We at @nspku want modern blood monitoring and we want the fantastic new drug sepiapterin/sephience. Write to your MP, explain #pku and your life so they can meet researchers in Parliament on 11 November with ⁦@macdonj⁩

Thank you for sharing our story 💚 @NSPKU @PKUFamily

Thank you for sharing our story. Thank you @justinmadders for support the @NSPKU hungry for change campaign 💚

Thank you for sharing our story 💚 @NSPKU

There's nothing I can do but I won't stop fighting for my daughter

After a very difficult week on our PKU journey, willow was ecstatic to receive a pick me up from @NSPKU after reaching out for support this just solidifies how important they are to PKU families. Forever grateful, thank you just doesn’t cut it 💚

The Ladybird Christmas tree. Spindly, slightly wonky, over decorated with a random assortment of decorations - and always ready to shed an improbable quantity of needles Artist: Harry Wingfield (1964)

https://t.co/dvGEHy6Rh6

Had the honour of spending time today with another local MP @patcullen9 who took time out of her day to discuss the topic of PKU and the journey we have taken so far and the future of what lay ahead for people with PKU including new technologies and treatments to come. #pku

We @NSPKU had a great event in the beautiful Scottish Parliament today. Families living with PKU talked about the need for patient centred care and access to new treatments. Thank you @fultonsnp @neilcgray @MonicaLennon7 and colleagues for your time.

Thank you @justinmadders for supporting Chelsea and Willow. @LizTwistMP @nspku Local MP Backs Bromborough Family as Daughter’s Rare Condition Limits Her Diet

Had two more productive meetings today with @PaulMaskeyMP and @CathalMall to discuss life with PKU. We talked about current treatments and what new treatments are coming down the line and what support we will need both in Westminster and locally here. @NSPKU

Humbled to be knighted by His Majesty today. Thank you to my wife and family who have been my rock throughout the mad ups and downs of politics - this is as much for them as me and it meant the world they were there to see it

At #ESPKUConference2025 Prof. Anita MacDonald discussed new dietetic innovations: 🥛 GMP benefits for gut & growth 🍞 Additives in low-protein foods may disrupt microbiota 🤖 3D food printing - customization & less waste 🧬 Prolonged-release proteins improve metabolic control.

🟢 Phenylketonuria Awareness and Support 🟢 Delighted to catch up with Armagh’s Chris Cassidy in Westminster, a powerful advocate for people suffering from Phenylketonuria (PKU). This rare, lifelong metabolic condition affects how people process amino acids and can cause severe

I recently had the pleasure of meeting Chris Cassidy, a dedicated awareness campaigner for Phenylketonuria (PKU). With around 300 people in the north diagnosed with PKU, which is roughly 1 in 4,000 of the population, it was invaluable to hear firsthand about the impact this

Ladybird Artists Advent Calendar, window 3 ‘Baubles,’ 1964 Artist: Frank Hampson

Point-of-Care Testing in PKU: A New ERA of Blood Phenylalanine Monitoring https://t.co/6VU7wV2cjj #mdpinutrients via @Nutrients_MDPI

Great culture can save lives. Literally. Amazing letter in today’s @thetimes about Tom Stoppard

I think I had to do this. If you know something is off, please be persistent.

A reminder that my Ladybird Artists Advent Calendar starts tomorrow. 🎄 Of course, it may bear a distinct resemblance to my advent last year (and the year before that, and the year before that …) 😊 Artist: PB Hickling