarahbell3 #sethslegacy
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Great to share @SethsStory99 today at north London palliative care conference along with @Sophieslegacy10 and Bradley and Claire’s story #sethslegacy
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It was so wonderful yesterday to meet in person someone I met online in 2020 and have worked with since then Elizabeth from Grief Dialogues who I met synchronously through @SethsStory99 and also Darren from @Aftercloud1 great to meet for real face to face #sethslegacy
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it was great to meet up with the commissioners from @theUKCB this week to talk about the progress made on the recommendations lots of progress but still more to do #sethslegacy
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3/3 what is even better they are planning action 1Tutorials on Goals of Care/End of Life/Breaking Bad News 2Volunteer “play” buddies for children and “companions” for adult patients who would welcome a medical student’s time 3 Palliative care attachments for all students
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2/3 “The atmosphere in the auditorium definitely shifted after your presentation. I personally will not forget the many lessons I learned on Friday and I am confident everyone who attended will carry something from the stories you shared.” #sethslegacy
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1/3 Feedback from medical students after the presentation on Friday sharing @SethsStory99 “It was a moment for all of us to reflect on our experiences in medicine thus far and remember how essential empathy and compassion truly are.” #sethslegacy
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