Sara Pot
@SaraPot3
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“I don’t like that man. I must get to know him better.” A. Lincoln
Joined February 2019
Empower your team with the Family Engagement in Research (FER) Course! Designed to foster meaningful collaboration, FER equips learners with the skills to build trusting relationships and engage effectively in research. https://t.co/1JfWfoKFvv
#FromScienceToSolutions
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Hear how CanChild has impacted lives, sparked connections, and created change for children, families, and caregivers over the past 35 years. Drop a comment and let us know: What does CanChild mean to you? #CanChild35 #IAmACanChild #35YearsofImpact
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And to clarify: I’m referring to the washrooms with adult sized changing beds. One is chained up and the other is in pieces. I can’t recall a time in the last few years where the rooms have been functional. This matter needs intentional problem-solving.
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Why is it so difficult to maintain the accessible washrooms at Union Station @metrolinx @cityoftoronto? Have you considered card access to provide responsible use? The floor or a small counter are not safe options for my two teens. 👩🦽➡️👩🦽➡️
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Hosted a virtual meeting this week with researchers, clinicians and #PatientPartners (1st time meeting for many). One way I've found to level things out in intros: first names only (no titles or degrees) and ask everyone to share a fun fact/favourite hobby. #PatientEngagement /1
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I send my kid in NZ a letter every week. Hoping for a speedy and acceptable resolution… I miss my kid and sending the weekly notes has been my fix. @canadapostcorp
Canada Post workers went on strike early Friday after failing to reach a negotiated agreement with their employer.
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Making Halloween 🎃 more inclusive is the aim of our staff member Hayley. In our latest blog, she details her own struggles ‘celebrating’ Halloween as a kid + how some simple steps can open up doors to making Oct. 31 more accessible for all! 👻 https://t.co/HZAfEMF8hN
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Putting our 'all' into Halloween makes for a more inclusive experience. Haley Hodges of @5CountiesKids shares tricks we can use to make Halloween a treat for all children regardless of their age or ability.
kawarthanow.com
By Five Counties Children's Centre. There are many tricks we can use to make Halloween a treat for all children regardless of their age or ability.
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It was an absolute honour to present the Chamber’s Family Lifespan Lecture with my longtime friend and colleague @FieryFrancine. Thank you so much for this opportunity and for helping us to shine a light on the importance of embedding lived experience in research and healthcare.
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Approximately two thirds of young adults with disabilities reported their health care needs in the adult system are not being met. Read our report to learn why navigating the adult health care system is #NoPieceOfCake: https://t.co/B99oWi7QNn
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My cousin & fierce champion: Waterloo councillor blasts Ottawa's inaccessibility in letter to mayor | CBC News
cbc.ca
A regional councillor from Waterloo, Ont., says her experience trying to use accessible transportation in Ottawa was so poor it inspired her to write to Mayor Mark Sutcliffe and his council colleag...
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We are part of this story with our kids - and so grateful.
Pediatric palliative medicine at McMaster is about more than end-of-life care - it’s about bringing joy to children with serious illnesses. Discover how @DaveLysecki is transforming care through compassion, research & innovation. ⬇️ https://t.co/RbvKkGKWq0
#WorldHospiceDay
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As part of my Family Engagement in Research course (@FERProgram) we've been talking about clinical trials. Made me think of KGB, who participated in groundbreaking research. He said, "Having Huntington's is my epic challenge. Being in this clinical trial is my epic response".
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Recruitment for my interview-based study continues! If you have any experience creating a #RareDisease patient registry, or are in the planning stages for one, you might be eligible to participate. To learn more, please reach out! #PatientEngagement #Epidemiology
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The Evidence Alliance has published a resource on writing plain language summaries informed by recommendations from peer-reviewed literature and insights from 11 patient and public partners. Access the resource: https://t.co/t4HCtGM78k
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Empathy is about understanding another person's point of view, including their feelings and lived/living experiences. It also plays a crucial role in #equitable implementation and working in collaborations. We love this visual that summarizes the empathy lens by @Sonia_Sparkles.
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Proud to be listening in and supporting you, @TrinityLowthian this morning @CDNParalympics. I cheered each point as the stats refreshed (wish CBC would have covered the 🇨🇦 match!?). I can only imagine the incredible memories you are making. 🎉
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Please join me in cheering for @TrinityLowthian who is competing in fencing🤺 the Paralympic Games! Sept 3rd @ 7:50am EST Sept 6th @ 4:10am EST Wishing her the best of luck from 🇨🇦 🏅#paris2024
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