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Pulmonary Fibrosis Foundation Profile
Pulmonary Fibrosis Foundation

@PFFORG

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We imagine a world without pulmonary fibrosis. https://t.co/e5cmq67fNV

Chicago, IL
Joined August 2009
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
PFF Board of Directors member and lung transplant recipient, Laurie Chandler, wrote a letter for the New Hampshire Union Leader to urge lawmakers to pass the SOAR act. Read it below:. 📰 #SOARActO2
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
PFF Summit 2023 sessions are now rolling out on YouTube! In our first Summit premier, join a panel of experts to learn how federal agencies play a crucial role in research for pulmonary fibrosis. Watch now!
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
Chronic cough has a significant impact on pulmonary fibrosis patients’ physically and mentally. Learn more about the causes, treatments and impact on quality of life by registering for EU-PFF’s webinar this Thursday, May 9th. Sign up at
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
Have you ordered your Shop PFF merch yet? Raise awareness of PF everywhere you go at
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
Join the 18th annual FREE in-person patient/family education day event hosted by The American Thoracic Society’s Public Advisory Roundtable (PAR) in sunny San Diego! . Date: May 18, 2024.Location: San Diego, CA.RSVP: Email par@thoracic.org by MAY 10, 2024. See flyer for details!
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
In our newest post, Dr. Amy Hajari Case talks about how AI will improve healthcare for the PF community. Read it now at
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
April is National Volunteer Month. Today, we’re highlighting one of our PFF Hill Day volunteers, Marla Brady. Thank you Marla for your contributions to the PF community!
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
THANK YOU to everyone who has joined the PFF Community Registry so far! 🎉🎉 As a token of our gratitude, you can show your support of pulmonary fibrosis research with this profile picture. Haven’t enrolled yet? Get started at
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
April is National Volunteer Month. Today, we’re highlighting one of our class of 2022 PFF Ambassadors, Karen Smoot. Thank you Karen for your contributions to the PF community!
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
Take it from our current enrollees. Your participation matters. Enroll now at
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
April is National Volunteer Month. Today, we’re highlighting one of our PFF Ambassadors, Gretchen Cararie. Thank you Gretchen for your contributions to the PF community!
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
PFF Ambassadors are available to speak at your next event! Find out more at
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
April is National Volunteer Month. Today, we’re highlighting one of our PFF Hill Day volunteers, Julie Rossignol. Thank you Julie for your contributions to the PF community!
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
With more than 50 full-length webinars available for FREE on our YouTube channel, we’re confident that you’ll find answers to your most pressing questions about pulmonary fibrosis. Check out the playlist and watch now!.
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
April is National Volunteer Month. Today, we’re highlighting one of our PFF Hill Day volunteers, Jamie Lederer. Thank you Jamie for your contributions to the PF community!
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
☀️🌷 With warm temperatures on the way, get ready for spring with merch from the Shop PFF store! Raise awareness of PF everywhere you go with tshirts, caps, bracelets and more at
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
This year’s 'Broadway Belts for PFF!,' held on March 18 at Sony Hall in New York City, shattered fundraising records with $516,00 in donations and continues to climb. Thank you Broadway Word for the press coverage of our annual gala!.
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
Pulmonary rehabilitation (PR) can unlock the potential to live a better life with pulmonary fibrosis. Visit to use an interactive map to find PR near you! Thank you to the American Thoracic Society for providing this valuable resource!
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
Pulmonary rehabilitation includes exercise training; breathing exercises; anxiety, stress, and depression management; nutritional counseling; education; and more. Learn all about it at #PRWeek2024
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@PFFORG
Pulmonary Fibrosis Foundation
1 year
In an effort to increase and diversify research, the Pulmonary Fibrosis Foundation envisioned a new approach to collecting usable medical data — asking patients directly.
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