Understanding Patient Data
@Patient_Data
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Research, advocacy and communication to make the way patient data is used more trustworthy.
London
Joined April 2017
📢 Understanding Patient Data secures a new five-year funding settlement! We are delighted to announce that, thanks to the generous support of our funders, we have secured funding for an additional five years. Read more 👇 https://t.co/HyAeotsb9Z
understandingpatientdata.org.uk
Understanding Patient Data supports conversations with the public, patients and healthcare professionals about the uses of health information for care and research.
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NEW RESEARCH📢 Today we're publishing the outputs from our project focusing on the experiences and perspectives of Gypsy, Roma, and Traveller communities on the collection and use of ethnicity data in health services. 🔗Explore the outputs here:
understandingpatientdata.org.uk
Understanding Patient Data supports conversations with the public, patients and healthcare professionals about the uses of health information for care and research.
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@SciTechgovuk UPD is scoping some research and engagement work around patient data and AI in the new year - get in touch if this is something you'd like to discuss with the team! 🧵7/7
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@SciTechgovuk More clarity is needed on how the Government plans to ensure health data is kept safe and secure, and members of the public need to be consulted to understand their perspectives on the uses of patient data for AI and ensure any access to data has public trust at the heart. 🧵6/7
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@SciTechgovuk Secretary Peter Kyle said in a statement that the NHS and goverment would "always be in control of data" and government sources have said that de-identified NHS data would only be included in the datasets made available "once privacy concerns [are] met". 🧵5/7
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Alongside making existing datasets available, the plan recommends the Government play an active role in shaping the creation of new datasets in strategically significant areas to enhance research in areas like disease recognition and predicting health outcomes. 🧵4/7
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In creating a National Data Library and recommends rapidly identifying public data sets to make available for AI researchers and innovators, exploring the use of synthetic data generation techniques for highly sensitive data sets. 🧵3/7
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Whilst not health-focused, the plan contains a few points relevant to health data, particularly as it relates to making high-quality data available for AI models👇 🧵2/7
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AI Opportunities Action Plan - what's in it for patient data? Yesterday, the Government published its plans to ramp up the adoption of artificial intelligence (AI) to boost economic growth and improve lives. Read more below 👇 🧵1/7
gov.uk
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New year, new health data policy announcements 📆 As part of wider reforms, the Government has announced plans for a new digital platform to make it easier to share up-to-date data between the NHS and adult social care providers. Read more👇
gov.uk
Immediate investment and reforms to improve adult social care, and Louise Casey appointed to head independent commission and build cross-party consensus.
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UPD countdown to Christmas day 15/15 🎁 It's the last day! We're signing off for our Christmas break, returning on 6th Jan 🗓️ We hope you all have wonderful holiday and new year celebrations🥳🎉🪩🍾 See you next year!👋
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UPD countdown to Christmas day 14/15 🎅 Today we say goodbye to our Head of UPD, Nicola Hamilton!🥲She has played a pivotal role in driving UPD forward since we moved to NHS Confed, and we wish her all the best🌟 Look out for details of our future plans in the new year!🥳
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UPD countdown to Christmas day 13/15 🎄 Health data policy can be complex, so we put together this explainer resource that breaks down what each one means for you and your data 🤔 Think we're missing something important? Get in touch!📨 https://t.co/QDBFy08tOy
understandingpatientdata.org.uk
Understanding Patient Data supports conversations with the public, patients and healthcare professionals about the uses of health information for care and research.
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UPD countdown to Christmas day 12/15 🎁 We've had a great reaction to our recent animation explaining SDEs and TREs, but did you know we have a whole host of animations explaining how data saves lives and improves care?🤔 📽️Explore the animations here:
understandingpatientdata.org.uk
Understanding Patient Data supports conversations with the public, patients and healthcare professionals about the uses of health information for care and research.
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UPD countdown to Christmas day 11/15 🎅 Routinely collected patient data can be used in many different ways to improve health and care - some of which are summarised below. To read more about what data is used for, visit our website: https://t.co/KpyRicEpL8
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UPD countdown to Christmas day 10/15🎄 @ICOnews has published an update on its trial of a revised approach to enforcement in the public sector, which favoured alternative enforcement action over fines . Have your say via the consultation below👇
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UPD countdown to Christmas day 9/15🎄 Check out this opportunity to be part of @NHSE’s Patient and Public Engagement and Communications Group, which acts as a sounding board and critical friend for key NHSE data programmes. Deadline is January 6th!⏰ 🔗 https://t.co/KDkbS3jJ3x
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UPD countdown to Christmas day 8/15 🎁 Today, we're highlighting a case study from our research on Integrated Care Systems' (ICSs) use of patient data. Click below to read more about Dorset ICS's Dorset Intelligence and Insight Service 👇
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UPD countdown to Christmas day 7/15: New guest blog! 🎄 In today’s UPD guest blog, @JohnTStats and Helen Strongman from @ehr_lshtm share their research and discuss their perspectives on the impact of opt-outs on health research. Read below!👇
understandingpatientdata.org.uk
Understanding Patient Data supports conversations with the public, patients and healthcare professionals about the uses of health information for care and research.
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