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Scratch That UK Profile
Scratch That UK

@ScratchThat_UK

Followers
71
Following
38
Media
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Statuses
24

UK-based patient advocate organisation calling for the recognition and treatment of Topical Steroid Withdrawal Syndrome (TSWS)

Joined March 2020
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@ScratchThat_UK
Scratch That UK
6 years
It’s time #topicalsteroidwithdrawal got the recognition it deserves in the UK. We’re campaigning to raise awareness about this preventable, iatrogenic (medication-caused) skin condition. Follow us for updates!
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@ITSANnonprofit
ITSAN
4 years
"We are so happy to hear TSW finally being discussed on a parliamentary level. We were so humbled to find Scratch That were mentioned alongside the incredible team at @itsan.nonprofit." - @ScratchThat_UK Learn more here: https://t.co/XWS72274Bp
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@princessmel_87
𝕄 𝔼 𝕃 👑
4 years
@DocHutch Having this trouble with many doctors who aren't believing the thousands (myself included) who are now suffering #TopicalSteroidWithdrawal because docs did us wrong. Now won't admit this is real @ITSANnonprofit @balmonds_uk @ScratchThat_UK
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@ScratchThat_UK
Scratch That UK
4 years
Holly from @ScratchThat_UK spoke to @bbcrb this morning about TSW following the latest report from @MHRAgovuk recognising the condition. Hear the full transcript through the link in our bio!
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@ScratchThat_UK
Scratch That UK
4 years
Across 34 studies of Topical Steroid Withdrawal patients: "Almost all authors recommended discontinuing the use of TCS (95.5%)" Source: https://t.co/gAc8w65M9G #TSWStudySaturday #RecogniseTSW
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@ScratchThat_UK
Scratch That UK
4 years
Across 34 studies of Topical Steroid Withdrawal patients: "The most frequently reported symptoms were burning/stinging, exacerbation with heat or sun, pruritus, pain, and facial hot flashes" Source: https://t.co/gAc8w65M9G #TSWStudySaturday #RecogniseTSW
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@eczemasupport
Nottingham Eczema
4 years
Describe your own #skin to inform #dermatology research and education from @CEBDNottm #InternationalClinicalTrialsDay https://t.co/nIFeNxjih1
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@ScratchThat_UK
Scratch That UK
4 years
Huge thank you to @CebdNottm and @ECO_eczema and all the TSW warriors who joined for the wonderful meeting yesterday. It means a huge amount to us that the TSW community is being listened to. What a brilliant discussion!
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@ITSANnonprofit
ITSAN
4 years
GRIDD Delphi Survey #1 participants - you are now invited to complete Survey #2. Check your email for the link. Only respondents from Survey #1 will be contacted to complete Survey #2. The Survey is open until May 26. https://t.co/1rCmJzXIXC @globalskin_iadpo #itsan #tsws
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@ScratchThat_UK
Scratch That UK
4 years
“The most common sign was erythema (92.3%). One article...described a sharp cutoff between red and normal-appearing skin that often ran down the mid to outer cheeks whereas the nose and the ears remained clear” Source: https://t.co/gAc8w65M9G #TSWStudySaturday #RecogniseTSW
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@ITSANnonprofit
ITSAN
4 years
Calling our TSW warrior guys! ITSAN's Spark conference is this Saturday! Connect with others at the Men’s Group Breakout Session: May 15, 2021 2:20-2:50pm EST 7:20-7:50pm GMT Sign up here: https://t.co/ppWcJEUh8p TSW warriors - use the link to register for the conference too!
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@ITSANnonprofit
ITSAN
4 years
These TSW warriors are bringing their success stories and strength. Come join us! Sign up here: https://t.co/pbAA0uUJNz This conference is complimentary; please consider donating to ITSAN to help cover costs if you are able - thank you! https://t.co/eyilCwRYHa @tsw_trooper
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@ScratchThat_UK
Scratch That UK
4 years
Across 34 studies of Topical Steroid Withdrawal patients: "The majority of the described patients were using either mid- or high-potency TCS (98.6%)" Source: https://t.co/gAc8w65M9G #TSWStudySaturday #RecogniseTSW
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@ITSANnonprofit
ITSAN
5 years
Thank you Joana Ceddia for continuing to share your voice, to raise awareness about Topical Steroid Withdrawal Syndrome and to reach millions! Link to Joana's YouTube video: https://t.co/Xplva1SGqL @JoanaCeddiaOfficial #itsan #topicalsteroidwithdrawalsyndrome #tsws
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@WhatAllergy
what allergy?
5 years
So proud of my blog which just turned 12 years old and also my two books. Head on over to https://t.co/aEeye1n7qC for heaps of information about #allergies #anaphylaxis #eczema #asthma #topicalsteroidwithdrawal and lots of free resources too!
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@CebdNottm
Dermatology Nottm
5 years
Do you have concerns about topical corticosteroid withdrawal? Share your views on topical corticosteroid evidence at online event 19th May 5-7pm. Email linda.pycroft@nottingham.ac.uk for further information and to sign up. #topicalsteroidaddiction #topicalsteroidwithdrawal
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@BBCNews
BBC News (UK)
5 years
Topical steroid addiction: Patients call for more support
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@ScratchThat_UK
Scratch That UK
4 years
From a metaanalysis conducted by the NEA: “The majority of patients with manifestations of TCS withdrawal were women (81%) who had used TCS on their face (97%)” Source: https://t.co/gAc8w65M9G #TSWStudySaturday #RecogniseTSW
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@ScratchThat_UK
Scratch That UK
4 years
While there is a stark lack of robust research on #TopicalSteroidWithdrawal, there are existing studies that identify the clinical and histological features of TSW. Every Saturday we’ll share an excerpt from one of these for #TSWStudySaturday #RecogniseTSW
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