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REOLUT - Rare Disease Research UK Profile
REOLUT - Rare Disease Research UK

@REOLUT

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Official Rare Disease UK REOLUT account. Improving lives of people with rare conditions of the lower urinary tract.

Manchester, UK
Joined May 2024
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@REOLUT
REOLUT - Rare Disease Research UK
10 months
📢CALL FOR ABSTRACTS 🚨2nd REOLUT Conference 📅26 March 2025 🏢Hyatt Regency Manchester Spaces are filling up to present your work! Don't forget to.. ✨Register: https://t.co/Z6k1NWVisL ✨Submit your abstract: https://t.co/He1r543qHK @GeneticBill @drmelaniechan @RDRUKHub
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@REOLUT
REOLUT - Rare Disease Research UK
8 months
The REOLUT node is delighted to attend the @RDRUKHub 2nd Annual Conference at the Hyatt Regency, Manchester. Our Node Lead, @GeneticBill, opened the event with a speech introducing the Manchester nodes and welcoming attendees. Looking forward to an insightful conference! #RDRUK
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@REOLUT
REOLUT - Rare Disease Research UK
8 months
🚨1 WEEK TO GO & SPEAKER ANNOUNCEMENT🚨 🎙️Mr. Sebastian Osorio Rico - University of Antioquia 📢“Living with a REOLUT condition" ✨2nd REOLUT Conference 🗓️26th March 2025 🏨 Hyatt Regency, Manchester 🎟️Online registration: https://t.co/Z6k1NWUKDd @sebas_osorio29 @RDRUKHub
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@REOLUT
REOLUT - Rare Disease Research UK
9 months
🚨1 WEEK LEFT TO REGISTER IN-PERSON 🚨 ✨2nd REOLUT Conference 🗓️26th March 2025 🏨 Hyatt Regency, Manchester 🎟️Registration: https://t.co/Z6k1NWUKDd @GeneticBill @drmelaniechan @RDRUKHub
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@REOLUT
REOLUT - Rare Disease Research UK
9 months
🚨Keynote Speaker Announcement 🚨 🎙️Dr. Sean Gavan - University of Manchester 📢“Health economics of gene therapy for a rare urinary tract disease" ✨2nd REOLUT Conference 🗓️26th March 2025 🏨 Hyatt Regency, Manchester 🎟️Tickets: https://t.co/Z6k1NWUKDd @sean_gavan @RDRUKHub
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@REOLUT
REOLUT - Rare Disease Research UK
9 months
📢FINAL CALL FOR ABSTRACTS 📢 🚨2nd REOLUT Conference 🏨Hyatt Regency Manchester 1 week to go until the submission deadline! Don't forget to.. ✨Register: https://t.co/Z6k1NWVisL ✨Submit your abstract: https://t.co/He1r543qHK @GeneticBill @drmelaniechan @RDRUKHub
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@REOLUT
REOLUT - Rare Disease Research UK
10 months
🚨Keynote Speaker Announcement 🚨 🎙️Prof. Jenny Rohn - UCL 📢"How to model the lining of the human urinary tract in the laboratory." ✨2nd REOLUT Conference 🗓️26th March 2025 🏨 Hyatt Regency, Manchester 🎟️Tickets: https://t.co/Z6k1NWUKDd @JennyRohn @RDRUKHub
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@REOLUT
REOLUT - Rare Disease Research UK
10 months
📢AGENDA ANNOUNCED 📢 🚨2nd REOLUT Conference 🗓️26 March 2025 📷Hyatt Regency, Manchester Registration - https://t.co/Z6k1NWVisL Poster submission - https://t.co/He1r543qHK @GeneticBill @drmelaniechan @RDRUKHub #RareDisease #PPIE
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@RDRUK_ELSI
ELSI - Rare Disease Research UK
11 months
📢REGISTRATION NOW OPEN📢 🚨1st ELSI Conference 🗓️26 March 2025 🏢Hyatt Regency, Manchester Please register your attendance for free using the link or QR code below https://t.co/FIoNLlPguY @ramonazmoldovan @RDRUKHub @annekeluc #RareDisease #ELSI #rareconditions
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@REOLUT
REOLUT - Rare Disease Research UK
1 year
📢REGISTRATION NOW OPEN📢 🚨2nd REOLUT Conference 🗓️26 March 2025 🏢Hyatt Regency, Manchester Please register your attendance using the link or QR code below https://t.co/Z6k1NWUKDd @GeneticBill @drmelaniechan @RDRUKHub #RareDisease #PPIE
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@eshgsociety
European Society of Human Genetics (ESHG)
1 year
A warm welcome from the new president of the #societyforhumangenetics @GeneticBill! As the website is already live, check out the first information about #eshg2025 such as preliminary programme, confirmed speakers and plan your visit to Milan already now:
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2025.eshg.org
ESHG 2022 COVID-19 Information Discover the ESHG 2025 - Hybrid Conference programme. We are proud to announce the confirmed 2025 speakers. Stay updated on matters related to the ESHG society. Thank...
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@REOLUT
REOLUT - Rare Disease Research UK
1 year
📅 Save the Date! 📢Our 2nd Annual Conference is happening on 26 March 2025 at the Hyatt Regency, Manchester (same day as @RDRUK_ELSI and @EpiGenRare Conferences & following the RDRUK Node Annual Conference on 25 March 2025). 📷Stay tuned for registration and more information!
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@drmelaniechan
Melanie Chan
1 year
@CKDnurse_Joana
Joana Teles
1 year
Podcast alert 📢 Kidney care made easy for primary care clinicians 🩺How severe is a potassium of 6 on a Friday evening? When to stop RAASi or start potassium? Are restrictive diets needed? https://t.co/AcD28v0JIg @HealthierNWL @ImperialNHS
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@RDRUK_ELSI
ELSI - Rare Disease Research UK
1 year
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jobs.manchester.ac.uk
@ramonazmoldovan
Ramona Moldovan
1 year
📢 New post 📢 Research Associate: ELSI in Genomics 📝Opportunity to join our team in Manchester. Role focused on understanding needs of families taking part in clinical trials for rare conditions @RDRUKHub @RDRUK_ELSI @The_MRC @NIHRresearch @FBMH_UoM https://t.co/4a5I4Ukaid
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@ramonazmoldovan
Ramona Moldovan
1 year
📢 New post 📢 Research Associate: ELSI in Genomics 📝Opportunity to join our team in Manchester. Role focused on understanding needs of families taking part in clinical trials for rare conditions @RDRUKHub @RDRUK_ELSI @The_MRC @NIHRresearch @FBMH_UoM https://t.co/4a5I4Ukaid
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jobs.manchester.ac.uk
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@johnasayer
john sayer
1 year
@UKKidney @TimothyBowen3 @RenalPharmacy @annukrenal @BAPNnephrology @RenalSpRClub @bda_renal When submitting proposals please consider session proposals that include adults and CYP to encourage a joined-up focus and facilitate greater participation of paediatric nephrology teams at the meeting! @BAPNnephrology @UKKidney @Kidney_Research
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@RDRUK_ELSI
ELSI - Rare Disease Research UK
1 year
Very happy to have hosted Autumn 2024 @GenethicsForum . Our lead PI @ramonazmoldovan gave a great overview of the ELSI Node. Thank you to everyone who attended and joined in the discussions, especially our plenary speaker @FOPFriends
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@RDRUKHub
Rare Disease Research UK
1 year
🌟Would you like to share your views about clinical trials for rare conditions? Apply to join the focus group now! Application deadline: 13 October
@GeneticAll_UK
Genetic Alliance UK
1 year
How should clinical trials be set up to work well for people with rare conditions? Apply to join a focus group of people with rare conditions or carers at The Exchange in Birmingham on 19 November 2024 (10:30 - 14:30). 👉 https://t.co/mJJJ49g4i2 @RDRUKHub @CRCTU
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@REOLUT
REOLUT - Rare Disease Research UK
1 year
Great opportunity for any rare disease early career researchers!
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@REOLUT
REOLUT - Rare Disease Research UK
1 year
Congratulations to one of our Co-Investigators Dr Neil Roberts for securing another prestigious grant that aims to develop a new gene therapy for the rare bladder disease, Urofacial Syndrome.
@ManchesterBRC
NIHR Manchester Biomedical Research Centre
1 year
👏 Congratulations to Dr Neil Roberts on being awarded a @The_MRC grant to develop a new gene therapy for the rare bladder disease, urofacial syndrome. This follows his project funded by Manchester BRC's Next Generation Therapeutics Theme through @Translation_Mcr’s A2E scheme.
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