
Screen4Rare
@Screen4Rare
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A multi-stakeholder platform launched by IPOPI, ISNS and ESID aiming to exchange knowledge and best practices on newborn screening for rare diseases.
Joined February 2022
#DidYouKnow that 140 million babies are born each year, but only one in three receive screening of any type?. On #INSD, we call on policymakers across the world to support equal access to #neonatalscreening. Check out our new factsheet for more information 👇
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🌐 We’re happy to announce the next @Screen4Rare event in the European Parliament:. As the EU advances its Life Science Strategy, prepares the new Biotech Act, and reviews the legislation on Orphan Medicinal Products, Newborn Screening for Rare Diseases (NBS) must be part of the
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RT @Screen4Rare: In 2021, only 27% of babies born around the world were screened at birth . Despite its potential to diagnose many treatab….
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🎥 “Newborn screening is a critical gateway to early diagnosis and timely treatment, offering every child the best possible start in life.” — Dr @ABanerjeeWHO, WHO. Watch Dr Banerjee’s message for International Neonatal Screening Day and learn how WHO is working to improve access
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🗨️ On International Neonatal Screening Day, MEP @TomislavSokol (EPP, Croatia) voices his support for expanding newborn screening across Europe. #INSD2025 #NewbornScreening #RareDiseases #EUHealth #PatientAdvocacy
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🗣️“Every year, 45M babies are screened. 30,000 lives changed.". Patricia Guthrie honors her father Dr. Robert Guthrie’s legacy and celebrates the global impact of newborn screening at the Intl Neonatal Screening Conference. #NewbornScreening #PublicHealth
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RT @ipopi_info: INSD Celebrations at CHU Liège – 26 June 2025 🎉. IPOPI's Executive Director, @JohanPrevot, visited CHU Liège ahead of Inter….
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RT @LeireSolis: Ramping up to #InternationalNeonatalScreeningDay (28 June) in Spain.#NeonatalScreeningMatters #INSD.
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🩺 International Neonatal Screening Day is coming up on June 28!. We are sharing the story of how early screening for Severe Combined Immunodeficiency (SCID) became a global public health breakthrough. 📅 Follow along as we count down to #INSD. #INSD #NewbornScreening
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🧬 Prof Milos Brkusanin from the Faculty of Biology in Belgrade shares his perspective on the value of genetic testing and the growing potential of early diagnostics in saving lives. 📅 Don’t miss his message as we mark the importance of Neonatal Screening Day. #INSD2025
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📅 In anticipation of Neonatal Screening Day, we share a message from Soporan Andreea, highlighting the importance of continued progress, collaboration, and commitment to expanding access to life-saving early diagnostics. #INSD2025 #NewbornScreeningSavesLives #INSD
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💡 Did you know?. Behind every life-changing breakthrough in PKU lies the story of a pioneering register and the dedicated experts who made it possible. As #INSD approaches on June 28, join us in celebrating this inspiring story!. #INSD2025 #HiddenFigures
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💡 Did you know? . Every newborn screening test tells a story of hope and progress. As #INSD nears on June 28, join us in celebrating the hidden figures who shaped PKU treatment. #INSD2025 #HiddenFigures
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