Pitt Hopkins Research Foundation
@PittHopkins
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Dedicated to Pitt Hopkins research & treatment, and to creating a network of friends & supporters of those with PTHS. Join us on FB @ https://t.co/f6wLuyrtXx.
Joined February 2014
📅Mark your calendars! The 2026 Pitt Hopkins Family Conference is going VIRTUAL!. More access, more connection—same heart & hope. Join us for panels, research updates, support sessions & more—all online! .#PittHopkins #FamilyConference2026
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New from the Pitt Hopkins Research Foundation!. * Latest research breakthroughs.* Upcoming conferences.* Community highlights. Read the full newsletter:
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So very honored to announce The Pitt Hopkins Research Foundation's inaugural BE BETTER award in honor of Victor Pauca. You can read more on our Facebook page here:
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#PittHopkins Census Count, end of quarter 1 in 2025. • 1,450 diagnosed with Pitt Hopkins syndrome 💙.• 54 diagnosed with Pitt Hopkins-Like syndrome (1 or 2) 💙.• 71 different countries🌎.• 48 states in the USA🇺🇸.• 0-52 years old🙋‍♀️🙋.More details
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We are happy to share this news from Neuren today! . Neuren Pharmaceuticals announced that the US FDA has granted Fast Track designation for NNZ-2591 for the treatment of Pitt Hopkins syndrome. #pitthopkins #neuren #raredisease #clinicaltrial
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Pitt Hopkins Census Count:.• 1,420 diagnosed with Pitt Hopkins syndrome 💙.• 51 diagnosed with Pitt Hopkins-Like syndrome (1 or 2) 💙.• 69 different countries🌎.• 48 states in the USA🇺🇸.• 0-52 years old🙋‍♀️🙋.More info here: #PittHopkins #raredisease.
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We are thrilled to announce the Million Dollar Bike Ride 2024 grant awardee, Dr. Simone Mesman! .Details of the grant can be found here: #MDBR #PittHopkins #raredisease #research
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RT @WCWCMN: Amazing night raising money for @PittHopkins. $3,005 raised, bringing our Q4 total to $13,500. Thank you @brownforman for this….
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Giving Tuesdayđź“Ł.YOUR DONATION IS SO MEANINGFUL TO the Pitt Hopkins Research Foundation . Reasons #3. To Give:.We make every single one of your dollars count. We've accomplished groundbreaking progress that outshines organizations with far greater resources.
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Giving Tuesdayđź“Ł.YOUR DONATION IS SO MEANINGFUL TO the Pitt Hopkins Research Foundation . Reasons #2. To Give:.We are so incredibly close to meaningful treatments. Not decades away. Not years away. MONTHS away. Our first gene therapy trial is set to launch in 2025.
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Giving Tuesdayđź“Ł.YOUR DONATION IS SO MEANINGFUL TO the Pitt Hopkins Research Foundation . Reasons 1. We are the ONLY research organization in the world devoted to finding a cure for the debilitating effects of Pitt Hopkins Syndrome.
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YOUR DONATION IS SO MEANINGFUL TO the Pitt Hopkins Research Foundation . Reasons 3. We make every single one of your dollars count. We've accomplished groundbreaking progress that outshines organizations with far greater resources.
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YOUR DONATION IS SO MEANINGFUL TO the Pitt Hopkins Research Foundation . Reasons 2. We are so incredibly close to meaningful treatments. Not decades away. Not years away. MONTHS away. Our first gene therapy trial is set to launch in 2025.
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YOUR DONATION IS SO MEANINGFUL TO the Pitt Hopkins Research Foundation . Reasons 1. We are the ONLY research organization in the world devoted to finding a cure for the debilitating effects of Pitt Hopkins Syndrome.
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We know you have many giving options this Tuesday and every non-profit is vying for your attention -- and your donation. Reasons why YOUR DONATION IS SO MEANINGFUL TO the Pitt Hopkins Research Foundation…
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Our VPs, Theresa Pauca & Jessica Fletcher, along with the @Mahzi team, visited @Resilience this past week to present about #PittHopkins & learn about the manufacturing of Pitt Hopkins gene therapy vectors! Thank you Resilience for having us! #genetherapy #hope #team
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Pitt Hopkins Awareness Day . We hope you'll consider making a donation today in honor of all of those who suffer from this debilitating disease. Your gift is so much more than money-- it is hope. We can never thank you enough for your support!.#pitthopkins
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Our Pitt Hopkins ROADMAP to a CURE. be proud of how far we’ve come, and have faith in how far we’ll go. Continuing to fight for miracles until we find a cure!. #PittHopkins #neverstop #nevergiveup #research #hope #cure
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• Donate Today: • Get Involved: Help us turn hope into reality!.#PittHopkins #research #genetherapy #hope #MakeADifference
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