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Alliance for Patient Access Profile
Alliance for Patient Access

@patientaccess

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AfPA is a national network of policy-minded health care providers who advocate for patient-centered care.

Washington, DC
Joined October 2009
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@patientaccess
Alliance for Patient Access
2 days
#DYK? 1 in 3 asthma patients will have an anxiety disorder during their life. People with asthma need comprehensive care for both their respiratory condition and mental health. Learn more:
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@patientaccess
Alliance for Patient Access
3 days
The goal of reducing prescription drug spending is broadly supported, but the process of implementing Medicare Part B negotiations is filled with complexities. Learn more:
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@patientaccess
Alliance for Patient Access
3 days
Innovative medications known as biologics are changing the outlook for people living with challenging chronic conditions. Learn more:
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@patientaccess
Alliance for Patient Access
4 days
IgG4-RD is a devastating rare disease with no FDA-approved treatments yet. As new treatments become available, they can only help patients if they are accessible. Learn more:
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@patientaccess
Alliance for Patient Access
5 days
Autologous CAR T-cell therapy gives patients the best fighting chance against cancer. These treatments will be available to more patients under new FDA guidance. Learn more:
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healthpolicytoday.org
In a significant policy shift, the FDA has eliminated special protocols for a class of cancer treatments known as CAR T-cell therapies. This opens the door for more hospitals to offer them and more...
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@patientaccess
Alliance for Patient Access
6 days
Long-acting injectables can help those with mental health conditions by:. ✅Improving adherence.✅Minimizing side effects.✅Reducing the risk of hospitalization and overdose. Learn more:
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@patientaccess
Alliance for Patient Access
9 days
The challenges of a rare disease extend beyond physical symptoms. Patients’ mental health may worsen as they search for a diagnosis or learn their condition doesn’t have an available treatment. Learn more:
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@patientaccess
Alliance for Patient Access
9 days
Before starting a biologic, it's important to:. 🔬 Understand the treatment.💉 Learn about administration.💲 Plan for insurance and costs.📖 Make an informed decision. Learn more:
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@patientaccess
Alliance for Patient Access
10 days
When used appropriately, pathways can be a powerful tool in delivering consistent, high-quality cancer care. But they must remain that—a tool. Learn more:
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@patientaccess
Alliance for Patient Access
11 days
HCM is a genetic heart condition that causes the heart muscle to thicken, making it harder for the heart to relax and pump blood to the rest of the body. Learn more about HCM, or hypertrophic cardiomyopathy:
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@patientaccess
Alliance for Patient Access
13 days
#DYK? July is Minority Mental Health Awareness Month . The demand for mental health care has reached new highs, with many minority patients struggling to access care. Learn more during #MMHAM:
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healthpolicytoday.org
Mental health parity – the notion that insurers treat mental and physical health care equally – was already difficult to enforce. Now, it faces new obstacles. A May 9 court filing signaled that the...
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@patientaccess
Alliance for Patient Access
13 days
Heart disease is the leading cause of death in the United States, but some groups and some locations are more affected than others. By reducing disparities and ensuring equitable access for both primary and specialty care, policymakers can improve lives and health outcomes.
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@patientaccess
Alliance for Patient Access
16 days
For patients with a rare disease, the process of getting the right diagnosis is so difficult and time-consuming that it has a name: the diagnostic odyssey.
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@patientaccess
Alliance for Patient Access
18 days
#DYK? There are currently over 10,000 rare diseases, 95% of which have no approved treatments. Friedreich’s ataxia is one of the few with a treatment option, but getting access to the right treatment can be a complicated path for FA patients. Read more:
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@patientaccess
Alliance for Patient Access
20 days
#DYK? Hypertrophic cardiomyopathy can also influence a patient's mental health. #HCM patients were over 3x more likely to be diagnosed with at least one mental health condition, making it harder to manage and seek appropriate care. Learn more:
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@patientaccess
Alliance for Patient Access
23 days
Patients with hepatitis C may face underlying challenges such as:. 💊 History of substance use disorder.💵 Economic hardships.🧠 Mental health struggle. Patients need care that is comprehensive and addresses all of their broader circumstances. Learn more:
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@patientaccess
Alliance for Patient Access
25 days
People with obesity can experience 3x higher liver fat content and 7.59x higher risk of fatty liver disease, causing important liver functions to slow, triggering weight gain and continuing the cycle of obesity. Read more:
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@patientaccess
Alliance for Patient Access
27 days
#DYK? Hepatitis C kills 15,000 Americans a year, but it’s 95% curable. A new bill would bring treatment to those who need it most. Read more:
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healthpolicytoday.org
A proven model for curing hepatitis C could be going national, thanks to a bipartisan proposal in Congress.
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