PHA UK
@PHA_UK
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We are the Pulmonary Hypertension Association UK (PHA UK) - dedicated to supporting people affected by pulmonary hypertension.
Sheffield, England
Joined January 2010
PH Day UK is back! Lets raise the profile of #pulmonaryhypertension together on Friday 7th November. All the ways to get involved: https://t.co/qcjdBX3CBv 📢 This year’s theme is #BreathlessNotVoiceless - will you help us turn up the volume?
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We're making it easier than ever to support #PHDayUK on your social media channels! You'll find a range of downloadable graphics and template text for posts at https://t.co/UXFVzdWZ3W. 🤳 Don't forget the selfies with our photo cards too!
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PH Day UK takes place THIS FRIDAY! Are you ready? Here's a reminder of all the ways you can get involved: https://t.co/fIg4AykUTL
#BretahlessNotVoiceless
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🎬 The Right Heart Catheter is known as the 'gold standard' test for diagnosing PH and in this short video, we spoke to Dr Charlie Elliot - who has performed hundreds of these procedures - to answer common questions and concerns: https://t.co/pmhAAMgagN
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New PHA UK merchandise! Wear these unisex neck covers / multiway wraps in any way you like... Pull up over your mouth and nose to ease breathlessness when it’s cold, or wear as a hood, hairband, or scrunchie: https://t.co/CJBCqVbqin
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This new group is designed to help guide service development and research in paediatric PH, ensuring young voices are heard. The online meeting was followed by another with parents and guardians, and it was equally as valuable.
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Our first group meeting with youngsters with PH and the team from Great Ormond Street Children's Hospital took place yesterday, and it was great to hear all the feedback and ideas 💭 Find out more & get involved in future sessions: https://t.co/3IBeC24sfk
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We're delighted to be presenting 3 research abstracts, covering some important studies and bringing UK patient voices to this global gathering in January 🍀
☘️ Dublin awaits! Hear from Seán Gaine, Scientific Organising Committee Lead for PVRI 2026, as he shares why next year’s Congress in Dublin will be one to remember — celebrating 20 years of PVRI and the incredible progress in pulmonary vascular science and care. PVRI 2026
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PHA UK branded Candles of Hope are now available to order at https://t.co/dcq93SMQWr 🕯️ Join us at 8pm on #PHDayUK (Friday 7th November) as we light candles of hope in homes around the UK. Details: https://t.co/7AmModNc71
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We're grateful to Bisma for sharing her experiences in order to help others. Here at the PHA UK we are working on supportive resources to help those affected by this issue, and they will be available early next year.
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Being diagnosed with PH as a young woman brings unique challenges & many struggle with the advice not to have children. In this candid interview, PHA UK member Bisma explains how 5 years after her diagnosis she has come to accept she will not be a mother: https://t.co/RYe5ynOoYH
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Our October e-newsletter has landed in inboxes... so as always, don't forget to check your spam folder 📩 Anyone can sign up for these monthly email updates, which are separate from our member magazine. Subscribe here: https://t.co/Dxxkr9Cdqh
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💜 Will you be going #PurpleForPH on Friday 7th November? Paint your nails burgundy, don some lilac earrings, or go all out in head-to-toe violet. How about holding a non-uniform day at work or school, to raise funds as well as awareness? Details: https://t.co/KV0pgZrRrc
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Today is #WorldMenopauseDay so we're reminding you of our free publication to help women with PH who are navigating this time of life. Order your copy now at https://t.co/OVhqOqC0s1
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We're looking for people affected by #CTEPH to be part of a new study with medics & researchers to ensure patient voices help shape service development. Find out more & register your interest here: https://t.co/IQDdTvghL2
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Having a PH diagnosis doesn’t automatically make someone eligible to receive the COVID-19 vaccine this autumn. Find out more: https://t.co/EGF4FKehgD
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NEW! Add your words to our online PH Platform and make yourself heard for #PHDayUK 💬 See the platform: https://t.co/B8Uw5xtvZg 📢Leave a message: https://t.co/JzWHRvJ5wb
#BreathlessNotVoiceless
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Couldn't make it to our event in Birmingham? You can now watch all of the expert talks and lived experience panels online: https://t.co/9VjMXyTIxu
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Today is #WorldMentalHealthDay so this is an important reminder that if you live with PH and need support with mental wellbeing, you're not on your own. Find out more about our support services: https://t.co/d6Iqe1wtoy
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📩 Could you email your MP to ask for a social media shout-out on #PHDayUK? MPs are always looking for opportunities to support constituents & many have large followings online. You'll find links to template text & more here: https://t.co/yvKvSCb3J6
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