Ron Hays
@RonDHays
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Professor of Medicine, Health
Los Angeles, CA
Joined April 2009
Associations of Patient Experience With Doctor-Patient Communication and Patient-Reported Physical and Mental Health in Seriously Ill Adults
pubmed.ncbi.nlm.nih.gov
The importance of effective doctor-patient communication is well established; however, rigorous evaluations of its association with patient-reported outcomes among seriously ill patients are needed....
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RT @YoSoyRobertMera: @TroyCityHall There are bad, awful cops across the land. And then there is Taylor Gamache. God help the citizens where….
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Clinician and Patient Perspectives on a Patient-Facing Online Breast Cancer Symptom Visualization Tool
pubmed.ncbi.nlm.nih.gov
Clinician and patient involvement was critical for refinement of the breast cancer symptom explorer and provided insights into its future use and evaluation of the tool in clinical decision making.
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Feasibility of frequent monitoring of symptoms using the PRO-CTCAE in the NRG-BR004 clinical trial
pubmed.ncbi.nlm.nih.gov
NCT03199885 (https://clinicaltrials.gov/study/NCT03199885).
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Edelen MO, Hays RD, Herman PM. Introducing the PROMIS-16 profile 1.0. Qual Life Res. 2025 Jan 20. doi: 10.1007/s11136-024-03885-9 #PROMIS
pubmed.ncbi.nlm.nih.gov
Introducing the PROMIS-16 profile 1.0
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A perspective on the use of patient-reported experience and patient-reported outcome measures in ambulatory healthcare #PROMIS #CAHPS @AHRQNews @HealthPromis @PromisHealth
tandfonline.com
Patient-reported experience measures (PREMs) are patient reports about their healthcare, whereas patient-reported outcome measures (PROMs) are reports about their functioning and well-being regardi...
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Nominations Solicited for 2024-25 Alvin R. Tarlov & John E. Ware Jr. Doctoral Dissertation and Post-Doctoral Awards in Patient-Reported Outcomes #25k #dissertion #postdoc #PROM #ISOQOL.
hal-health.org
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The current issue of Quality of Life Research has an egregious example of ignoring overlap between right-hand and left-hand variables.@ISOQOL.
link.springer.com
Quality of Life Research - Health-related quality of life (HRQoL) impacts of insomnia and depression (as separated entities) have been well investigated in previous studies. However, little is...
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Comparing Health Survey Data Cost and Quality Between Amazon's Mechanical Turk and Ipsos' KnowledgePanel @JMIR_ #KnowledgePanel
jmir.org
Background: Researchers have many options for web-based survey data collection, ranging from access to curated probability-based panels, where individuals are selectively invited to join based on...
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Evaluation of the Reliability and Validity of the Retirement Knowledge Scale (RKS) #retirement #knowledge #finances
pubmed.ncbi.nlm.nih.gov
The Retirement Knowledge Scale (RKS) consists of 10 questions that assess three aspects of financial planning for retirement: reflection about retirement plans, engagement with information on...
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Randomized adult patients at an urban safety net provider to the CAHPS® Clinician and Group Survey 3.1 or an “EZ” survey created using plain language principles. #CAHPS #survey #methods
journals.sagepub.com
Completing self-administered patient experience surveys is challenging for many patients. We randomized adult patients receiving care from an urban safety net p...
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Our suggestion is to separate the measurement of whole person health (WPH)-the end goal or ultimate outcome we want to improve and/or maintain-from the measurement of WPH determinants-. things that can be intervened upon to maximize WPH.#PROMIS
pubmed.ncbi.nlm.nih.gov
There is growing interest in moving away from a reductionistic view of the person and the health services they need to focus on improving the health of the whole person. However, there needs to be...
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At both time points, the correlations of PROPr scores with physical and mental health summary scores from the PROMIS-29 and 4 pain scales were within 0.01 between profiles. #PROMIS #PROPr
pubmed.ncbi.nlm.nih.gov
PROPr scores from the 16-item PROMIS profile measure are similar to PROPr scores from the longer PROMIS-29 + 2.
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Results provide between-level support for the longitudinal and predictive validity of the PROMIS-16. Similar average baseline scores and changes over time were observed between PROMIS-16 and PROMIS-29 + 2. #PROMIS #HRQOL.
pubmed.ncbi.nlm.nih.gov
Results provide between-level support for the longitudinal and predictive validity of the PROMIS-16. Similar average baseline scores and changes over time were observed between PROMIS-16 and PROMIS...
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Patients mailed the HIPAA form were less likely to enroll (10.2% vs. 14.8%, p < 0.001). The standard HIPAA form scored at the 12th grade reading level, . , and only met 50% of Federal Plain Language Guideline Checklist items.
pubmed.ncbi.nlm.nih.gov
The inclusion of a standard HIPAA authorization in mailed enrollment packets for a large pragmatic trial led to lower rates of study enrollment. This study informs how HIPAA authorization forms...
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Commentary on “When (not) to rely on the reliable change index.” Clinical Psychology: Science and Practice, 31(3), 367–369. #RCI #change #individual #PRO.
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Associations of the Consumer Assessment of Healthcare Providers and Systems (CAHPS) Clinician and Group Survey Scores with Interventions and Site, Provider, and Patient Factors: #CAHPS #QI
pubmed.ncbi.nlm.nih.gov
Patient experience is a key aspect of care quality. Since the 2007 release of the Consumer Assessment of Healthcare Providers and Systems Clinician and Group (CG-CAHPS) survey, no systematic review...
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