National Coordinating Center for Epilepsy
@PedsEpilepsy
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The Center's mission is to support professionals working to improve access to coordinated, comprehensive, and quality care for children and youth with epilepsy.
Chicago, IL
Joined May 2018
Cortical, or cerebral, visual impairment (CVI) is a leading cause of pediatric visual impairment in developed economies. A new AAP clinical report provides information to help pediatricians/pediatric subspecialists identify children with CVI early on:
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Cerebral/Cortical Visual Impairment (CVI) is common in individuals with epilepsy. @EpilepsyFdn & CVI Now® created a resource on CVI and epilepsy, offering guidance on diagnosis and when to suspect CVI. Learn more here:
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Self-nominations for the 2025 Teens Speak Up event are open! Teens living with epilepsy or siblings of a person with epilepsy between 13-17 years old who are interested in advocating on behalf of the community should apply by November 4. Learn more here: https://t.co/rhYiYIHAVw
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Did you know that AMCHP is accepting video submissions for #AMCHP2025 workshops & skills-building sessions? Start planning your proposal now to share your work under any of the 14 subject-focused tracks by September 27 – the deadline will not be extended! https://t.co/WwEnL3tnao
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Your journey to managing seizures starts with understanding your unique needs. From tracking seizures to managing triggers, discover the tools and resources to help you live confidently with epilepsy. Learn more at https://t.co/7d0uPAgrKP
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Did you know: Nationwide, only 1 in every 3 children age 3-5 had a health care provider who asked their parents if they had concerns about the child’s #learning, #development, or #behavior. Find more data from the National Survey of Children’s Health at https://t.co/6KzStoTLyH.
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The digital technology industry must make design choices that prioritize the mental health, privacy and safety of children, a federal task force says. https://t.co/h3XA5OdHAi
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In honor of #SuicidePreventionMonth, join NIMH & @samhsagov on Sept. 11 for a livestream event on suicide prevention in healthcare settings. Learn about screening, intervention, and seeking help. Tune in on NIMH’s Facebook or YouTube. More info: https://t.co/6d9xpjUPrl
#SPM24
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Epilepsia New Articles - August 24, 2024 https://t.co/iJpAM136xC
#epilepsy #ILAE @IlaeWeb @epilepsiajourn @WileyNeuro
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Are you working on engaging diverse families in your work in meaningful ways? We identified three common mistakes organizations make when they engage diverse families and how to avoid these mistakes. Check out our new resource at https://t.co/EmRsrsn8Y5.
#FamilyEngagement
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Make epilepsy education a priority in your classroom with our School Personnel Training. Whether you're an experienced educator or just starting out, our Seizure Training covers seizure first aid, action plans, emergency protocols, and rescue therapies. https://t.co/TwPS7TVQLM
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The National Coordinating Center for Epilepsy featured five practices transforming care for children and youth with epilepsy, improving access to coordinated care with practical strategies others can adopt.
aap.org
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The National Coordinating Center for Epilepsy is excited to share the Sustainability Resource Guide. This guide offers a variety of perspectives on how pediatricians and other pediatric professionals can build sustainability efforts into their work.
aap.org
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You're not alone on your journey! Check out these epilepsy and pregnancy tools, resources, medical professionals and partners from the Epilepsy and Pregnancy Medical Consortium to help support healthy pregnancies for people with epilepsy. https://t.co/dw32X72OtH
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Whether you’re preparing your child for grade school or getting ready to head off to college with epilepsy, our "Back to School Success" webinar is for you! Join us on 8/28 at 12 p.m. ET to learn how to have a safe and successful school year. Register: https://t.co/5i0FBkmicM
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It's important to normalize conversations surrounding mental health so people can feel empowered to seek the help they need. These resources can help you feel more informed to talk about mental health with those in your life who may need your support. https://t.co/JZRbuwiX7S
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Reminder: Our "Telemedicine and #Epilepsy: Enhancing access and outcomes" webinar with the #ILAE Telemedicine Task Force is next week on Friday, 30 August at 12:30 UTC! Visit https://t.co/q0MNOM33OY for details and free registration.
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AES #EEG Essentials is a brand new FREE EEG curriculum for residents, technologists, and HCPs at any level! This curriculum is comprised of 25 modules spread across core, intermediate, and advanced curricula. Check it out: https://t.co/7fBp7MbPbF
#epilepsy #neurotwitter
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Join AMCHP's Family LEAD Committee tomorrow, August 20 at 3pm ET for a webinar on Measuring What Matters, as part of the Highlighting Family Leadership within Title V Webinar Series. Learn more and register for this and all the webinars in this series: https://t.co/ENPnAN6AcS
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Depression is a disorder of the brain that's more than just "feeling blue" for a few days. Help raise awareness about depression, learn the different types of depression, signs and symptoms, treatment options, and how to find help. https://t.co/Dl1mg1uv5N
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