Living Hope 💜
@NkhosiLa
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End Stage Cystic Fibrosis warrior ❤😷💪 Pulmonary Hypertension Blogger Health advocate
Swaziland
Joined April 2019
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Pinned Tweet
Kindly check the link in my bio Circle of Hope would greatly appreciate getting this box and it would help them skip hospital stay during loadshedding or worrying about oxygen cylinder refills 💜💜We are Circle of Hope and
#WeCarryHopeInOurLungs
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Dear
@elonmusk
would you kindly get me at least a one year supply of this life changing medication just so that I am able to see myself turning 30 next year, just one year to get myself feeling healthy, this would change my life for at least a year, please and thank🫣🫣
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I'm going to India finally 😭😭😭😭😭 we've raised 1million we are short of the other million,in the meantime I'll leave for India to do some tests and take some immunosupressants then wait for the other million 😭😭😭😭😭I'm getting my lungs fan. Please keep donating 😭😭😭🕯️🕯️
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Good news I've waited for since July!!!!!!
I'm finally leaving to get my lungs in India 😭😭😭😭26 September is my departure date, thank you all for being so patient with me and fundraising for my lungs 😭😭😭😭😭 I'm beyond excited
@casspernyovest
thank you so much 🥺🥺🥺❤️
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Intimate fam braai, I'm so grateful to be able to celebrate another year,my body was against me but today I chose to ignore pain,a blast I had,now I can sleep with a smirk on my face because I ignored pain.26 years of life 💜💜💃💃💃
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Please keep me in your prayers this morning, I just had a terrible attack and now I’m in ICU and feeling so messed up 🥺🥺🥺🥺🥺🥺
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The pictures of my body I never take,the parts of my body that I never look in the mirror 🥺🥺🥺some days I'm owk with the protruding bones but some days it's not owk because I've tried all I could but I'm getting worse by day 🤦🥺🥺🥺
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Tomorrow my psychologist is preparing me for my next life since I'm at the end stage,so now I have to live my life knowing I might die soon,since lung transplant us far fetched for now,drs are just going to try all they can to keep me in less pain and help me transition well😭😭
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I'm in a plane for the first time in my life because you people chose to love me 😭😭😭😭
#capetownmeetswarrior
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See the chest difference 🥺🥺🥺🥺hhay bafethu God is alive,see the bones on the neck gone gone hhay mne I will always praise God bafethu he has taken me from far depression and all that. I’m forever grateful 😇
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Not suicidal,I haven't lost hope either but I'm just done 🥺🥺🥺🥺🥺 I don't want to keep on fighting I've fought enough,now it's just time I ask God to give me rest from this battle,my job is finished May God do his will 🥺🥺🥺🥺💜Thank you for carrying me through since 2019🥺🥺
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I came here for new lungs but it didn't go as I wished so I got this art of 65Roses as a constant reminder of all the wins I got as I bow my continuous fight 💜This is the closest to the hope I had of a close to normal life. Today I choose my warrior self💜
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Merry Christmas from the chronic world💜💜💜second Christmas away from home and family💜💜Spread love and compassion today 💜💜Merry Christmas 💜💜
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The girl has been finally discharged 💃💃💃💃Thank you all for the love in my 3 weeks of hospital stay 🤭🤭next hospitalisation will be in India for my lung transplant 💜💜✌️✌️
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Didn't sleep a wink yesterday had to be rushed to the hospital, my saturation was not good I'm so scared 😭😭😭😭please remember me in your prayers, this journey is getting more scarier 😭😭😭😭
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Finally leaving for SA for my flight tomorrow morning 😭😭😭😢😭it's like I'm dreaming because I've waited for this day for so long,
@casspernyovest
this is what you worked for 🥺🥺🥺🥺Also all those that have invested in my life and waiting for this day,I hope I make your day 🥺
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Praise God for the travelling mercies, I am finally home 🥺💜💜
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I was 12 and he was 8 when we made this friendship 🥺🥺🥺🥺he’s had my back from day one 🥺🥺🥺🥺🥺if I happen to get married he’s going to be my best man 🥺🥺🥺❤️❤️❤️
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He didn't sleep he was just there thinking of helping me, dear God you are awesome, guys I'm crying the whole day today because I'll be in India soon
@casspernyovest
thank you 😭😭😭😭😭😭😭
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Just waking up to more good news 🥺🥺🥺🕯️🕯️ family I'll be getting my lungs really soon 🥺🥺
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We are smiling today because we are 400k half a million 🥺🥺🥺that means we are really close to the 2million we are working towards 🥺🥺🥺 I'm that close to breathing on my own 🥺🥺🥺🥺no more stares because of machines and tubes on my face 🥺🥺🥺
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I’ve been given 6 weeks to get to at least 40-45kg and some muscles for strength for my transplant and I’ve gained 2.7kg already 💃💃💃💃I can feel my ass shake when I walk now 😭🤣🤣🤣🤣🤣my ass is so heavy 😭😭😭🤣🤣🤣🤣Happy Friday 💜
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Update: My lungs are at end stage 😭😭 Pancreas blocked😭😭 I'm not owk emotionally but I'll learn to accept it, please help me raise some funds to do this very important test to check the type of lung infections I have that's affecting all my organs🥺🥺🥺🥺 Please
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First pic of the year💜May it be a healthy year, less pain and proper breathing, weight gain and muscle strength. May I keep learning to love me first without feeling guilty. I pray this year is more bearable with beautiful moments 💜💜
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Since I'm at the end stage of Cystic Fibrosis and pancreas blocked meaning no food is digested,I ask you give me love,I know my day is close may 3 wishes come true before my time comes. Meeting
@Natasha_Thahane
&
@MimoMokgosi
then inspiring the world. My time is too close 😭😭😭
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Also before I finally sleep almost forgot this one 🥺🥺🥺🥺🥺I’ve been finally listed on the in the state of Coimbatore transplant list 😭😭😭😭now I’m just waiting for a call of them telling me they found a match 🥺🥺🥺🥺🥺Please keep me in your prayers on this one 🥺🥺🥺🥺
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Shebang le ass 👀💃💃💃💃💃my thighs have started fighting each other for space too 😩😩😩😩arrrrrgggghhhh you don’t understand the excitement 🥺🥺🥺🥺🥺
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I can finally wear leggings and feel at ease 🥺🥺🥺🥺this weight gain is giving me all the confidence I’ve been longing for,this journey is bringing so much growth and new sizes, I’m beyond excited with each day 🥺🥺🥺🥺❤️Dear God “Thank you “
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Your fighter has arrived safely in India 🥺🥺🥺her journey to healing begins tomorrow,I can never thank you enough for the love and support you have shown me 🥺🥺🥺🥺🥺 India is treating me great too
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Fam I'm really scared with the way things are happening, I keep zoning out of consciousness 😭😭😭😭God knows I'm so not ready for this 😭😭😭I'm so scared I don't want lie, I'm just to scared with the way things are happening offlate😭😭😭😭
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I arrived safely and it's time to sleep since I'll be at the airport by 5am to sort out my travels then we leave 🥺🥺🥺🥺Prayers for my travel would be greatly appreciated 🥺🥺🥺🥺🥺 Thank you for the love you have been pouring on this journey,I'm so blessed 🥺🥺🥺 Goodnight 💜💜
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Me reading all the love I’m receiving 🤣🤣🤣🤣this disease doesn’t care about a special day so if I don’t like your comment apologies 🥰🥰I’m reading them all and trying to at least show. Thank you for all the love
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Discharged and on my way to my house 🥰🥰🥰🥰feeling so much better than on admission day 💜💜
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It’s been so long 🙃🙃💜but I just popped in to say I’ll be 29 in 5 days😁😁😁I’ve been proving this chronic illness wrong for a full 28 years going on my 29th, it’s so great adding a year and scary at the same time but I’m here for it 😁😁😁
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You Twitter family are my real world,you really uplifted me and made my day go really quick, at least now I'll sleep,thank you for the love 🥺🥺🥺🥺🥺
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Good morning family,I haven't been feeling well since Saturday and thus also can't travel feeling unwell since it limit my chances of being approved to fly,so I have checked in the hospital,I had to update for all my worried family,I'll get better and leave soon. I love you 💜💜
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If you see me celebrating the small kilos I’ve been gaining just remember God really outdid Himself 🥺🥺🥺🥺🥺this is where I’m coming from 🥺🥺🥺🥺I literally wake up to look myself in the mirror every time I stand up because wow 🥺🥺🥺🥺I count my blessings twice 🥺🥺🥺🥺
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He came to pick us up for a free drive around, I'm having a blast for real🥺🥺🥺🥺🥺
#capetownmeetswarrior
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Merry Christmas to all of you fam from India with love 🎊🎊🎊🎊
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This is a thank you from me 🥺🥺🥺❤️new lungs are coming soon 🥺🥺🥺🥺
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Here's an update!!!!Mbabane government hospital is where I'm admitted for more tests turns my oxygen levels are dropping drastically, I was on 59%when admitted 💜Please keep me in your prayers kubi kakhulu 💔💔💔. I'm also having a mild stroke 💔💔 I'm not taking my eyes from God
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Just got to the house, thank you for the amazing experience South Africa 🥰🥰🥰Now its time reminisce on the good memories
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We are out here in hospital still doing preparations for the lung transplant procedure and God is really working his ways. I am testimony of his grace 🙌🙌❤️❤️
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I’m celebrating my small recovery 😅✌️my voice isn’t matching my face though but we are making better progress 🥰🥰🥰
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Remind me I was this happy every time I get sad please 💜💜💜💜
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Dear
@EswatiniGovern1
my name is Nompilo Dlamini battling a chronic lung disease and I’ve been turned back from the hospital because it doesn’t have antibiotics or any more meds to assist me in the fight for my life, I’m going back to my bed and wait for death 💔💔💔💔😭😭😭😭😭
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Another one delivered 😭😭😭😭😭slowly we are getting there😭😭😭😭I can’t wait until none of them are affected by loadshedding 😭😭😭😭
@Eskom_SA
please remember their lives depend on you
@PresidencyZA
please do something before it’s too late
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Days are not the same 💜Today feels better than the previous one 💜
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Please remember me in prayers today,my health is just getting worse, today I had the biggest scare of my life I'm still traumatized by what happened,I'm so not ready to see my soul leave my body 🙏🥺🥺🥺 I'm so scared to even close my eyes 🥺🥺🥺🥺
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I have so many more coming 🥺🥺🥺🥺A beautiful 28 year old, thank you for the love you gave me today my day has been great. Photocred
@Mbulelo_Ndlovu6
thank you for making me this beautiful today
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The most tiring workout but we are working on those body muscles 🤌💪🦵Morning workout done 😌😌😌
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Please pray for me tonight as you say your night prayers,the past weeks stresses are beginning to take toll on me and I'm not feeling so good on top of being tired of being sick,I'm beginning to have anger every time I get sick because I'm exhausted from it,I just don't want it
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I’ve made fighting end stage of this chronic disease look so beautiful 😌Pain has never looked this pretty 🥰Severe anorexia and hypoxia don’t look so perfect 😌but here I am doing it all so effortlessly 😎
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Please carry me in this emotional times I'm going through,prat for me ,send me music I can download to feel better. I took 3 sleeping pills thinking I'll be able to have some through sleep but nothing,my anxiety and depression are bossing me this days 😭😭😭I just can't hold it
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Meet my mom🥰🥰🥰she just recently joined twitter 😑😑😑no more crazy posts because I'll be watched 🙃🙃🙃🙃
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You guys 🥺🥺she came and got me flowers too and she's so sociable basically loud just like me😍😍😍I'm so blessed, thank you for the continuous support, I always tell people I'm a Twitter's child because you all mother me so well 🥺🥺I'm so grateful
@CandieModiselle
Thank you
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Packing my last bits of India 🤭🤭🤭it's been a journey, can't wait to get home and let God do his will 🥰🥰🥰
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Last breakfast in Cape town 😭😭😭😭Cape town, Thank you for the love and peace you gave me, I'm leaving for OR Tambo in a few minutes 🥺🥺🥺
@biphakathi
you will forever hold a special place in my heart 🥺🥺🥺♥️
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Morning physio done ✅ I’m getting better at the exercises and my weight is now at 35.5 from 34.7🥺🥺🥺🥺I’m so proud of myself 😭😭😭😭I’m seeing so much progress and my lungs are so close to becoming a part of me 😭😭😭I can’t thank you enough for this lifetime change 😭😭😭😭
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The love I'm getting from you people 😭😭😭😭the phone calls 😭😭😭😭I'm really overwhelmed and grateful for such love 😭😭😭
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Positive news!!!!!!!!!
I've gained 3.2kg in a week of trying this foodie with protein shake 🥺🥺🥺🥺so happy and proud of myself 🥺🥺🥺to many more weight gains on my Mondays weight check ins 🕯️🕯️🕯️My face says it all 🕯️🕯️🥺🥺
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Guys vukani 🥺🥺🥺I'm going home today 🥺🥺🥺its been two weeks in this hospital and today I get to go home🥺🥺🥺
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I swear today is such a bad day 😏I'm even shaking but I just had to atleast shower and put some lipstick 💜can't let my body look like how I'm feeling 😑😌
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After what happened last night, I really need food food to calm my emotions because WOW🥺🥺🥺🥺
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I hope this makes everyone understand where I stand and why I'm feeling the way I feel💜no form medication will ease my heaviness now I just need rest 💜I appreciate all you have done for me from day one to this day,I would have long lost hope but you are here, but I need rest 💜
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Two days left before my departure to India 😭😭😭 I'm really getting my new lungs and fetching me a new life 😭😭😭😭😭I still can't believe this life, I've had so many moments where I almost threw in the towel but we are here now 😭😭😭 God is amazing.Happy Thursday 💜
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Some days I’m genuinely happy and I love my happy moments ❤️❤️I want to live first before I die
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Tomorrow I'll sleep in Cape town 😭😭😭🥺🥺🥺I'm so excited can't wait for today to end 🥺🥺🥺Vukani phela and ask me if I have everything I need for my trip 🥺🥺🥺I'm so excited
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Without Twitter I swear I would not be surviving this life,the crazy posts and comments on people's posts keep me alive because I can stay on my phone forever laughing my dead lungs out 😂🤣🤣😂 I appreciate the Twitter streets💯💜
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Just saw that someone did this for me on the blue app 🥺🥺🥺🥺I love the fact that my smile is still as wide 🥺🥺🥺🥺 Good night world 🥺🥺🥺I'm glad I got this before I was dead,I just really love it 🥺🥺🥺🥺
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A message for your never ending support my twitter family 🤍😭😭🤍
@casspernyovest
you saved my life and gave me hope 😭😭😭❤️May I give someone hope in the future 🥺🥺🥺🥺🤍💜
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An update family finally got settled in a private ward with the right medication through the assistance of
@MTNSwaziland
, please don’t get tired of doing the good work, I’m truly blessed to have so much support every time I cry out. I promise to fight as well 💜💜💜💜
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Some days I wonder why God chose me to carry my battles, I ask myself why I had to have a disease with no cure at all,go through childhood traumas now I’m here in a foreign land all by myself getting all types of emotions 😣😣😣no one to go into surgery with just me and God ☹️☹️
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Seeing these pictures I just took got me so emotional 🥺🥺🥺my arms and areas around my armpits full of life 🥺🥺🥺🥺my back all so meaty and no more wheelchair because I have strength to carry myself 🥺🥺🥺God really saw me through the whole of this year,no covid 🥺🥺🥺🙌🙌
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Hello family,we gathered strength to sit outside the bedroom,breathing is still so much work,body aches and no voice,only thing I have left is hope and faith that all I’ve been through will be rewarded 💜💜I appreciate being loved by you 💜💜
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Please retweet my pinned tweet, thank you for the contributions💜Help me reach my goal 💜
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Finally have my space because you people have been carrying me through I’m here to show you what your support has done for me🥺🥺My miracle is all of you making me live life.Please help me work with the youth so I manage my bills, I want to work for this life 💜I appreciate you
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Stop coming into my dms now that I’m here fetching my lungs 🤣🤣🤣🤣🤣ngine ndoda already 😌😌angikho single mne 🤣🤣🤣🤣🤣🤌owwwwkkkkkkrrrrrrr bye ✌️
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See them thighs and hips coming up,it’s 22:25 here so I’m laying my chubby body down,phela being this big is no game 😏🤣🤣🤣🤣Good night 💜
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I’m back to loosing weight and mobilising is a big nightmare, my heart is overworked since the lungs were long done with me, my biggest scare is the heart stopping because of the pressure it’s carrying, I can’t even eat with my mouth shut. Being able to breathe is a gift 💜💜
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Being in the air is an amazing feeling because I know the rewards that will come with it 🥺🥺🥺🥺🥺 Y'all I'm getting my lungs because you chose me over everything 🥺🥺🥺🥺🥺I owe you to fight with my all and come back to live life free of breathing aids 🥺🥺🥺💜💜
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Today is the last time I used my feet to walk, I don't know how I'll be able to mobilize but my lungs for the past month have been telling me it's enough, today was my worst I dont know how many times I had passing out moments, my life is stopping couldn't even get in the kombi
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Please help me breathe easy, I am in dire need of an oxygen machine, I have so many ambitions I want to achieve but my lungs are holding me back, I want to be a reason someone smiles in the future but my luck are failing me 😷🙇
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