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SarcoidosisUK

@SarcoidosisUK

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SarcoidosisUK is the national sarcoidosis charity. We provide support and information to anyone affected. We also raise awareness and fund research into a cure.

London
Joined January 2015
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@SarcoidosisUK
SarcoidosisUK
15 hours
Did you get our October #newsletter yesterday? πŸ“¨ Don't miss out - catch up on our latest news! Check your inbox now or click here to take a look: https://t.co/Zo4HNp761t To make sure you don't miss out on any of our future updates, sign up to our mailing list πŸ’Œ #sarcoidosis
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@SarcoidosisUK
SarcoidosisUK
3 days
Jess’s Rule is a new primary care initiative to encourage GPs teams to rethink a diagnosis. You can find out more about Jess's Rule here: https://t.co/hhREuw3Xzb Jess's Rule encourages seeking second opinions and specialist referrals, often crucial for a sarcoidosis diagnosis.
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@SarcoidosisUK
SarcoidosisUK
10 days
Our virtual Sarcoidosis Patient Day starts at 09:30am today πŸ“£ There's still time to sign up here: https://t.co/eJ8H0fBh5h We can't wait to see you there!
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@SarcoidosisUK
SarcoidosisUK
12 days
With the festive season a few months away, we need your help to design SarcoidosisUK's 2025 Christmas Card and there are just a few days left to submit your design! The winner will be announced in November. Please submit your designs by emailing them to info@sarcoidosisuk.org
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@SarcoidosisUK
SarcoidosisUK
12 days
Please sign up to support SarcoidosisUK for free on #easyfundraising today! Once you’ve signed up you can raise free donations for us when you shop online with over 8,000 retailers. Plus, sign up before midnight 26th October and we could win Β£500: https://t.co/Y7GvWoXaI2
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join.easyfundraising.org.uk
Help SarcoidosisUK raise free funds today by shopping online via easyfundraising.org.uk. Shop at no extra cost and raise free donations for Towcestrians Sports Club
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@SarcoidosisUK
SarcoidosisUK
14 days
We're saying a HUGE thank you to Craig for braving a skydive from 13,500 feet for SarcoidosisUK πŸ’™πŸͺ‚ He took on this dizzying challenge in support of his wife who was recently diagnosed with sarcoidosis. Craig raised vital awareness and over Β£1,200 incl. Gift Aid - thank you!
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@SarcoidosisUK
SarcoidosisUK
17 days
We would like to say a huge thank you to Live Like Ralph for their amazing support which allowed us to attend this conference, and to the generous specific donation made to SarcoidosisUK, which enabled us to fund this course. Help us spread the word here:
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@SarcoidosisUK
SarcoidosisUK
17 days
Last week, we attended the 2025 Royal College of General Practitioners Conference in Newport, Wales to raise awareness of sarcoidosis and our e-learning module with GPs from across the UK πŸ“£ Help us spread the word here: https://t.co/odGZYVeN2b
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@SarcoidosisUK
SarcoidosisUK
23 days
Today is World Mental Health Day and we know that having a rare disease can take a toll on your mental health. Remember to check in with yourself today. If you have found yourself struggling, take a look at our 'Sarcoidosis and Mental Health' page here: https://t.co/8QprsuIZ5s
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@SarcoidosisUK
SarcoidosisUK
23 days
There's still time to have your say! πŸ’¬ We’re doing a major survey of patients and supporters to find out what do we do well, what could we do better and what else can we do to support our community. Click here to 'Have Your Say' today: https://t.co/MFX57o21ru
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@SarcoidosisUK
SarcoidosisUK
24 days
Thank you to Live Like Ralph for their support which has made our attendance possible πŸ’™
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@SarcoidosisUK
SarcoidosisUK
24 days
We're all set up at the RCGP Conference at the ICC in Wales πŸ“£ We'll be sharing our Sarcoidosis GP eLearning Course today and tomorrow to every GP that walks past. If you're attending, please come and say hello! You can access the course here: https://t.co/Vpw8wTW9V0
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@SarcoidosisUK
SarcoidosisUK
24 days
Our very own Support Services Officer, Mary, is taking on the Royal Parks Half Marathon this weekend with Billy! πŸŽ‰ We'll be cheering them on every step of the way and can't wait to see how they get onπŸ’™ Read more about their fundraising here: https://t.co/Syp2vbBglN
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@SarcoidosisUK
SarcoidosisUK
25 days
Our programme is now live for our online Sarcoidosis Patient Day πŸ“£ Not only is our programme out, but you can also start submitting questions to be asked on the day here: https://t.co/Wf34R5QOiy Sign up to join us on the 23rd October: https://t.co/eJ8H0fBh5h
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@SarcoidosisUK
SarcoidosisUK
1 month
This weekend, we're wishing Aaron, Alan, and Rachel the best of luck at the Cardiff Half Marathon - we're so thankful for your support πŸ’™ Click here to find out why they are running for us and hear Jayne's story: https://t.co/CB1pIFiDMs
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@SarcoidosisUK
SarcoidosisUK
1 month
With the festive season just a few months away, we need your help to design the SarcoidosisUK 2025 Christmas Card!β € Get creative and submit your own festive card design! πŸ’™ Please submit your designs by emailing them to info@sarcoidosisuk.org. We can’t wait to see your ideas!
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@SarcoidosisUK
SarcoidosisUK
1 month
Today is World Heart Day πŸ«€ Cardiac sarcoidosis affects up to a third of all sarcoidosis patients. The heart can be affected by sarcoidosis either directly (Cardiac Sarcoidosis) or indirectly (Pulmonary Hypertension). Click here to find out more: https://t.co/mbzgXDfF7E
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@SarcoidosisUK
SarcoidosisUK
1 month
We would like to say a HUGE thank you to Lesley and Vicki for completing the Edinburgh Kiltwalk last week in memory of Lesley's mum, Helen. Have you been inspired by their fundraising? Get in touch with us at eva@sarcoidosisuk.org and help us make a difference!
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@SarcoidosisUK
SarcoidosisUK
1 month
Today marks #WorldLungDay, so why not explore Cole's talented autobiographical fable? This is the beginning of his sarcoidosis journey, beautifully depicted in a four page comic. Take a look this World Lung Day here: https://t.co/ogxW2N7Tr2
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@SarcoidosisUK
SarcoidosisUK
1 month
Today is #WorldLungDay In about 90% of patients, sarcoidosis affects the lungs and/or lymph glands. This is known as 'Pulmonary Sarcoidosis' Find out more here: https://t.co/RRtGMhPZrM
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