Matthew Tyler
@PalliDad
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Husband, dad, #PalliativeCare physician, gamer. Tweets are my own. #hapc
Chicago, IL
Joined September 2018
So many patients/caregivers tell me they never know what to ask their doctors - I want to change that. My goal is to empower patients/caregivers with questions, communication tips, and medical insight to be savvier navigators of the healthcare system. https://t.co/GdbGvk1qlg
youtube.com
Are you living with a serious illness like cancer or dementia - or caring for someone who is? In the whirlwind of appointments, tests and treatments it can be easy to forget about what matters most -...
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I never get over how much I love reading old progress notes. One year ago: my palliative care doc noted how our cat, Mark, is a support to my husband. In an open note, I feel seen. #btsm #hapc #opennotes
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@ABradfordPhD šYou may be interested in this study in @AGSJournal: Patients w/>2 chronic conditions more likely to report reading notes helps them remember care plan, take medications as prescribed & understand & feel more in control of medications https://t.co/C2XXd2PgGk
#opennotes
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It's #NationalHealthcareDecisionsDay! Today, my husband & I dialed in Proxy Access settings for all 5 of our MyChart accounts. At 4 sites we had to create new user accounts just to add each other as proxy. We spent 1.5 hrs on this project but it was worth it. #NHDD #hapc
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š¢ You donāt need a lawyer to appoint a Health Care Proxy! Use a free #AdvanceCarePlanning tool like @prepareforcare to start a conversation, then tell your doctor. Why not start today? #NationalHealthcareDecisionsDay #NHDD #hapc
If you have 10 minutes (or less) today, you can do one of these 10 actions to plan for your health care as part of #NationalHealthcareDecisionsDay2023 #NHDD
https://t.co/31HEzmRixq
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7 years ago, a medical society told me their conference was not intended for a patient audience. Last fall I was an invited presenter. This is proof that medical culture can change & it works best when patients, care partners, clinicians, and researchers are working together.š¤
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Dr Matt Tyler (@PalliDad) discusses his experience with anticipatory grief in a professional capacity, from our latest panel on YouTube. Check out the full panel: https://t.co/AqxBI5VSpr
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It was such a joy to explore the deep and unique personal meanings we each create in the video game experience with these wonderful people. If that statement piques your interest I highly recommend checking out our discussion in this link! Thanks to @SafeInOurWorld for hosting!
On our latest panel, we brought together a group of people to discuss their lived experience in grief, and how video games have played a part in their journey. Here's a clip from @DJNathyB explaining his experiences with Tekken and The Last of Us. š https://t.co/AqxBI5VSpr
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One of my favorite things in the world is when two different passions collide serendipitously. Really excited to chat about the intersection of grief and video games tomorrow. Hope to see you there! #hapc
https://t.co/kWkNQucKyN
twitch.tv
Welcome to the official Twitch channel for Safe In Our World - a mental health charity supporting the games industry and global gaming communities.
Join us tomorrow afternoon for a panel discussion on grief with our wonderful panelists @DJNathyB, @shiiro_jk, @PalliDad and Emma Withington! We will be discussing our experiences with grief, as well as the games that helped us through. ā¤ļø
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What does it mean to "accept" death? We often expect this of our loved ones and patients, and I explore the reasons why in my latest essay for the New York Times, out today! https://t.co/6x4gtDJMUs
@UMassChan
@UMass_Medicine
nytimes.com
It is easier to search for readiness than to process what its absence means.
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When the page says āGOC pleaseāā¦ Pagers and electronic messages are great for notifying about consults, but for consults about discussions of medical preferences in serious illness, a phone call can be priceless. #hapc #palliativecare #graphicmedicine
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We have to acknowledge its craziness that, in the US, a patient at EOL (who cannot be taken care of at home) has to pay $400-500/day (not /week or month, /day!) for room/board to receive hospice care in a nursing facility, only because they don't have Medicaid.
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Major fanboy moment meeting the amazing and amazingly humble @SunitaPuriMD !! PS Check out her book That Good Night if you havenāt already #hapc23
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