Scratch That UK
@ScratchThat_UK
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UK-based patient advocate organisation calling for the recognition and treatment of Topical Steroid Withdrawal Syndrome (TSWS)
Joined March 2020
It’s time #topicalsteroidwithdrawal got the recognition it deserves in the UK. We’re campaigning to raise awareness about this preventable, iatrogenic (medication-caused) skin condition. Follow us for updates!
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"We are so happy to hear TSW finally being discussed on a parliamentary level. We were so humbled to find Scratch That were mentioned alongside the incredible team at @itsan.nonprofit." - @ScratchThat_UK Learn more here: https://t.co/XWS72274Bp
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@DocHutch Having this trouble with many doctors who aren't believing the thousands (myself included) who are now suffering #TopicalSteroidWithdrawal because docs did us wrong. Now won't admit this is real @ITSANnonprofit @balmonds_uk @ScratchThat_UK
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Holly from @ScratchThat_UK spoke to @bbcrb this morning about TSW following the latest report from @MHRAgovuk recognising the condition. Hear the full transcript through the link in our bio!
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Across 34 studies of Topical Steroid Withdrawal patients: "Almost all authors recommended discontinuing the use of TCS (95.5%)" Source: https://t.co/gAc8w65M9G
#TSWStudySaturday #RecogniseTSW
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Across 34 studies of Topical Steroid Withdrawal patients: "The most frequently reported symptoms were burning/stinging, exacerbation with heat or sun, pruritus, pain, and facial hot flashes" Source: https://t.co/gAc8w65M9G
#TSWStudySaturday #RecogniseTSW
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Describe your own #skin to inform #dermatology research and education from @CEBDNottm #InternationalClinicalTrialsDay
https://t.co/nIFeNxjih1
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Huge thank you to @CebdNottm and @ECO_eczema and all the TSW warriors who joined for the wonderful meeting yesterday. It means a huge amount to us that the TSW community is being listened to. What a brilliant discussion!
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GRIDD Delphi Survey #1 participants - you are now invited to complete Survey #2. Check your email for the link. Only respondents from Survey #1 will be contacted to complete Survey #2. The Survey is open until May 26. https://t.co/1rCmJzXIXC
@globalskin_iadpo #itsan #tsws
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“The most common sign was erythema (92.3%). One article...described a sharp cutoff between red and normal-appearing skin that often ran down the mid to outer cheeks whereas the nose and the ears remained clear” Source: https://t.co/gAc8w65M9G
#TSWStudySaturday #RecogniseTSW
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Calling our TSW warrior guys! ITSAN's Spark conference is this Saturday! Connect with others at the Men’s Group Breakout Session: May 15, 2021 2:20-2:50pm EST 7:20-7:50pm GMT Sign up here: https://t.co/ppWcJEUh8p TSW warriors - use the link to register for the conference too!
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These TSW warriors are bringing their success stories and strength. Come join us! Sign up here: https://t.co/pbAA0uUJNz This conference is complimentary; please consider donating to ITSAN to help cover costs if you are able - thank you! https://t.co/eyilCwRYHa
@tsw_trooper
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Across 34 studies of Topical Steroid Withdrawal patients: "The majority of the described patients were using either mid- or high-potency TCS (98.6%)" Source: https://t.co/gAc8w65M9G
#TSWStudySaturday #RecogniseTSW
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Thank you Joana Ceddia for continuing to share your voice, to raise awareness about Topical Steroid Withdrawal Syndrome and to reach millions! Link to Joana's YouTube video: https://t.co/Xplva1SGqL
@JoanaCeddiaOfficial #itsan #topicalsteroidwithdrawalsyndrome #tsws
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So proud of my blog which just turned 12 years old and also my two books. Head on over to https://t.co/aEeye1n7qC for heaps of information about #allergies #anaphylaxis #eczema #asthma #topicalsteroidwithdrawal and lots of free resources too!
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Do you have concerns about topical corticosteroid withdrawal? Share your views on topical corticosteroid evidence at online event 19th May 5-7pm. Email linda.pycroft@nottingham.ac.uk for further information and to sign up. #topicalsteroidaddiction #topicalsteroidwithdrawal
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From a metaanalysis conducted by the NEA: “The majority of patients with manifestations of TCS withdrawal were women (81%) who had used TCS on their face (97%)” Source: https://t.co/gAc8w65M9G
#TSWStudySaturday #RecogniseTSW
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While there is a stark lack of robust research on #TopicalSteroidWithdrawal, there are existing studies that identify the clinical and histological features of TSW. Every Saturday we’ll share an excerpt from one of these for #TSWStudySaturday #RecogniseTSW
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