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RFK IDDRC Profile
RFK IDDRC

@RFK_IDDRC

Followers
68
Following
199
Media
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Statuses
226

We work to improve the lives of children with intellectual disabilities through cutting-edge and integrative research efforts at Einstein/Montefiore.

Bronx, NY
Joined September 2021
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@RFK_IDDRC
RFK IDDRC
3 months
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@RFK_IDDRC
RFK IDDRC
3 months
Join us for a special in-person public forum: Understanding Profound Autism ๐Ÿง  ๐Ÿ—“ Sunday, August 17th ๐Ÿ“Hunter College (NYC) ๐ŸŽคOpen Q&A moderated by Dr. Sophie Molholm Free & open to all! Registration Required: https://t.co/cN3qdtTRqX
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@RFK_IDDRC
RFK IDDRC
9 months
Meeting Yiannis inspired two scientists to study his disease, fighting for funding & a future where every child has a chance.๐Ÿ’™#RareDisease #GeneTeam
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@RFK_IDDRC
RFK IDDRC
9 months
๐ŸงฌThe Gene Team connects families with scientists & students to bridge the gap between research & the real-world impact of rare brain diseases.
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@RFK_IDDRC
RFK IDDRC
9 months
New Video Alert!๐ŸŽฅ Enjoy the IDD Gene Team's new short documentary, following four-year-old Yiannis Papazoglou and his parents connecting with the Gene Team about his rare disease, caused by a mutation in the IRF2BPL gene.
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@RFK_IDDRC
RFK IDDRC
1 year
Let's make a difference! #Fundraiser #IRF2BPL #Bronx
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@RFK_IDDRC
RFK IDDRC
1 year
Join Einstein for The Kids at Bronx Chipotle (1776 Eastchester Rd) on Oct 2, 4-8pm! 25% of sales will support IRF2BPL research & families affected by this rare neurodevelopmental disorder. Show the flyer or use code ZLBW273 for online orders.
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@RFK_IDDRC
RFK IDDRC
1 year
Hayden himself has a rare condition, which inspired him to pursue this research. His personal journey fuels his dedication to making a difference in the lives of others with similar challenges. ๐Ÿ’ชโค๏ธ #PersonalJourney #RareCondition #Inspiration #IDDRC #DisabilityAwareness
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@RFK_IDDRC
RFK IDDRC
1 year
Hayden's mentor, Julie Secombe, @flygirl2308, leads the @RFK_IDDRC signature research project. Her work is crucial in advancing our understanding of gene mutations and developing new treatments. ๐ŸŒŸ๐Ÿ”ฌ #Mentorship #ResearchLeadership #GeneMutation #IDDRC #ScientificBreakthroughs
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@RFK_IDDRC
RFK IDDRC
1 year
๐ŸŒŸ Inspiring Story Alert! Dive into the journey of @hamhatch and his focus on the KDM5C gene mutation, paving the way for new treatments.๐Ÿงฌโœจ ๐Ÿ“ฝ๏ธWatch Hayden's story and learn about the groundbreaking research at our IDDRC: https://t.co/mgm6JVk2QL #RareDisease #IDDRC #KDM5C
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@RFK_IDDRC
RFK IDDRC
2 years
Let's celebrate the legacy of President Kennedy and the Kennedy family at Einsteinโ€™s Rose F. Kennedy Center! Since 1970, our center has been at the forefront of groundbreaking initiatives in intellectual and developmental disabilities research, education/advocacy, and training.
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@RFK_IDDRC
RFK IDDRC
2 years
Join us for RFK Day! ๐Ÿ—“๏ธ Friday, May 17th, 2024 ๐Ÿ•ฐ๏ธ Presentation - Dr. Shafali Jeste & Panel Discussion: 1:30-4:00 PM ๐ŸŽจ Poster Session & Reception: 4:00-5:00 PM ๐Ÿ“ LeFrak Auditorium & Main Street Space
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@RFK_IDDRC
RFK IDDRC
2 years
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@RFK_IDDRC
RFK IDDRC
2 years
Published in the Journal of Neurodevelopmental Disorders, this innovative program offers hope and guidance to families while advancing research into rare genetic diseases.
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@RFK_IDDRC
RFK IDDRC
2 years
Operation IDD Gene Team brings together families, physicians, and scientists to foster understanding and empowerment. Through collaborative meetings, families share their experiences, physicians discuss clinical implications, and scientists provide insights into gene biology.
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@RFK_IDDRC
RFK IDDRC
2 years
The RFK IDDRC unveils its groundbreaking "Operation IDD Gene Team" program developed by Dr. Steven Walkley. ๐Ÿงฌ This multidisciplinary initiative supports families affected by rare genetic diseases causing intellectual & developmental disability (IDD).
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@MontefiorePeds
Montefiore Pediatrics
2 years
Congratulations to everyone matching today! We are excited to work with those of you who will be spending time at CHAM and Einstein, welcome to the #CHAMily ! ๐ŸŽ‰๐Ÿ‘ #MatchDay2024 #pediatricresidency #medicaleducation
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@einstein_mstp
Einstein MSTP
2 years
Another incredible match day! Congratulations to our class of 2024!!๐Ÿ’™๐ŸŽ“
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