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@Preventable_EU

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Preventable Horizon Europe Project Sustainable Care for Rare Tumour Risk Syndromes (RTRS)

Joined March 2023
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@Preventable_EU
Preventable
3 days
๐Ÿงฌ Myth vs Fact: Genetic Cancer Syndromes Awareness and prevention are key - no matter your background. ๐Ÿ’™ #Preventable #RareTumourRiskSyndromes #RTRS #RareDiseases #CancerAwareness #Genetics #HereditaryCancer #CancerPrevention #HealthEducation #MythVsFact #PublicHealth
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@Preventable_EU
Preventable
5 days
๐Ÿ“ข Registration is now OPEN for the XXXII Porto Cancer Meeting โ€“ Bridging Research and Policy in Hereditary Cancer ๐Ÿ—“ 22โ€“24 April 2026 ๐Ÿ“ i3S & Super Bock Arena โ€“ Pavilhรฃo Rosa Mota, Porto, Portugal ๐Ÿ”— Event info: https://t.co/L878BbIn5P ion #PortoCancerMeeting #PREVENTABLE
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@Preventable_EU
Preventable
7 days
๐ŸŒ #UniversalHealthCoverageDay Today, we stand with the global call for healthcare that protects everyone, everywhere. โœจ Health for all. Prevention for all. Protection for all. #UHCDay #HealthForAll #LeaveNoOneBehind #PREVENTABLE #RTRS #RareDiseases #HereditaryCancer
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@Preventable_EU
Preventable
15 days
Welcome, December 2025! ๐ŸŽ‰ Share your thoughts, experiences, or hopes for the future in the comments below. Let us close 2025 together with insight, connection, and purpose. ๐Ÿ’™ #Preventable #RTRS #RareDiseases #CommunityVoices #HaveYourSay #TogetherWePrevent #December2025
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@Preventable_EU
Preventable
23 days
๐Ÿงฌ Myth vs Fact: Genetic Cancer Syndromes โŒ Myth: If cancer runs in my family, I will definitely get it. โœ”๏ธ Fact: See the visual below! Empower yourself with knowledge. ๐Ÿ’™ #Preventable #RTRS #RareDiseases #CancerAwareness #Genetics #HealthEducation #MythVsFact
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@Preventable_EU
Preventable
25 days
โœจWhat Do They Say About PREVENTABLE? From Carolina Di Fabrizio - Assistant researcher, Universidade NOVA de Lisboa - SBE What about you? Share your thoughts with us in the comments below! #WhatDoTheySay #WDTS #PREVENTABLE #RareTumourRiskSyndromes #RTRS #RareDiseases
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@Preventable_EU
Preventable
28 days
๐Ÿงฌ Myth vs Fact: Genetic Cancer Syndromes โŒ Myth: Most cancers are hereditary. โœ”๏ธ Fact: See the visual below! Understanding the difference helps empower informed decisions and encourages proactive health habits. ๐Ÿ’™ #Preventable #RTRS #RareDiseases #HealthEducation #MythVsFact
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@Preventable_EU
Preventable
1 month
โœจ What Do They Say About PREVENTABLE? From Amalia Nicole Nanciu - Resident Physician & Clinical Geneticist in Training Institut fรผr Humangenetik, Universitรคtsklinikum Bonn
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@Preventable_EU
Preventable
1 month
๐Ÿ“ข Donโ€™t Miss This Important Event! Bridging Research and Policy in Hereditary Cancer ๐Ÿ“… 22โ€“24 April 2026 ๐Ÿ“ i3S & Super Bock Arena โ€“ Pavilhรฃo Rosa Mota, Porto, Portugal ๐Ÿ”— https://t.co/L878BbIn5P We look forward to welcoming you in Porto! #PortoCancerMeeting #PREVENTABLE
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@Preventable_EU
Preventable
1 month
๐Ÿ’ก Key Takeaways from PREVENTABLE Thematic Webinar #2 ! ๐ŸŽฅ Missed the webinar? Watch it here: https://t.co/HtMzqfQ8zu #PREVENTABLE #RTRS #RareTumourRiskSyndromes #RTRS #RareDiseases #PsychosocialCare #HealthEquity #PatientSupport #EUHealthPolicy #ThematicWebinar
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@Preventable_EU
Preventable
1 month
Judith Balmaรฑa, Head of the Hereditary Cancer Program, Hospital Vall dโ€™Hebron, reminds us why PREVENTABLE exists, to advance research, collaboration, and innovation that make hereditary cancer prevention a reality. #WhatDoTheySay #WDTS #PREVENTABLE #RareTumourRiskSyndromes #RTRS
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@Preventable_EU
Preventable
1 month
๐ŸŽฅ Missed our #ThematicWebinar2? ๐Ÿ’ก Ensuring and Advancing Sustainable Psychosocial Care and Support Systems for People Affected by RTRS ๐Ÿ”— Watch now: https://t.co/HtMzqfQ8zu #PREVENTABLE #RareTumourRiskSyndromes #RTRS #RareDiseases #PsychosocialCare #HealthEquity
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@Preventable_EU
Preventable
1 month
๐Ÿ’œ Today is #WorldNETCancerDay! Letโ€™s raise awareness of Neuroendocrine Tumors (NETs), rare and often hard to detect. Weโ€™re committed to advancing prevention, early diagnosis & care for those affected by Rare Tumour Risk Syndromes (RTRS). #NETCancer #RTRS #RareDiseases
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@Preventable_EU
Preventable
1 month
The PREVENTABLE project will showcase a poster at the 18th European Public Health Conference in Helsinki (11โ€“14 Nov 2025)! It highlights how health system structure shapes Rare Tumour Risk Syndrome care, developed by EHMA. Details๐Ÿ‘‰: https://t.co/B4tWIq4WXE #EPH2025 #EHMA
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@Preventable_EU
Preventable
2 months
๐Ÿ“ข Tomorrow! - Thematic Webinar #2 ๐Ÿ’ฌ Ensuring and Advancing Sustainable Psychosocial Care and Support Systems for People Affected by RTRS ๐Ÿ“Œ Register here: https://t.co/MaYtqOajrx ๐Ÿ”— Read more here: https://t.co/M2Sqyp8Ueq #PREVENTABLE #RareDiseases #PsychosocialCare
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@Preventable_EU
Preventable
2 months
๐Ÿ“ข 2 Days to go! - #ThematicWebinar2 ๐Ÿ’ฌ Ensuring and Advancing Sustainable Psychosocial Care and Support Systems for People Affected by RTRS ๐Ÿ“Œ Register here: https://t.co/MaYtqOajrx ๐Ÿ“… 29 October 2025 ๐Ÿ•‘ 14:00โ€“15:00 CEST (Brussels time) #PREVENTABLE #RTRS
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@Preventable_EU
Preventable
2 months
๐ŸŽ—๏ธ Today we mark #PHTS Awareness Day, raising visibility for those living with PTEN Hamartoma Tumour Syndrome. We work to improve prevention, care & equity for people with Rare Tumour Risk Syndromes across Europe. ๐Ÿ’œ #RareDiseases #RTRS #CancerPrevention #HealthEquity
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@Preventable_EU
Preventable
2 months
๐ŸŽ™๏ธ Meet the Speaker: Mariska, Interim Chairwoman of PTEN Belgiรซ/Nederland ๐Ÿ—“๏ธ 29/10/25 | 14:00โ€“15:00 CEST (Brussels time) ๐Ÿ’ก Ensuring and advancing sustainable psychosocial care and support systems for people affected by RTRS ๐Ÿ”— Register now: https://t.co/MaYtqOaRh5
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@Preventable_EU
Preventable
2 months
๐ŸŽ™๏ธ Meet the Speaker: Jennifer Perry, President, Co-founder & Patient Advocate at (LFSA) ๐Ÿ—“๏ธ 29/10/25 | 14:00โ€“15:00 CEST (Brussels time) ๐Ÿ’ก Ensuring and advancing sustainable psychosocial care and support systems for people affected by RTRS ๐Ÿ”— Register now: https://t.co/MaYtqOaRh5
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