RFK IDDRC
@RFK_IDDRC
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We work to improve the lives of children with intellectual disabilities through cutting-edge and integrative research efforts at Einstein/Montefiore.
Bronx, NY
Joined September 2021
Meeting Yiannis inspired two scientists to study his disease, fighting for funding & a future where every child has a chance.💙#RareDisease #GeneTeam.
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🧬The Gene Team connects families with scientists & students to bridge the gap between research & the real-world impact of rare brain diseases.
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New Video Alert!🎥.Enjoy the IDD Gene Team's new short documentary, following four-year-old Yiannis Papazoglou and his parents connecting with the Gene Team about his rare disease, caused by a mutation in the IRF2BPL gene.
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Join Einstein for The Kids at Bronx Chipotle (1776 Eastchester Rd) on Oct 2, 4-8pm! 25% of sales will support IRF2BPL research & families affected by this rare neurodevelopmental disorder. Show the flyer or use code ZLBW273 for online orders.
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Hayden himself has a rare condition, which inspired him to pursue this research. His personal journey fuels his dedication to making a difference in the lives of others with similar challenges. 💪❤️. #PersonalJourney #RareCondition #Inspiration #IDDRC #DisabilityAwareness.
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Hayden's mentor, Julie Secombe, @flygirl2308, leads the @RFK_IDDRC signature research project. Her work is crucial in advancing our understanding of gene mutations and developing new treatments. 🌟🔬. #Mentorship #ResearchLeadership #GeneMutation #IDDRC #ScientificBreakthroughs.
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🌟 Inspiring Story Alert! Dive into the journey of @hamhatch and his focus on the KDM5C gene mutation, paving the way for new treatments.🧬✨. 📽️Watch Hayden's story and learn about the groundbreaking research at our IDDRC: #RareDisease #IDDRC #KDM5C.
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Let's celebrate the legacy of President Kennedy and the Kennedy family at Einstein’s Rose F. Kennedy Center! Since 1970, our center has been at the forefront of groundbreaking initiatives in intellectual and developmental disabilities research, education/advocacy, and training.
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Join us for RFK Day!. 🗓️ Friday, May 17th, 2024.🕰️ Presentation - Dr. Shafali Jeste & Panel Discussion: 1:30-4:00 PM.🎨 Poster Session & Reception: 4:00-5:00 PM.📍 LeFrak Auditorium & Main Street Space
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Learn more about the transformative impact of "Operation IDD Gene Team" in our Research Brief: #RareDiseases #Genetics #IDD #Research #Collaboration #Empowerment @cabanam @EinsteinMed @MontefioreNYC @SMolholm @MontefiorePeds @RFK_Center @CNL_Einstein.
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Published in the Journal of Neurodevelopmental Disorders, this innovative program offers hope and guidance to families while advancing research into rare genetic diseases.
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Operation IDD Gene Team brings together families, physicians, and scientists to foster understanding and empowerment. Through collaborative meetings, families share their experiences, physicians discuss clinical implications, and scientists provide insights into gene biology.
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The RFK IDDRC unveils its groundbreaking "Operation IDD Gene Team" program developed by Dr. Steven Walkley. 🧬 This multidisciplinary initiative supports families affected by rare genetic diseases causing intellectual & developmental disability (IDD).
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RT @MontefiorePeds: Congratulations to everyone matching today! We are excited to work with those of you who will be spending time at CHAM….
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RT @cabanam: RT @ScreenPlusNY re: #ACMGMtg24, proud of the work of @MPWasserstein & team at @MontefiorePeds & @EinsteinMed! . @EpgntxEinste….
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RT @KavliAtYale: 📢Check out @jess_cardin's feature on @URNeuroscience's @JohnnyFoxe's podcast! In the episode, the two discuss the cellular….
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