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OI Foundation Profile
OI Foundation

@OIFoundation

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Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.”

Gaithersburg, MD
Joined February 2010
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@OIFoundation
OI Foundation
2 months
Join the OIF Email List! .Don't miss out on updates from the OI Foundation including our monthly e-newsletter, research updates, and upcoming event information. Sign up today at
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@OIFoundation
OI Foundation
2 months
The OI Foundation's goal is to provide information for OI community members, medical professionals, and caregivers. Visit the OIF's online Information Center at #OIawarenessweek #UnbreakableSpirit
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@OIFoundation
OI Foundation
2 months
RT @NemoursOrtho: .@NemoursOrtho is celebrating Osteogenesis Imperfecta (OI) Awareness Week. #OI is a rare genetic disorder notable for bri….
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@OIFoundation
OI Foundation
2 months
Thank you for celebrating Wishbone Day with us! We hope you will continue to raise OI awareness throughout National OI Awareness Week (May 3-10)! To learn more about how you can get involved, please visit #WishboneDay #UnbreakableSpirit #OIawarenessweek
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@OIFoundation
OI Foundation
2 months
Your participation in current OI studies helps move OI research forward! If you are interested in learning more about current OI studies and publications, join the OI Registry at #WishboneDay #UnbreakableSpirit #OIawarenessweek
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@OIFoundation
OI Foundation
2 months
OI is a collagen disorder caused by a mutation (change) in a gene that affects bone formation, bone strength, and the structure of other tissues. Learn more at #WishboneDay #UnbreakableSpirit #OIawarenessweek
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@OIFoundation
OI Foundation
2 months
Different types of OI have dominant, recessive, or X-linked inheritance. Dominant inheritance occurs in 90% of individuals, recessive inheritance occurs in 5-10% and X-linked occurs in less than 5%. Learn more at #WishboneDay #UnbreakableSpirit
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@OIFoundation
OI Foundation
2 months
Learn More! The OI Foundation online Information Center includes factsheets, publications, and video resources on a variety of topics related to understanding and living with OI. Visit #WishboneDay #UnbreakableSpirit #OIawarenessweek
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@OIFoundation
OI Foundation
2 months
The exact number of people with OI in the U.S is unknown, but estimates show approximately 20,000 to 50,000 individuals. #WishboneDay #UnbreakableSpirit #OIawarenessweek
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@OIFoundation
OI Foundation
2 months
Osteogenesis imperfecta exhibits a wide variation in appearance and severity. Every individual is unique. #WishboneDay #UnbreakableSpirit #OIawarenessweek
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@OIFoundation
OI Foundation
2 months
One of the best ways to raise OI awareness is to educate your community about OI and share your personal OI story! SHARE this graphic to start the conversation with your friends and family!.#WishboneDay #UnbreakableSpirit #OIawarenessweek
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@OIFoundation
OI Foundation
2 months
Happy Wishbone Day from the OI Foundation!. #WishboneDay #UnbreakableSpirit #OIawarenessweek
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@OIFoundation
OI Foundation
2 months
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@OIFoundation
OI Foundation
2 months
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@OIFoundation
OI Foundation
2 months
Osteogenesis imperfecta (OI) is a rare and complex genetic disorder of the collagen that is often characterized by bones that break easily. Learn more at #WishboneDay #UnbreakableSpirit #OIawarenessweek
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@OIFoundation
OI Foundation
2 months
Celebrate with us today by wearing Wishbone Day yellow and educating your family, friends, and community about osteogenesis imperfecta (OI). #WishboneDay #UnbreakableSpirit #OIawarenessweek
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@OIFoundation
OI Foundation
2 months
OI Support Group leaders are hosting virtual events throughout OI Awareness Week! Join us tonight at 8:00pm ET for OIF Resources & Family Fun Night. Register to attend this week's Zoom events at #OIawarenessweek #UnbreakableSpirit
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@OIFoundation
OI Foundation
2 months
It's National OI Awareness Week! SHARE this photo to help raise OI awareness across the globe! #OIAwarenessWeek #UnbreakableSpirit
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@OIFoundation
OI Foundation
2 months
RT @GoochCatherine: It’s been a poster week! @OIFoundation
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@OIFoundation
OI Foundation
2 months
Learn more at .
@ChildrensCO_Pro
Children’s Colorado Research and Innovation
3 months
The @OIFoundation is hosting a regional conference here in Denver. Register to join our orthopedics experts from May 3 to 5 and learn more about #OsteogenesisImperfecta management and treatment. #OrthoTwitter.
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