Photon Turtle
@PhotonTurtle
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∞/acc — Contributing to the singularity. Severe (LC19/MECFS). Recording fragments of my consciousness while I still can.
Joined April 2009
What started as a mild COVID infection has spiraled into an extremely severe case of Long COVID and Myalgic Encephalomyelitis. Over the past 2 years, I’ve suffered numerous life-altering seizures and have been hospitalized multiple times. The last seizure left me completely
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1) OMG we did it‼️‼️ In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands https://t.co/XxPQ9bQxI3
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The changes to the medical industry will be profound and will only accelerate. https://t.co/s4uYpn6rUG
politico.com
Pilot program will test how far patients and regulators are willing to trust AI in medicine.
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Thanks to AI specialized healthcare will finally become more accessible to everyone. It will be 1000x cheaper, more convenient and accurate than any human doctor. Coming very soon. https://t.co/ojakECWd5p
openai.com
A dedicated experience in ChatGPT designed for health and wellness.
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Before becoming severely disabled I was an engineer and built a lot of cool things (some of which millions of people are using now). Ever since a child I’ve loved science and the applications of it. It is not without fault or risks, but it is the only methodology that has allowed
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A new Stanford Medicine study shows why mRNA-based COVID-19 vaccines can cause myocarditis. https://t.co/wy6QO55HSu
med.stanford.edu
COVID-19 — and, less frequently, the mRNA-based COVID-19 vaccine — can cause inflamed heart tissue in some people. A new study implicates a pair of substances secreted by immune cells and proposes a...
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Severe and very severe ME/CFS patients are the sickest patients I’ve ever seen - even compared to septic transplant or end-stage cancer patients. The unrelenting suffering and lack of research or definitive treatments puts severe ME/CFS on another level. Nothing compares...
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The Long COVID Treatment Trial – Tirzepatide (LoCITT-T) is officially open for enrollment for people with Long COVID in: Alabama, Alaska, California, Florida, Illinois, Indiana, Michigan, Ohio, Pennsylvania, Texas, Utah https://t.co/K7yjhCfV3N 1/16
longcovid.scripps.edu
The Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is investigating the efficacy of repurposing this drug to treat Long COVID.
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It’s been really hard last few weeks. Symptoms and crashes really severe. I’m trying my best. I’m not sure who’s going to see this but I need a bit of light. 😞 #LongCovid #pwME
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New research has identified a potential biological cause for post-COVID fatigue/muscle fatigue. Scientists found that a molecule called soluble IL-2 receptor (sIL-2R), linked to immune activation, may directly harm mitochondria in muscle cells.
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#LongCOVID isn’t just “post-virus fatigue.” A new review maps out how the nervous system + immune system cross-talk drives symptoms like brain fog, dysautonomia, neuropathy & fatigue. It draws from autopsies, animal models & human data to piece together the neuroimmune puzzle.
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🧬 New finding: Low serum ROCK1 levels have been identified in our Long COVID and ME/CFS @amaticahealth cohort. ROCK1 is a regulatory protein involved in stress response, immune activity, and autophagy (cell recycling). Possibly having relevance in disease mechanisms.
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I joined @SecKennedy for a Long COVID roundtable focused on understanding and addressing this chronic condition impacting millions of Americans. I am grateful to @HHSgov and Secretary Kennedy for making this conversation a priority and to our researchers and innovators for
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Hi #pwLC and #pwME, if you are able please consider sending a blood sample to @amaticahealth. Please only do so if you can afford it and the draw doesn’t cause a crash (especially in severe patients). Providing this sample is all I can do in my current state. Objective data in
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The complement system detects & eliminates pathogens; however, when overactivated, it can become harmful to the host. Rafael Bayarri-Olmos et al. summarize the latest understanding of the role of complement in #LongCOVID pathogenesis (open access)👇🏼 (1/) https://t.co/7jdUVw7Ba7
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