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Samantha Winemaker she/her Profile
Samantha Winemaker she/her

@SammyWinemaker

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Palliative Care MD, Co-Host @waitingroomrev 🎧, Assoc Clin Prof @MacPalCare , Advocate +ve change in healthcare, own views, stories changed, IG sammy.winemaker

Ontario, Canada
Joined May 2021
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Palliative care: Is not owned by one specialty in healthcare. Should be naturally infused into the entire care journey. Should be delivered seamlessly without labels. Is an approach to care that balances hope & reality. # Medtwitter #Palliativecare #Healthpolicy #Meded
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@SammyWinemaker
Samantha Winemaker she/her
3 years
All doctors must learn obstetrics in medical training. Yet, few will end up delivering babies once graduated. There is NO mandatory training in #PalliativeCare . Yet, ALL doctors will care for patients facing progressive life-limiting illness! Make sense? #Medtwitter #Meded
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@SammyWinemaker
Samantha Winemaker she/her
1 year
Why do we talk to unconscious patients? 1. Respect 2. Humanize care 3. Comfort 4. Hearing may be preserved 5. Assuage fears 6. Keep them informed of what’s happening 7. Warn them when touched for the purposes of care Patients are always people. #Medtwitter #Meded
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Hospital bed arriving at home; 1. I'm getting worse. 2. They are giving up on me 3. It's too small for my partner/family 4. It's cursed because others have died in this same bed 5. It's over Be sensitive to the meaning for patient's behind this major transition point. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Home visit. Woman dying of #Cancer . Family meeting in the living room. Little shoes poking out from the adjacent room. Her 5 year old granddaughter, listening. Mother 'caught her'. I invited her into the room. She clearly wanted to be part of the family meeting. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Dying is often missed until the final days of life. In reality, dying from a progressive life-limiting illness can start months before death. The subtle early signs are often attributed to everything else. Precious time is stolen in the frenzy to fix normal dying. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
We reduce patients to: 1. The illness- ‘the cancer patient’ 2. The room number- ‘the guy in room 4’ 3. The bed- ‘bed 6’ 4. The stage - ‘palliative patient’ While we argue that this reduces confusion, it also dehumanizes the care. Keep the person whole. #Medtwitter #Meded
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@SammyWinemaker
Samantha Winemaker she/her
3 years
"I'm not scared of being dead," she said. "But I'm scared of what happens between now and then." THAT is called dying. THAT is what is missing from healthcare training. THAT is what most people want to know. THAT vortex IS what amplifies physical symptoms. #MedTwitter #MedEd
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Please don't reduce #Palliativecare to a specialty or hospice. It is an approach to care woven into the journey from diagnosis of a progressive illness. Delivered by ALL health care providers in all settings. Mic drop! (my kids would cringe that I just said mic drop) #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Sure, we could; 1.Train more #Palliativecare doctors 2. Figure out how to get more referrals 3. See #Patients earlier in their illness We will NEVER make a dent until every graduating healthcare provider has the basic skills to provide a palliative approach. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
The hardest messages to sell about #Palliativecare ; 1. It is an approach to care. 2. Deserving of anyone facing life-limiting illness or aging. 3. Starts at diagnosis. 4. Delivered by all #Doctors & #Nurses . 5. NOT a label, diagnosis or point in time. #Medtwitter #MedEd #hpm
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Why doctors should be trained in home-based care; 1. Appreciate 'family' as part of care team 2. Learn how to co-create care plans 3. Feel power differential disappear 4. Understand home when discharge planning 5. Learn to collaborate w/ community providers #Medtwitter #MedEd
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@SammyWinemaker
Samantha Winemaker she/her
2 years
People with progressive life-limiting illnesses don’t die from not eating. They are dying so they don’t eat. This is NOT starving to death. #MedTwitter #Meded #NurseTwitter #MedStudentTwitter #Wednesdaythought #Nutrition #PalliativeCare
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Until we make a palliative approach a mandatory part of the formal training of all healthcare providers….we will forever be untangling the mess of our healthcare system at end-of-life. #Medtwitter #Meded #Healthcare #Palliativecare #MedStudentTwitter #NurseTwitter #Education
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@SammyWinemaker
Samantha Winemaker she/her
3 years
We can teach medical students about palliative care being a skill for ALL doctors, but unless they see it role-modelled by faculty across ALL clinical rotations, they will continue to think that #Palliativecare specialists are the only ones who need to do ‘it’. #MedTwitter #MedEd
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@SammyWinemaker
Samantha Winemaker she/her
1 year
When a patient or family decide to stop life-sustaining treatment bc the underlying illness is advancing & quality of life is poor: This is not suicide This is not murder This is not medically assisted death This IS allowing natural dying. #MedTwitter #Meded #Palliativecare
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Doctors & nurses are experts in the biology of an illness but the patient & family are the experts in their experience of the illness. Invite space to learn how it feels. Your recommendations will be more successful. #Medtwitter #MedEd #Caregivers #palliativecare #Medstudent
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@SammyWinemaker
Samantha Winemaker she/her
1 year
I asked him many questions. A very elderly man. “I miss my wife,” he says at least 15 times throughout my visit. I stop asking questions. “I’d like to hear more about your wife,” I say. Know when to listen. #Medtwitter #Meded #PalliativeCare
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Power gap is lessened on a home visit. 1. I knock & wait to be invited in as ‘Dr. Sammy’ 2. I take off my shoes 3. I hang my coat on the bannister (no lab coat) 4. I sit 5. I ask permission to speak openly (plain language) 6. I co-create care plans I am a guest. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
What is the main thing I do as a #Palliativecare doctor? I am the antidote to an uncomfortable healthcare system that is allergic to dying. I spend every day of my career untangling this mess. Enough! Time to get real. Our patients & their families deserve it. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Palliative care is so special….in these next decades of healthcare, should we actually begin to think about it being un-specialized?🤔 Palliative care needs to be peppered into all care! #MedTwitter #Meded #Healthcare #Palliativecare #Health #Patientcare #patientengagement
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Did you know #medical student get almost NO training in home-based care? Yet, 90% of people prefer to get treatment at home at end of life. 🖐🏽✋🏻🤚🏾Hand up if you think we should consider more training in home-based care, especially with an #aging population? #MedTwitter #MedEd
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@SammyWinemaker
Samantha Winemaker she/her
1 year
To die at home you need: 1. Info about what to expect 2. A will to die at home 3. ‘Family’ on board to help coordinate & provide intimate care 4. A formal care team who has access to #PalliativeCare expertise 5. A list of who to call 6. A back up plan #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
Why do #Palliativecare consults take long? 1. Meet the person late in the journey. 2. Patient considered a whole person, not a diagnosis. 3. We sit, listen, accompany & offer presence. Would be less time if whole person care was shared & started at diagnosis. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Christmas arrived at my patient's home. Tree up, stockings hung, Christmas mugs engraved 'Santa is on his way.' Everything red & green. She was even wearing evergreen earrings. For a moment I thought it was December. They moved it forward. She won't make it to 25/12. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
The signals that a person has entered the last year of life are often missed. The gift of time slips away behind the noise of healthcare. An expected death turns into a sudden death. The final chapter written by the healthcare system instead of the person. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
What does #Palliativecare look like early in an illness trajectory? An invitation to the patient and family to balance hope and the reality of the illness. A commitment to truth. A spirit of open communication. Every effort to lean in when the going gets tough. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
Dying can seem like a rollercoaster. Families can start to: 1. Feel exhausted 2. Doubt the prognosis 3. Feel guilt, hoping for the end 4. Try to feed & hydrate their loved one 5. Perceive more pain Families require as much care as the patient during the vigil. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
10 months
“Have you had any falls,” I ask. “Only one,” he says with a boyish grin. “I fell hard for her,” he says looking over at his wife. They are hoping he’ll make it to their 50th wedding anniversary…. He is declining in so many ways. But some things remain intact. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Most definitions of #Palliativecare focus on quality of life, holistic care & person/family centredness. Sounds to me like this should be part of all care. Time to integrate palliative care into the training of ALL healthcare providers! #MedTwitter #Meded #MedStudentTwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
5:00pm trolley at a retirement home. I almost mistook it for a medication cart!🤣 #Medtwitter #SundayMorning #SundayThoughts #SundayMotivation #retirement
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@SammyWinemaker
Samantha Winemaker she/her
2 years
When a person dies from an expected death at home; It is not a crime scene No need to call 911 No duty to report to police A precious time for family to sit, exhale & be together Nothing gory happens Hours can pass Every family, culture, death is unique. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
10 months
Discharged from hospital. Did they know his partner is completely burnt out? Did they know the family doc is away? Did they know home care will take a few days to get organized? Who did they expect to give his meds around the clock? Guess what? He’ll be back. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Discharge home from hospital. Patient & family not told; 1. the illness was progressive 2. there would be another similar exacerbation 3. about an 'action plan' for home management 4. the family would have to provide most of the care 5. how hard it was going to be #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
There aren’t enough #Palliativecare providers to meet the needs of patients & families. While we try to convince practicing healthcare providers to integrate a palliative approach into their practice… It must become part of their formal training! It’s missing! #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Things I can’t explain about dying: sometimes… 1. People see loved ones who have already passed. 2. People who are declining suddenly have a burst of energy before the final descent. 3. People sometimes die when the family momentarily leave the room. A mystery. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
8 months
When are we going to finally make #palliativecare a mandatory part of #healthcare curriculum? Twice as much time is spent unteaching & teaching already graduated healthcare providers!!! All the while…. #patients are stepping onto the healthcare conveyor belt…. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
We will never improve end-of-life until we improve the entire illness journey. Right from the time of a diagnosis and through every chapter of an illness, people have the right to receive human centred care! This is not solely the job of #PalliativeCare . #MedTwitter #Meded
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@SammyWinemaker
Samantha Winemaker she/her
3 years
What I don't see virtually; 1. Husband waiting outside to catch me before I go into the home 2. Daughter nodding 'yes' when mother saying 'no' 3. Son silent, head bowed, tears 4. Suffering thick in the air 5. Daughter follows me to the curb Can't replace home visits. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
"You're palliative" 1. I'm what? 2. So you mean there's no more options? 3. Will I still get attention? 4. Will you still be my team? 5. Are you giving up on me? 6. What was I yesterday? 7. I guess there's no more hope... Palliative is NOT a point in time. #Medtwitter #MedEd
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@SammyWinemaker
Samantha Winemaker she/her
2 years
He wore a clean starched white shirt 7 days a week regardless of the occasion. His signature. In his final days, he was too weak to dress. His daughter cut his shirts straight up the back. He died in a clean starched white shirt. #MedTwitter #Caregiver #MondayThought #Homecare
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@SammyWinemaker
Samantha Winemaker she/her
3 months
It’s time! #Palliative care is the foundation of healthcare. It shouldn’t be reduced to a label, a point in time, a diagnosis, end of life, a specialty. It is an approach, a philosophy and a unique blend of skills. It ensures that a #Patient is seen as unique. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
She wants it their way. Been coordinating her father’s care for months as he declines at home. She is assertive. She has high expectations. She wants the best for her Dad. She is protective of him. What does she get in return? The ‘difficult caregiver’ label. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
6 months
10 palliative care consults this week 10 patients wanting more info about what to expect 10 had asked their provider previously 10 had difficulty getting answers 10 minutes That’s how much time it takes to describe what to expect 10 people feeling more grounded #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Palliative care needs a long term plan! We’ve been a specialty for over 60 years. Amazing work! Now, we must go hard…training all healthcare providers to be comfortable & competent to provide palliative care. Citizens deserve palliative care everywhere! #Medtwitter #Meded
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@SammyWinemaker
Samantha Winemaker she/her
2 years
To improve the end of life, we must focus on improving the entire illness journey. #Palliativecare swooping in at the end isn’t the answer. We must look at why ppl face the end in crisis. The causes are upstream! #Medtwitter #Meded #NurseTwitter #Healthcare #PatientCare
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@SammyWinemaker
Samantha Winemaker she/her
3 years
My epiphany: Caregivers are not part of our team-we are part of their team. When a person is diagnosed with an illness, the family becomes the eyes & ears. It isn’t enough to invite #caregivers along for the ride-they need to be in the front seat. #ThursdayThoughts #MorningWisdom
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Dying from a progressive life-limiting illness; 1. Increased fatigue 2. Increased weakness 3. Loss of appetite 4. Needing help with personal care 5. Fading month to month, week to week, then day to day 6. Eventually bed-ridden These are the most common signs, not pain #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Husband of patient told me that in all the sadness of her progressive illness, there have been moments of deep tenderness. "When we are alone and I'm trying to wash & dress her it can get tricky but we often start laughing," he shares. "We've never felt so close." #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Patient told "no chemo unless you go home & gain weight". Stage 4 cancer, zero appetite, more tired, weaker, harder to get to clinic. No reversible cause identified. Why not invite the truth....no more chemo because the person is dying. Honesty is best treatment. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
Our bodies are programmed to eventually die. The trigger will be a progressive illness or aging. The precursor of death is called dying. A chapter not a page. A dimmer not a switch. Normal not wrong. Identifiable not random. Harnessed instead of denied. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
You must fight! You can beat this! Stay strong! Be positive! You can do it! You must try! That’s a ton of pressure for someone facing a progressive life-limiting illness. Those phrases are conversation enders, not starters. Resist the temptation & listen. #Medtwitter #Meded
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Been trying to offer #PalliativeCare consultation in local nursing homes. Made it known that I am available. Unfortunately, little uptake. I'll stick with it & keep trying. Frustrating since I know there is a huge need. Average life expectancy 18months. Barriers? #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
10 months
Early #Palliativecare is NOT just about referring to a palliative care specialty team earlier. This care is a philosophy & an approach to care delivered seamlessly & integrated by every healthcare provider that has a touch point with people facing serious illness!!! #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Working on a presentation. Asked to speak about improving end of life care for patients with #Dementia . My main message….. To improve the end, we must start at the beginning. True for all progressive life-limiting illnesses!🌺 #Elderly #Medtwitter #Meded #Caregiver
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@SammyWinemaker
Samantha Winemaker she/her
3 years
By far, the most important question that I ask patients & families: "How much do you understand about the past, present & future of your illness?" Should be posed at the time of diagnosis & at intervals along the way. Big picture! #MedTwitter #Caregiver #MedEd #Medstudents
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@SammyWinemaker
Samantha Winemaker she/her
2 years
People have the right to know how their body will change over their lifetime. Puberty Pregnancy Menopause Aging DYING Yes….dying is a distinct stage. Yes….dying is not just a moment in time. Yes….you deserve a roadmap for this stage just like the others. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
7 months
Dying can feel lonely….even when lots of people are around. Surrounded by positivity, a person can feel silenced & not permitted to share what’s really on their mind. Many dying people are waiting for the invitation to get real. Listen for loneliness. #Medtwitter #Meded
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@SammyWinemaker
Samantha Winemaker she/her
5 months
There are a fair number of #Doctors & #Nurses that end up working in #Palliativecare after a long career in other areas. Why? It feels like coming home… A reminder of the reason they originally chose their profession. To care & heal even beyond cure. #Medtwitter #Meded
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Older persons don't often die suddenly. They typically exhibit a decline in the last year of life; a trend of weakness, less energy/appetite/mobility - all harbingers of dying. Patients & families have a right to this information. #InternationalDayofOlderPersons #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
“Don’t tell him,” they warn at the door. I ask him, “Are you the kind of person who would like info about your situation….for better or worse?” “Of course,” he says. I share. He cries. The nurse, mad at me outside, “Why did you do that?” It is his right. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
“Dr. Winemaker, the patient is really agitated,” she reports. Check bowels Check bladder Check for pressure ulcers Look for signs of infection Assess for pain Review meds Review goals of care Don’t assume pain Don’t assume it is normal part of dying #MedTwitter #Nursing #Meded
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@SammyWinemaker
Samantha Winemaker she/her
3 years
When I was the medical director of a local hospice I was struck by the one thing that new patients were most looking forward to, that first bath. Many had gone months with just sponge bathing. Next time you take a bath, consider what a luxury it really is to soak. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
10 months
P- people deserve the truth A- acknowledge fears L- listen L- learn to be present I- invite reality into the room A- acknowledge the family T- tell them how things will unfold E- explain what to expect PALLIATE DON’T PLACATE! #MedTwitter #Palliativecare #Palliative # #Meded
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Hospices typically have ~10 ppl. Nursing homes have hundreds. One setting gets 'Rolls Royce' #Palliativecare & the other 'Ford' at best. This is a huge problem. Why the discrepancy when both settings are places where 100% of occupants die? Thoughts? #Medtwitter #LTC #Aging #hpm
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@SammyWinemaker
Samantha Winemaker she/her
10 months
“I wish I had known.” “Why didn’t anyone tell me?” “I would have made different choices.” This is what they say at the end. The entire illness, no one told them what to expect. Clinicians were too busy in the trees of the illness instead of the helpful forest. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Three family members on the couch bracing themselves. Leaning together, holding hands as I wove a thread of meaning through his many illnesses. No longer reduced to his parts. Wife said, "This is the first time I've felt peace in over a year." That's all it took. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
If I get an incurable cancer I hope my oncologist; 1. Gives me the big picture 2. Tells me where I’m at each visit, including my prognosis 3. Helps me understand my options including if I chose to stop 4. Explains how their role changes over time # MedTwitter #Oncology #Cancer
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Elderly people don’t typically ‘up & die’ out of nowhere. They descend….over a period of years, then months, then weeks…. THIS is normal dying. It requires people in attendance. Plan for this inescapable chapter of life. #Eldercare #Dying #Medtwitter #Seniorcare #Eol
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@SammyWinemaker
Samantha Winemaker she/her
2 years
“We didn’t tell him about the #Cancer . He won’t understand because of his #Dementia ,” his family say. He is smiling at me. “Do you have any questions about your situation,” I ask him. “How much longer till I see my lovely wife up there,” he points. He knows. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 months
To #Caregivers who carry around feelings of guilt; 1. You made decisions with the best info you had at the time 2. Your intentions were good 3. You were more than good enough given the situation 4. You had no training & little respite while juggling many balls. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Spoke to a #Geriatrician yesterday about her practice. That’s a medical specialty that get’s it! 1. Whole person care 2. Seek #Caregiver input 3. Assess caregiver’s need 4. Meet patient where they’re at 5. Consider home environment Sounds like #Palliativecare ! #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
26 days
#PalliativeCare is incredibly human. But when human centred care is reserved till the end or only delivered by a small group of specially trained healthcare providers…..it’s often too little, too late. Palliative care can’t reverse a journey of depersonalized care. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
10 months
Community is the largest care setting. Where people spend most of the illness. Cared for between visits to ER, Hospital & clinics. By a mix of trained & untrained people. It deserves real estate in healthcare curriculum. Why do we settle for ‘half training’? #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
Illness awareness is not just knowledge of the diagnosis. Includes: 1. The storyline of the illness. 2. Where the person is at in the illness. 3. What to expect. 4. Anticipating big decision points. 5. How to plan ahead. 6. Inviting the ‘family’ in the know. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Pt w/ Autism, nonverbal. Advanced illness. Uncomfortable w/ #Healthcare & examination. In his home, allowed me to examine his belly. Sat beside him a moment longer. He moved closer, peeled up my sleeve, gently put his cheek to my bare arm. His gesture spoke volumes. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Palliative care is curated care. It is moulded, tailored & meets the patient where they are at. It’s care that feels good for BOTH the clinician & patient/family. Should be woven into all care, all settings, by all clinicians…along the entire illness journey. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
11 months
Land mines for patients & families facing serious illness: 1. Toxic positivity 2. Doctor knows best 3. Take one day at a time attitude 4. Standard/usual care is best for the person 5. Passive patients are easier 6. Quiet families are easier 7. No news is good news #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
The last goodbye when you know you won’t see the person again before they die can be awkward. A gentle touch, a small nod, or a warm smile can be enough. Expect to feel mixed emotions. That’s okay. That’s life. That’s dying. #Medtwitter #PalliativeCare #Hospice #Meded
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@SammyWinemaker
Samantha Winemaker she/her
2 years
If #Dying is a universal human experience…then why is training to care for dying optional for healthcare providers? #MedTwitter #Meded #mondaythoughts #MondayMorning #Healthcare #Palliativecare #PatientCare #Advocacy
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Dying is a distinct stage of human life. Yet, most of us will arrive in shock. We prepare for all other life events…between being born & death….except for dying. Dying is the precursor of death. It is a chapter, not a page. #Medtwitter #Dying #Death #Healthcare #Life
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@SammyWinemaker
Samantha Winemaker she/her
3 years
I can't believe how hard patients, #caregivers & 'family' need to work to get straight, frank, honest information from healthcare providers about their diagnosis & illness journey. It's actually mind blowing. Their illness, their body, their life...not ours. #Medtwitter #MedEd
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@SammyWinemaker
Samantha Winemaker she/her
1 year
Phrases to open the convo about the future with ppl facing serious illness: 1. Does your mind ever wander into the future? 2. What do you think about when it’s quiet? 3. Are you a planner? 4. Let’s plan for today. Would you also like to discuss the road ahead? #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
So much time trying to convince already graduated healthcare providers that they need to know how to provide #Palliativecare . But, there is no mandatory curriculum in their training! Surprised there’s still confusion? Our efforts are futile unless this changes. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
People who are dying can feel loss of control. We can give this back by: 1. Listening 2. Reminding them of their choices 3. Honouring their decisions 4. Providing info about what to expect 5. Helping them plan for what’s ahead People crave to feel more grounded! #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
3 years
The ability to remain at home until the very end of a progressive illness relies heavily on having a person in your life who will step up as ‘manager’. When I meet a new patient, I’m scanning for that person. Who is your person? #MedTwitter #MedEd
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@SammyWinemaker
Samantha Winemaker she/her
3 years
In the last weeks of life, people who are dying show us how to; 1. Adapt 2. Be humble 3. Receive intimate care 4. Rely on others 5. Face mortality 6. Forgive 7. Show strength Sometimes they even show us the possibility of transcendence & peace. #MedTwitter #FridayFeeling
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@SammyWinemaker
Samantha Winemaker she/her
2 years
His Dementia is worsening. Wandering outside while she sleeps. Home based care is creative care. She’s hung sleigh bells on every door in the house. #MedTwitter #OT #Meded #Homecare #Caregiver #Caregiving #Dementia #Alzheimers
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Medical residents…. when doing a palliative care rotation, share; “THIS reminds me why I went into medicine in the first place!” Along their training it gets lost…. #Palliativecare (humanized medicine) is like coming home. THIS should never be lost. #MedTwitter #Meded
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@SammyWinemaker
Samantha Winemaker she/her
3 years
I teach #doctors & #nurses about #palliativecare , but change will only happen when a groundswell of people demand to be more ‘in the know’ about their illness journey from the start. That's why I created @WaitingRoomRev podcast for #patients & #caregivers
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@SammyWinemaker
Samantha Winemaker she/her
10 months
Did you know that medical curriculum does not include any mandatory standard training in home or community based care? Yet, we scramble to understand why ppl are flooding the ERs, why docs fail to make effective discharge plans & ppl boomerang back to hospital. 🤦🏼‍♀️ #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
On my most cynical days this is how I see #Palliativecare … A specialty that makes people whole again after they’ve been reduced to parts by our #healthcare system. A massive 11th hour clean up job. #MedTwitter #Meded #Dying #Medicine #MedStudentTwitter #Nurse #Patients #Care
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@SammyWinemaker
Samantha Winemaker she/her
1 year
How to infuse #Palliativecare early in the illness: 1. Invite patients & families to learn the storyline of their illness. 2. Honest communication, for better or worse. 3. Anticipate decision points & transitions. 4. Constant assessment of informational needs. #Medtwitter
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@SammyWinemaker
Samantha Winemaker she/her
4 months
We shouldn’t have to retrofit #PalliativeCare into the illness journey. The ethos of this care is holistic, balances quality of life and acknowledges mortality. This is not a special type of care. It is the foundation of ALL care. From beginning to end!! #MedTwitter #Meded
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@SammyWinemaker
Samantha Winemaker she/her
3 years
Please share with my medical student how it feels to speak so openly about dying. He replied, "I see life as a great book. It's sad when it's over and you dread the last page. But, you have to read it & sometimes it's the key to the entire story." #Medtwitter #PatientExperience
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@SammyWinemaker
Samantha Winemaker she/her
1 year
Her cancer is grave. Aware that she will die. She begins the process of life review. The cancer is not painful. But her early life is painful. She feels it all over again. This is not treated with morphine. #MedTwitter #Meded #Trauma #PalliativeCare #Pain #MedStudent
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@SammyWinemaker
Samantha Winemaker she/her
2 years
The oncologist made an appointment for her to return in 4 weeks. Clearly, she wouldn’t make it. Honest communication about the reality of the situation is our duty & the patient & #Caregiver ’s right. Her last few weeks spent worried about getting to the clinic! #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
2 years
Death does not typically sneak up on people when facing a progressive life- limiting illness. There is a distinct chapter called dying that comes before death. It has an underlying pattern that CAN be recognized months before. This, the ironic gift of time. #MedTwitter
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@SammyWinemaker
Samantha Winemaker she/her
1 year
Look what arrived!!! I can’t believe my eyes. It feels so good to finally hold the book in my hands! Pinch me!!!! If you are interested in pre-ordering, see linktree in my bio. It will take you right there. #Medtwitter #MedEd #Palliativecare #SundayMotivation #BookClub
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@SammyWinemaker
Samantha Winemaker she/her
1 year
Medical students must learn about all areas of medicine. Except #Palliativecare . Yet ALL doctors will need to care for ppl with progressive life-limiting illness. THIS is the reason our ERs are full, ppl can’t be discharged from hospital & ppl receive futile care. #Medtwitter
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